1 year from diagnosis and a new lease of life

symbolicus

Member
Messages
7
Type of diabetes
Treatment type
Diet only
So... where to begin. Firstly by apologising. I've been lurking as a 'guest' for a long time. I was diagnosed as type 2 Diabetes on the 10th of May 2016. I went through denial, anger, fear... all of the things. It wasn't just blood sugar that was out of control. I was. I was over 310lbs, eating terribly, drinking terribly, struggling with stress and anxiety, much of which was caused by a divorce/separation and a job that I truly hated. So I eat for comfort. Everything was bad. I'd never been slim, but I now couldn't look at myself in the mirror. I found out at diagnosis that I'd been borderline on a HBA1C blood test the previous year and no one had told me, so realistically I'd been T2 less than a year, and was sitting at a HBA1C of 55 (second double confirmation test a few weeks later of 52). I was 35 years old.

I came here as a first port of call. I was waiting for my first appointment with a diabetic nurse, and I was just trying to get my head around what was happening to me and what I could do to stop it, or more realistically, dampen its impact. I have a partner that relies on me and what scared me most of all was that down the line I'd go first (by my own hand), and that I'd miss out on more life with her as a result. So I read, I read about LCHF, I read about the Newcastle/Blood Sugar diet, and I started to make changes. Immediately removed refined carbs/sugars, and also calorie cut to between 1600-1800. Started walking a minimum of 10,000 steps a day, drinking 2-3l of water, removed all fizzy drinks apart from carbonated water. Diet sodas aren't an option as my partner is allergic to artificial sweeteners.

My nurse, who is wonderful, believed me when I said I wanted to try and do this via diet. I showed her the research on the Newcastle Diet and said I wanted to try it. I've seen what all the positives and negatives have said about it. Is it a cure? Is it remission? I just saw it as a chance, a chance to bring this beast under sharp control and give me a fighting chance at controlling it by diet alone. She got me an appointment with a GP that was looking to specialise in Diabetic cases for the area. He backed me and said he'd be willing to do phone consultations or see me if any complications arose, he was curious about what could be achieved. I was given a Wavesense Jazz to help me keep track of my blood sugar levels and avoid going dangerously low.

By the time all this had come to pass it was late May, and I had a defined goal: By my Birthday at the end of July I wanted to be able to enjoy a day with some cake (in moderation), and a few beers (in moderation), and not destroy myself with guilt or out of control blood sugar levels. So I embarked on the 8 week original plan. The weight poured off me, literally disappearing at a rate I cannot even fathom now. Whether by luck or genetics despite the rapid loss I've not ended up with lots of excess skin. By the end of the 8 weeks (during which I got very fed up of stir fry and mushrooms and my Purition meal replacement drinks), I was now weighing 210lbs. I spent a week gently reintroducing carbs in medium quantities, and staying away from overly refined products. This was partly due to my desire to keep things under control and partly because, by that point I'd lost my taste for them.

On my Birthday I tested my fasting blood sugar. Despite eating late, it sat at a very happy and reasonable 4.4. For breakfast I had a bacon sandwich on white bread. Criminal, right? I didn't test my 2hrs, mainly because at that point I was walking hand in hand with my partner through green fields on the Isle of Wight towards a beach of sand. I felt pretty damned good. That afternoon I had selection of cheese and biscuits followed by a cream tea (as I realised I’d rather have that than cake). Scones, Jam, and clotted cream. I daren’t even think of the carbs, or the sugar content. It was amazing, and with only the slightest tinge of guilt.

I’d promised myself I wouldn’t test myself, for fear of it it was above 7.8, and just test myself the following morning for a second fasting. However 2 hours later, I excused myself, went to the bathroom and tested myself. I couldn’t help it, I felt guilty.

Hands were shaking a bit and I was sweating. Pretty sure it wasn’t just the summer heat. Sample taken, meter whirred and the 2hr reading from my delicious gluttony came back: 6.2. I exhaled slowly. I went off, I enjoyed the rest of my holiday. A few weeks later I had my first post-lifestyle change HBA1C. Even with the excesses of a holiday and a return to normal-ish eating, my HBA1C came at 29. My nurse was ecstatic, and only chastised me over a slightly out of range LDL.

Since that moment I have enjoyed a balanced and mostly normal lifestyle. I’m very careful about what and when I eat, I don’t tend to eat a lot of refined carbs, for if no other reason than they make me feel bloaty. They cause my post prandials to be higher, but never above 7.8 at the 2hr mark (highest total was a 7.2 after a lot of pizza and beer when a friend visited from America for the first time in 2 years). I’ve given up cider completely, same with fizzy drinks, beer is occasional, and my favourite tipple is a nice whisky or scotch. I'm a cheap date at this weight now, and a scotch lasts me a lot longer than a beer! Fasting blood sugars remain within non diabetic range, highest they’ve gone is a 5.6. I'm using a Wavesense Jazz, which I've seen many people say reads high, but I also checked urine for glucose with dip sticks as a double measure, and nothing came up.

Most interesting lingering side effects is that my sugars definitely seem to be as impacted by my stress/anxiety for me than by diet. I've no idea if this happened to me before diagnosis because, well, I wasn't checking. Also, embarrassingly, I seem more susceptible to Balanitis/Thrush… although its appearance appears to have little connection with my diet or BS levels. So that's a whole barrel of fun. Again, more to do with stress/anxiety.

I also used to be intolerant to eggs, which gave me a stomach ache. Has done since childhood. Now I love a Ham and Egg Salad and can eat them without any negative impact whatsoever.

I allow myself occasional treats, but they are just that: occasional treats, and not the norm. I didn’t test myself at all for 2 weeks over Christmas. My weight bubbled back up 5lbs over the December period, and when I tested my fasting levels they were at 5.3. Not as good as it had been before, but it soon dropped back down when the last of the festive treats had gone, as did the 5lbs of weight. The biggest difference wasn’t what I eat, but how much of it. My stomach has shrunk.

Since January, I’ve taken up running again. A month ago I ran a fundraising 10k in 54mins flat, and regularly run 15-20km a week in 3-4 runs, with the average 5k taking me 28mins. Next up I start upper body and resistance training and rebuilding some of the muscle I lost along with the fat.

My weight has gone done further, and I’m now at a comfortable 182lbs. If it goes back up it won’t be from fat gain, it’ll hopefully be from muscle.

What sparked me to write this mammoth post is I’ve just had my results back from my one year on from diagnosis test.

Drumroll

HBA1C is at 29. All other things are within normal levels, and my weight is solidly in my ‘healthy’ BMI range. Even if I don’t believe in BMI, my surgery/GP/Nurse does! Whilst I’ve not seen the nurse yet, but she saw me when I went in to collect a printout of the results ahead of our appointment next week and she gave me a big grin, so I’m guessing she’s seen them. At this point I imagine she’ll only have my dress sense left to critique.

Based on rough starting weight of 310lbs, my initial loss through August 2016 was a reduction of 32% of my body weight. Followed by the further reduction of 30lbs I am now, at 180lbs, 130lbs lighter than my starting point, a 41% reduction in total weight since time of diagnosis. I seem to have escaped without masses of loose skin, and as I’ve started to build up muscle, some of the saggier areas are tucking themselves back. I'm from a 46" Jeans down to a 30-32". I've attached my 3 HBA1C tests from Diagnosis to present, although personal details are understandably obscured. This is the internet after all. ;)

The big question we all see asked and argued about, and which I've asked myself: Is the Newcastle Diet a cure?

Well, I've no idea. I’ve no idea how long this will last, I've no idea how long I've staved off the effects of Type 2 Diabetes, and I’ve no idea how quickly it would return if I went back to my old super high sugar and refined carb ways. I’m not planning on finding out either, why would I even want to take that risk? I know that I've given myself a new lease of life and I'll be damned if I'm going to squander it.

I will keep checking my fasting range, I will keep exercising, and I keep an eye on my post prandials. I don't think I'm back to how I was before I ‘broke’ myself, I'm not sure that's possible, nor will any of us be until the research into the Newcastle Diet is complete and recognised.

At the moment it appears that my body can cope well with what I'm currently throwing at it. And I'm just fine with that. If I've bought myself an extra 10-15 years (arguably the length of time it took me to get to this stage) before having to deal with it more directly again... I'll take that. If something changes before then, then I'll adapt as well. I'll do what I need to do to keep this body in the condition I've worked bloody hard to achieve.

So lastly: Thank you! Thank you to all those who’ve posted here about LCHF diets, their experience with Newcastle, their fasting, their HBA1C’s, their experiences… It kept this lurker sane. There’s too many to list but you’ve been a wealth of information, hope and scepticism. Even though you’ve probably never known it.
 

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Bluetit1802

Legend
Messages
25,216
Type of diabetes
Treatment type
Diet only
What a wonderful post, and thank you for taking the time to tell us your inspirational story.

Many, many congratulations, and I wish you well for the future. :)
 

CherryAA

Well-Known Member
Messages
2,171
Type of diabetes
Type 2
Treatment type
Diet only
Congratulations

it great to hear when things work out !
 
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daisyduck

Well-Known Member
Messages
988
Type of diabetes
Type 2
Treatment type
Diet only
What amazing results, your dedication and hard work have really paid off :) Huge congratulations !
 
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kumera

Well-Known Member
Messages
153
Type of diabetes
Prediabetes
Treatment type
Diet only
What a great story :) I wish you all the best in the future :D
 
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Pipp

Moderator
Staff Member
Messages
10,635
Type of diabetes
Type 2
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Tablets (oral)
I love a success story. Especially when it endorses the Newcastle diet. Well done @symbolicus . You must be ecstatic.

Hope you won't mind me mentioning that you should pay attention to the fact that Professor Taylor et al recommend that following the calorie restriction phase it is important to eat less than you did before you started. This is a lifetime requirement.

Not trying to take anything from your achievement. I speak from experience. In the first two years following my success at ND I was able to eat high carb foods with no rise in BG. However, by regaining some of the weight, I put this in jeopardy. Always remain vigilant. Do make sure you maintain the new weight, and test your blood glucose from time to time. First sign of increase in either, take action.
Keep posting here, too. Inspire others.
Stay well, and once again, congratulations on your success.
 

symbolicus

Member
Messages
7
Type of diabetes
Treatment type
Diet only
Thanks everyone for the kind words. Had appointment with Nurse this morning. Apparently I've been discussed between my GP (who despite 4 years with the practice, I've never actually met), and a number of other Doctors as they've never seen a transformation quite like it. Showed her my spreadsheet of blood sugar readings from the past year, including highlighted prandial/post prandial results from carb heavy/special days. Whilst I am technically a kilo or two over my ideal BMI range, she also acknowledged that BMI doesn't account for muscular build due to increase in exercise and that the fact I'm a 30-32" Jean size should say plenty more. I have an appointment with my GP start of June where he would like to take me off the Diabetic Register. As I'm already paying for my own testing strips, I see no real reason not to be off the register, although I will still be wanting to get my blood works done once a year to monitor my overall health and progress.

I'll continue to train, continue to exercise, continue to eat sensibly, and continue to monitor my fasting and post prandial results. Although for the sake of my hands and my bank balance not quite as often as recently.

@Pipp You were definitely one of the people that provided inspiration and hope. So thank you!

Regarding your comment: I am in no way going to take what I've achieved for granted, and the only weight gain I wish to see at this point is as a result of muscle build from exercise. I have a few specific sporting/athletic goals in mind that are going to require a considerable amount of resistance and upper body development that won't be achieved by my footfall based activities, so with the addition of muscle there I know my weight is going to go up, I guess it's a case of how.
Part of me wishes I knew where my threshold was. By losing as much as I have it could be anywhere within a 130lb range. However by not knowing I've got added impetus not to let that rise too much. Unless I can become a jacked muscle-body (unlikely. I'd settle for toned at this point).

Regarding eating less than when I started:
This is totally non negotiable and at this point eating what I used to doesn't even feel possible for me. You're looking at someone who at their lowest (highest?) was entirely capable of coming home in a depressive funk after work and eating an entire large stuffed crust pizza hut with sides and still have room for ice cream. Now: 3-4 slices of a small thin crust pizza and maybe a few jalapeno poppers and I'm ready to pop/fall over. I just physically can't do it and i'm glad I can't do it!

I'll do my best to keep this updated as my journey continues, for better or for worse and hopefully in August 2018 I'll still be at the same point... and then 2019, and 2020 and so on.

Thanks again all, I feel on top of the world!
 

Prem51

Expert
Messages
7,393
Type of diabetes
Type 2
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Great outcome @symbolicus, well done! And thanks for posting your inspirational story, it makes great reading! :)
 

Pipp

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Staff Member
Messages
10,635
Type of diabetes
Type 2
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All good ,@symbolicus .

Remember, personal fat threshold possibly changes as we age. I don't have evidence for that, just my opinion, based on what I have seen with several people I know.

As for being removed from diabetes register, I chose not to, as in addition to the blood tests the eye screen for retinopathy is important to me. Of course, that could be because I have other medical conditions too, and I am getting old. Don't know how old you are , @symbolicus so perhaps you and your GP will have different ideas to me. Always keep in the back of your mind that you have managed to put your diabetes into remission, and do not give it a chance to reappear.
Keep posting, just to encourage others.
:)
 
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symbolicus

Member
Messages
7
Type of diabetes
Treatment type
Diet only
@Pipp As it stands I'm 36 and apart from diagnosed anxiety/depression/stress issues (which tend to manifest themselves mostly as a nervous twitch and (until last year) comfort eating, I have no other medical issues at this time. I've replaced comfort eating with running and music, and it seems to be much more effective. If nothing else I end up having a bit of a kip at the end of it! I did have knee pain/grinding but dropping 130lbs and increasing exercise appears to have removed that for mysterious mysterious reasons. My eye screening last year came back with no noticeable or identiable signs of retinopathy or eye damage.

As I said previously, I've no idea if this is a curse, if this is remission or what this actually is that has been achieved. I'm trying to avoid putting a label on it until such a time as the NHS sit down and go 'ok, studies complete, here's what we definitely know'. The main reason I've chosen the 'in remission' tag is because there wasn't a 'I don't know what I've achieved but it's good!' Tag ;).

Maybe I've bought myself a good amount of time, maybe I haven't, but even if I come off the register, monitoring of my blood sugars, weight and such and a regular blood works test (even if I have to pay for it privately), won't. In the past year I've had very little interaction from the NHS beyond the bare minimum and a DESMOND session, so apart from the lack of an eye screening I won't actually see any noticeable change to my own self policing methods and monitoring of health.

The pragmatic side of me see's that at some point Diabetes will probably come back into my life in a way that I can't readily change. Irregardless of what list I'm on or not on in the eyes of the NHS, I'm not going to stop being vigilant in that regards. I've worked too hard to just go back to where I was. :)
 
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Pipp

Moderator
Staff Member
Messages
10,635
Type of diabetes
Type 2
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I don't think it inevitable that diabetes will come back to haunt you, @symbolicus , especially as you have taken on board the full instructions of the Newcastle / Taylor team and have your maintenence plan in operation.
At 36, you do have 'youth' on your side. As for the retinopathy screening, many good opticians can do a similar test. So, all things considered I don't think in your case being removed from diabetic register would be a problem. As you say you will be having annual blood tests, keeping watch of weight and blood glucose levels etc. Also, I think it helps psychologically to have recognition from the medics with removal from their register of diabetes patients.
I applaud you for your diligent attention to detail, and look forward to your reports in forum of your continued success.
 

Jan_85

Newbie
Messages
2
So... where to begin. Firstly by apologising. I've been lurking as a 'guest' for a long time. I was diagnosed as type 2 Diabetes on the 10th of May 2016. I went through denial, anger, fear... all of the things. It wasn't just blood sugar that was out of control. I was. I was over 310lbs, eating terribly, drinking terribly, struggling with stress and anxiety, much of which was caused by a divorce/separation and a job that I truly hated. So I eat for comfort. Everything was bad. I'd never been slim, but I now couldn't look at myself in the mirror. I found out at diagnosis that I'd been borderline on a HBA1C blood test the previous year and no one had told me, so realistically I'd been T2 less than a year, and was sitting at a HBA1C of 55 (second double confirmation test a few weeks later of 52). I was 35 years old.

I came here as a first port of call. I was waiting for my first appointment with a diabetic nurse, and I was just trying to get my head around what was happening to me and what I could do to stop it, or more realistically, dampen its impact. I have a partner that relies on me and what scared me most of all was that down the line I'd go first (by my own hand), and that I'd miss out on more life with her as a result. So I read, I read about LCHF, I read about the Newcastle/Blood Sugar diet, and I started to make changes. Immediately removed refined carbs/sugars, and also calorie cut to between 1600-1800. Started walking a minimum of 10,000 steps a day, drinking 2-3l of water, removed all fizzy drinks apart from carbonated water. Diet sodas aren't an option as my partner is allergic to artificial sweeteners.

My nurse, who is wonderful, believed me when I said I wanted to try and do this via diet. I showed her the research on the Newcastle Diet and said I wanted to try it. I've seen what all the positives and negatives have said about it. Is it a cure? Is it remission? I just saw it as a chance, a chance to bring this beast under sharp control and give me a fighting chance at controlling it by diet alone. She got me an appointment with a GP that was looking to specialise in Diabetic cases for the area. He backed me and said he'd be willing to do phone consultations or see me if any complications arose, he was curious about what could be achieved. I was given a Wavesense Jazz to help me keep track of my blood sugar levels and avoid going dangerously low.

By the time all this had come to pass it was late May, and I had a defined goal: By my Birthday at the end of July I wanted to be able to enjoy a day with some cake (in moderation), and a few beers (in moderation), and not destroy myself with guilt or out of control blood sugar levels. So I embarked on the 8 week original plan. The weight poured off me, literally disappearing at a rate I cannot even fathom now. Whether by luck or genetics despite the rapid loss I've not ended up with lots of excess skin. By the end of the 8 weeks (during which I got very fed up of stir fry and mushrooms and my Purition meal replacement drinks), I was now weighing 210lbs. I spent a week gently reintroducing carbs in medium quantities, and staying away from overly refined products. This was partly due to my desire to keep things under control and partly because, by that point I'd lost my taste for them.

On my Birthday I tested my fasting blood sugar. Despite eating late, it sat at a very happy and reasonable 4.4. For breakfast I had a bacon sandwich on white bread. Criminal, right? I didn't test my 2hrs, mainly because at that point I was walking hand in hand with my partner through green fields on the Isle of Wight towards a beach of sand. I felt pretty damned good. That afternoon I had selection of cheese and biscuits followed by a cream tea (as I realised I’d rather have that than cake). Scones, Jam, and clotted cream. I daren’t even think of the carbs, or the sugar content. It was amazing, and with only the slightest tinge of guilt.

I’d promised myself I wouldn’t test myself, for fear of it it was above 7.8, and just test myself the following morning for a second fasting. However 2 hours later, I excused myself, went to the bathroom and tested myself. I couldn’t help it, I felt guilty.

Hands were shaking a bit and I was sweating. Pretty sure it wasn’t just the summer heat. Sample taken, meter whirred and the 2hr reading from my delicious gluttony came back: 6.2. I exhaled slowly. I went off, I enjoyed the rest of my holiday. A few weeks later I had my first post-lifestyle change HBA1C. Even with the excesses of a holiday and a return to normal-ish eating, my HBA1C came at 29. My nurse was ecstatic, and only chastised me over a slightly out of range LDL.

Since that moment I have enjoyed a balanced and mostly normal lifestyle. I’m very careful about what and when I eat, I don’t tend to eat a lot of refined carbs, for if no other reason than they make me feel bloaty. They cause my post prandials to be higher, but never above 7.8 at the 2hr mark (highest total was a 7.2 after a lot of pizza and beer when a friend visited from America for the first time in 2 years). I’ve given up cider completely, same with fizzy drinks, beer is occasional, and my favourite tipple is a nice whisky or scotch. I'm a cheap date at this weight now, and a scotch lasts me a lot longer than a beer! Fasting blood sugars remain within non diabetic range, highest they’ve gone is a 5.6. I'm using a Wavesense Jazz, which I've seen many people say reads high, but I also checked urine for glucose with dip sticks as a double measure, and nothing came up.

Most interesting lingering side effects is that my sugars definitely seem to be as impacted by my stress/anxiety for me than by diet. I've no idea if this happened to me before diagnosis because, well, I wasn't checking. Also, embarrassingly, I seem more susceptible to Balanitis/Thrush… although its appearance appears to have little connection with my diet or BS levels. So that's a whole barrel of fun. Again, more to do with stress/anxiety.

I also used to be intolerant to eggs, which gave me a stomach ache. Has done since childhood. Now I love a Ham and Egg Salad and can eat them without any negative impact whatsoever.

I allow myself occasional treats, but they are just that: occasional treats, and not the norm. I didn’t test myself at all for 2 weeks over Christmas. My weight bubbled back up 5lbs over the December period, and when I tested my fasting levels they were at 5.3. Not as good as it had been before, but it soon dropped back down when the last of the festive treats had gone, as did the 5lbs of weight. The biggest difference wasn’t what I eat, but how much of it. My stomach has shrunk.

Since January, I’ve taken up running again. A month ago I ran a fundraising 10k in 54mins flat, and regularly run 15-20km a week in 3-4 runs, with the average 5k taking me 28mins. Next up I start upper body and resistance training and rebuilding some of the muscle I lost along with the fat.

My weight has gone done further, and I’m now at a comfortable 182lbs. If it goes back up it won’t be from fat gain, it’ll hopefully be from muscle.

What sparked me to write this mammoth post is I’ve just had my results back from my one year on from diagnosis test.

Drumroll

HBA1C is at 29. All other things are within normal levels, and my weight is solidly in my ‘healthy’ BMI range. Even if I don’t believe in BMI, my surgery/GP/Nurse does! Whilst I’ve not seen the nurse yet, but she saw me when I went in to collect a printout of the results ahead of our appointment next week and she gave me a big grin, so I’m guessing she’s seen them. At this point I imagine she’ll only have my dress sense left to critique.

Based on rough starting weight of 310lbs, my initial loss through August 2016 was a reduction of 32% of my body weight. Followed by the further reduction of 30lbs I am now, at 180lbs, 130lbs lighter than my starting point, a 41% reduction in total weight since time of diagnosis. I seem to have escaped without masses of loose skin, and as I’ve started to build up muscle, some of the saggier areas are tucking themselves back. I'm from a 46" Jeans down to a 30-32". I've attached my 3 HBA1C tests from Diagnosis to present, although personal details are understandably obscured. This is the internet after all. ;)

The big question we all see asked and argued about, and which I've asked myself: Is the Newcastle Diet a cure?

Well, I've no idea. I’ve no idea how long this will last, I've no idea how long I've staved off the effects of Type 2 Diabetes, and I’ve no idea how quickly it would return if I went back to my old super high sugar and refined carb ways. I’m not planning on finding out either, why would I even want to take that risk? I know that I've given myself a new lease of life and I'll be damned if I'm going to squander it.

I will keep checking my fasting range, I will keep exercising, and I keep an eye on my post prandials. I don't think I'm back to how I was before I ‘broke’ myself, I'm not sure that's possible, nor will any of us be until the research into the Newcastle Diet is complete and recognised.

At the moment it appears that my body can cope well with what I'm currently throwing at it. And I'm just fine with that. If I've bought myself an extra 10-15 years (arguably the length of time it took me to get to this stage) before having to deal with it more directly again... I'll take that. If something changes before then, then I'll adapt as well. I'll do what I need to do to keep this body in the condition I've worked bloody hard to achieve.

So lastly: Thank you! Thank you to all those who’ve posted here about LCHF diets, their experience with Newcastle, their fasting, their HBA1C’s, their experiences… It kept this lurker sane. There’s too many to list but you’ve been a wealth of information, hope and scepticism. Even though you’ve probably never known it.
 

Jan_85

Newbie
Messages
2
So... where to begin. Firstly by apologising. I've been lurking as a 'guest' for a long time. I was diagnosed as type 2 Diabetes on the 10th of May 2016. I went through denial, anger, fear... all of the things. It wasn't just blood sugar that was out of control. I was. I was over 310lbs, eating terribly, drinking terribly, struggling with stress and anxiety, much of which was caused by a divorce/separation and a job that I truly hated. So I eat for comfort. Everything was bad. I'd never been slim, but I now couldn't look at myself in the mirror. I found out at diagnosis that I'd been borderline on a HBA1C blood test the previous year and no one had told me, so realistically I'd been T2 less than a year, and was sitting at a HBA1C of 55 (second double confirmation test a few weeks later of 52). I was 35 years old.

I came here as a first port of call. I was waiting for my first appointment with a diabetic nurse, and I was just trying to get my head around what was happening to me and what I could do to stop it, or more realistically, dampen its impact. I have a partner that relies on me and what scared me most of all was that down the line I'd go first (by my own hand), and that I'd miss out on more life with her as a result. So I read, I read about LCHF, I read about the Newcastle/Blood Sugar diet, and I started to make changes. Immediately removed refined carbs/sugars, and also calorie cut to between 1600-1800. Started walking a minimum of 10,000 steps a day, drinking 2-3l of water, removed all fizzy drinks apart from carbonated water. Diet sodas aren't an option as my partner is allergic to artificial sweeteners.

My nurse, who is wonderful, believed me when I said I wanted to try and do this via diet. I showed her the research on the Newcastle Diet and said I wanted to try it. I've seen what all the positives and negatives have said about it. Is it a cure? Is it remission? I just saw it as a chance, a chance to bring this beast under sharp control and give me a fighting chance at controlling it by diet alone. She got me an appointment with a GP that was looking to specialise in Diabetic cases for the area. He backed me and said he'd be willing to do phone consultations or see me if any complications arose, he was curious about what could be achieved. I was given a Wavesense Jazz to help me keep track of my blood sugar levels and avoid going dangerously low.

By the time all this had come to pass it was late May, and I had a defined goal: By my Birthday at the end of July I wanted to be able to enjoy a day with some cake (in moderation), and a few beers (in moderation), and not destroy myself with guilt or out of control blood sugar levels. So I embarked on the 8 week original plan. The weight poured off me, literally disappearing at a rate I cannot even fathom now. Whether by luck or genetics despite the rapid loss I've not ended up with lots of excess skin. By the end of the 8 weeks (during which I got very fed up of stir fry and mushrooms and my Purition meal replacement drinks), I was now weighing 210lbs. I spent a week gently reintroducing carbs in medium quantities, and staying away from overly refined products. This was partly due to my desire to keep things under control and partly because, by that point I'd lost my taste for them.

On my Birthday I tested my fasting blood sugar. Despite eating late, it sat at a very happy and reasonable 4.4. For breakfast I had a bacon sandwich on white bread. Criminal, right? I didn't test my 2hrs, mainly because at that point I was walking hand in hand with my partner through green fields on the Isle of Wight towards a beach of sand. I felt pretty damned good. That afternoon I had selection of cheese and biscuits followed by a cream tea (as I realised I’d rather have that than cake). Scones, Jam, and clotted cream. I daren’t even think of the carbs, or the sugar content. It was amazing, and with only the slightest tinge of guilt.

I’d promised myself I wouldn’t test myself, for fear of it it was above 7.8, and just test myself the following morning for a second fasting. However 2 hours later, I excused myself, went to the bathroom and tested myself. I couldn’t help it, I felt guilty.

Hands were shaking a bit and I was sweating. Pretty sure it wasn’t just the summer heat. Sample taken, meter whirred and the 2hr reading from my delicious gluttony came back: 6.2. I exhaled slowly. I went off, I enjoyed the rest of my holiday. A few weeks later I had my first post-lifestyle change HBA1C. Even with the excesses of a holiday and a return to normal-ish eating, my HBA1C came at 29. My nurse was ecstatic, and only chastised me over a slightly out of range LDL.

Since that moment I have enjoyed a balanced and mostly normal lifestyle. I’m very careful about what and when I eat, I don’t tend to eat a lot of refined carbs, for if no other reason than they make me feel bloaty. They cause my post prandials to be higher, but never above 7.8 at the 2hr mark (highest total was a 7.2 after a lot of pizza and beer when a friend visited from America for the first time in 2 years). I’ve given up cider completely, same with fizzy drinks, beer is occasional, and my favourite tipple is a nice whisky or scotch. I'm a cheap date at this weight now, and a scotch lasts me a lot longer than a beer! Fasting blood sugars remain within non diabetic range, highest they’ve gone is a 5.6. I'm using a Wavesense Jazz, which I've seen many people say reads high, but I also checked urine for glucose with dip sticks as a double measure, and nothing came up.

Most interesting lingering side effects is that my sugars definitely seem to be as impacted by my stress/anxiety for me than by diet. I've no idea if this happened to me before diagnosis because, well, I wasn't checking. Also, embarrassingly, I seem more susceptible to Balanitis/Thrush… although its appearance appears to have little connection with my diet or BS levels. So that's a whole barrel of fun. Again, more to do with stress/anxiety.

I also used to be intolerant to eggs, which gave me a stomach ache. Has done since childhood. Now I love a Ham and Egg Salad and can eat them without any negative impact whatsoever.

I allow myself occasional treats, but they are just that: occasional treats, and not the norm. I didn’t test myself at all for 2 weeks over Christmas. My weight bubbled back up 5lbs over the December period, and when I tested my fasting levels they were at 5.3. Not as good as it had been before, but it soon dropped back down when the last of the festive treats had gone, as did the 5lbs of weight. The biggest difference wasn’t what I eat, but how much of it. My stomach has shrunk.

Since January, I’ve taken up running again. A month ago I ran a fundraising 10k in 54mins flat, and regularly run 15-20km a week in 3-4 runs, with the average 5k taking me 28mins. Next up I start upper body and resistance training and rebuilding some of the muscle I lost along with the fat.

My weight has gone done further, and I’m now at a comfortable 182lbs. If it goes back up it won’t be from fat gain, it’ll hopefully be from muscle.

What sparked me to write this mammoth post is I’ve just had my results back from my one year on from diagnosis test.

Drumroll

HBA1C is at 29. All other things are within normal levels, and my weight is solidly in my ‘healthy’ BMI range. Even if I don’t believe in BMI, my surgery/GP/Nurse does! Whilst I’ve not seen the nurse yet, but she saw me when I went in to collect a printout of the results ahead of our appointment next week and she gave me a big grin, so I’m guessing she’s seen them. At this point I imagine she’ll only have my dress sense left to critique.

Based on rough starting weight of 310lbs, my initial loss through August 2016 was a reduction of 32% of my body weight. Followed by the further reduction of 30lbs I am now, at 180lbs, 130lbs lighter than my starting point, a 41% reduction in total weight since time of diagnosis. I seem to have escaped without masses of loose skin, and as I’ve started to build up muscle, some of the saggier areas are tucking themselves back. I'm from a 46" Jeans down to a 30-32". I've attached my 3 HBA1C tests from Diagnosis to present, although personal details are understandably obscured. This is the internet after all. ;)

The big question we all see asked and argued about, and which I've asked myself: Is the Newcastle Diet a cure?

Well, I've no idea. I’ve no idea how long this will last, I've no idea how long I've staved off the effects of Type 2 Diabetes, and I’ve no idea how quickly it would return if I went back to my old super high sugar and refined carb ways. I’m not planning on finding out either, why would I even want to take that risk? I know that I've given myself a new lease of life and I'll be damned if I'm going to squander it.

I will keep checking my fasting range, I will keep exercising, and I keep an eye on my post prandials. I don't think I'm back to how I was before I ‘broke’ myself, I'm not sure that's possible, nor will any of us be until the research into the Newcastle Diet is complete and recognised.

At the moment it appears that my body can cope well with what I'm currently throwing at it. And I'm just fine with that. If I've bought myself an extra 10-15 years (arguably the length of time it took me to get to this stage) before having to deal with it more directly again... I'll take that. If something changes before then, then I'll adapt as well. I'll do what I need to do to keep this body in the condition I've worked bloody hard to achieve.

So lastly: Thank you! Thank you to all those who’ve posted here about LCHF diets, their experience with Newcastle, their fasting, their HBA1C’s, their experiences… It kept this lurker sane. There’s too many to list but you’ve been a wealth of information, hope and scepticism. Even though you’ve probably never known it.
 

symbolicus

Member
Messages
7
Type of diabetes
Treatment type
Diet only
Hello everyone. Time for another update:
So this year there has been no HBA1C. Or at least, not yet. As I was taken off the register I also got taken off the various schedules, including the annual bloodworks. I'm still going to get them done, but I'm just having to chase a bit to get it done, and even then just to confirm what my own tests, my general health, and all signs seem to indicate: I'm doing fine.

I did have a bit of a relapse in May, weight wise, and I bubbled back up 20lbs or so and tipped the scales over 210lbs. There was no real dietary change or triggering point for mental health/comfort eating: I just over exerted myself whilst exercising, had an accident, and managed to sprain my ankle and do some substantial soft tissue damage to my left foot. It left me off my normal fitness levels for over a month.

Thankfully my blood sugars didn't really seem to go back up, so whatever threshhold I have I didn't cross it. I rested the ankle as much as possible, wore supports, and once I was able to start running again I launched myself into a fairly intense training regime which at this point has me doing 3 x 5km runs a week, all under 30 minutes with a top time of around 26 minutes. My goal was to get my weight back down by my Birthday, and make sure I start another year in the best shape I can possibly hope to be in.

Additionally I'm also doing a mixture of resistance and other cardio, and am working on building my core strength. I also try and walk wherever possible and it feels like a bad day if I don't cover at least 7km just in footsteps. My own family barely recognise me; I used to hate exercise.

Despite the lack of HBA1C for now, I've continued to periodically take fasting, random and after meal blood sugars, and use urine test strips. Nothing comes outside of normal ranges, and whilst I normally operate on a relatively low carb diet (and certainly stay away from the heavily refined carbs), I do allow myself treats and cakes and general 'normal' food. I just maintain that sense of moderation which I was clearly missing for so many years.

The only part of the NHS currently still interested in me from a Diabetic point of view is the Retinopathy Screening Service, who still want to see me once a year, as they are of the opinion that my removal from the register doesn't matter. None of the tests have shown anything to be concerned about at this junction, although clearly some damage had been done in the period of time in which I'd been diabetic but undiagnosed.

I'm still of the belief that what happened to me once can happen to me again, and that maybe I've only bought myself 5, 10, 15 years before it comes back. I could be wrong, but fear is a healthy motivator, and that motivator in turn keeps me healthy.

Fingers crossed I'll be posting a similar upbeat post in 2019.