Additional personal costs of Diabetes care

spideog

Well-Known Member
Messages
164
When I think of the various extra expenses being diabetic puts on my life; dietary, glucose monitoring, holiday choices, etc. any sugar tax cost pales into insignificance.
Glucose monitoring should not be an additional cost, but is if you're T2 and not got sufficient test strips on prescription. I've chosen to get the Libre monitor recently which is a significant extra cost that I could do without for glucose monitoring. Other than that though, the only extra cost I can think of due to diabetes for myself is buying Lucozade.

Just out of curiosity, what are the extra expenses in your diet and holiday choices caused by diabetes?
 

AndBreathe

Master
Retired Moderator
Messages
11,338
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
Glucose monitoring should not be an additional cost, but is if you're T2 and not got sufficient test strips on prescription. I've chosen to get the Libre monitor recently which is a significant extra cost that I could do without for glucose monitoring. Other than that though, the only extra cost I can think of due to diabetes for myself is buying Lucozade.

Just out of curiosity, what are the extra expenses in your diet and holiday choices caused by diabetes?

Unless a person diagnosed with T2 is on potentially hypo inducing drugs, it is extremely unusual for them to be prescribed testing supplies at all, never mind enough.

I have self funded my testing, and intermittent Libre supplies to enable me to help my body recover from the onslaught of diabetes, and get back to non-diabetic levels. Could I have done that without any form of monitoring? Who knows, but it would have been less likely, for sure.

Anyway, I'll withdraw from this conversation as there may be a moderation requirement at some point, and I wouldn't like it to be me being moderated!
 
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Oldvatr

Expert
Messages
8,470
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Glucose monitoring should not be an additional cost, but is if you're T2 and not got sufficient test strips on prescription. I've chosen to get the Libre monitor recently which is a significant extra cost that I could do without for glucose monitoring. Other than that though, the only extra cost I can think of due to diabetes for myself is buying Lucozade.

Just out of curiosity, what are the extra expenses in your diet and holiday choices caused by diabetes?
Personally, and as a T2D, my extra expenses are some foods(avacados, Lidl rolls, extra cheese and other proteinsm, and nuts can be pricey) and travel insurance can be increased for chronic health conditions. Mind you as a stroke and heart atttack survivor, these may be weighting it. i also add in some supplements (Mg, Zn, Cr, CoQ10 etc) when I feel rich.
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
Glucose monitoring should not be an additional cost, but is if you're T2 and not got sufficient test strips on prescription. I've chosen to get the Libre monitor recently which is a significant extra cost that I could do without for glucose monitoring. Other than that though, the only extra cost I can think of due to diabetes for myself is buying Lucozade.

Just out of curiosity, what are the extra expenses in your diet and holiday choices caused by diabetes?

:)
I eat low carb high fat non processed food - so no cheap options (though I always try and make sensible budget choices). Can't fill up on cheap stuff like bread, rice, potatoes, etc. There is a thread on here at the moment actually on how expensive it is to eat out when low-carbing.

All snacks need to be low carb - so that is nuts, cold meat and posh 70% choc (which in itself is a significant expense! ;) )

My blood glucose is well enough controlled that I do not get medication for my T2, so as a non-medicated T2er, I get no help with prescription charges. I am on 2 non-D prescriptions, so that is £16.40/month

Most T2s are denied strips and a test meter. Too expensive for the NHS. Usually only those on the stronger meds such as gliclazide and insulin get testing equipment. I have chosen to use the SD Codefree and run intermittent Freestyle Libre sensor. Combined costs about £60-80 a month at the moment.

My surgery refuses to do 3 monthly HbA1cs, but will do one annually, so if I need them more often, I buy them privately (although I rarely do this). Last time I looked they were about £20 each.

The low carb thing means that holiday food is... um... interesting ;) We usually end up going to self catering cottages, which is kind of a mixed blessing. Yes, I get to eat what I like, but we are denied a LOT of the flexibility and food options people usually enjoy while on hol. We have stayed in hotels a few times over the last few years. Once I ended up eating meat and one veg at the carvery for 5 nights in a row.

I am not complaining - believe me, low carb high fat makes me feel better than I have for years - it is like getting a body transplant. But it does come with a cost... and not just money.

:)

Ed. to add: And yes, thanks @Oldvatr forgot to mention the supplements. They make a huge difference, so I am very happy to take them, but I guess they run to over £50 a month. But I don't think they are specifically a T2 thing, although there are several supplements that seem to have had a beneficial effect on my T2ness.
 

Oldvatr

Expert
Messages
8,470
Type of diabetes
Type 2
Treatment type
Tablets (oral)
:)
I eat low carb high fat non processed food - so no cheap options (though I always try and make sensible budget choices). Can't fill up on cheap stuff like bread, rice, potatoes, etc. There is a thread on here at the moment actually on how expensive it is to eat out when low-carbing.

All snacks need to be low carb - so that is nuts, cold meat and posh 70% choc (which in itself is a significant expense! ;) )

My blood glucose is well enough controlled that I do not get medication for my T2, so as a non-medicated T2er, I get no help with prescription charges. I am on 2 non-D prescriptions, so that is £16.40/month

Most T2s are denied strips and a test meter. Too expensive for the NHS. Usually only those on the stronger meds such as gliclazide and insulin get testing equipment. I have chosen to use the SD Codefree and run intermittent Freestyle Libre sensor. Combined costs about £60-80 a month at the moment.

My surgery refuses to do 3 monthly HbA1cs, but will do one annually, so if I need them more often, I buy them privately (although I rarely do this). Last time I looked they were about £20 each.

The low carb thing means that holiday food is... um... interesting ;) We usually end up going to self catering cottages, which is kind of a mixed blessing. Yes, I get to eat what I like, but we are denied a LOT of the flexibility and food options people usually enjoy while on hol. We have stayed in hotels a few times over the last few years. Once I ended up eating meat and one veg at the carvery for 5 nights in a row.

I am not complaining - believe me, low carb high fat makes me feel better than I have for years - it is like getting a body transplant. But it does come with a cost... and not just money.

:)

Ed. to add: And yes, thanks @Oldvatr forgot to mention the supplements. They make a huge difference, so I am very happy to take them, but I guess they run to over £50 a month. But I don't think they are specifically a T2 thing, although there are several supplements that seem to have had a beneficial effect on my T2ness.
I found the secret to getting more than one HbA1c a year, and that is to have an appointment with the Diabetic Certified Nurse (i.e. what passes for 'Consultant' in this county) and arrange thm so they do not coincide. The DCN needs blood panel that is not more than a week old, and my GP now wants to see me at 6 month intervals, so I interleave them. Of course I had to be on the verge of being ID to get to see the DCN in the first place, and I suspect I will be discharged when I see her next month.

I find Aldi quite good for LCHF products, and much cheaper than the big 6.

EDIT: to get back on topic, I do not use soft drinks very often. When I do it tends to be the on tap **** that pubs serve, and that is now £3 a glass in the hostelry my band plays in.
 
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Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
I found the secret to getting more than one HbA1c a year, and that is to have an appointment with the Diabetic Certified Nurse (i.e. what passes for 'Consultant' in this county) and arrange thm so they do not coincide. The DCN needs blood panel that is not more than a week old, and my GP now wants to see me at 6 month intervals, so I interleave them. Of course I had to be on the verge of being ID to get to see the DCN in the first place, and I suspect I will be discharged when I see her next month.

I find Aldi quite good for LCHF products, and much cheaper than the big 6.

Awesome advice - thank you.
And yes, Lidl and Aldi are brilliant, so long as you avoid the obvious honey traps ;)
 

Lamont D

Oracle
Messages
15,913
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
My biggest additional cost, is the travel to see my endocrinologist.
But I don't begrudge that, nor the price of natural animal meats, which is cooked fresh and the fresh salad that I get every other day. Tom's, mushrooms, onions are reasonable.
But I save money on doing intermittent fasting.
I also save money on not buying so much cupboard fillers.
The odd treat for the wife, but that's it!
 

BeccyB

Well-Known Member
Messages
465
Type of diabetes
Type 1
Treatment type
Pump
There are times we save money too, well in the UK anyway, as we get all our prescriptions for free not just the specific diabetes related ones. e.g. my antidepressants would cost me £8 a month otherwise (although there is an argument that I'm only depressed because of the diabetes...!)
 

Daphne917

Well-Known Member
Messages
3,320
Type of diabetes
Treatment type
Diet only
:)
I eat low carb high fat non processed food - so no cheap options (though I always try and make sensible budget choices). Can't fill up on cheap stuff like bread, rice, potatoes, etc. There is a thread on here at the moment actually on how expensive it is to eat out when low-carbing.

All snacks need to be low carb - so that is nuts, cold meat and posh 70% choc (which in itself is a significant expense! ;) )

My blood glucose is well enough controlled that I do not get medication for my T2, so as a non-medicated T2er, I get no help with prescription charges. I am on 2 non-D prescriptions, so that is £16.40/month

Most T2s are denied strips and a test meter. Too expensive for the NHS. Usually only those on the stronger meds such as gliclazide and insulin get testing equipment. I have chosen to use the SD Codefree and run intermittent Freestyle Libre sensor. Combined costs about £60-80 a month at the moment.

My surgery refuses to do 3 monthly HbA1cs, but will do one annually, so if I need them more often, I buy them privately (although I rarely do this). Last time I looked they were about £20 each.

The low carb thing means that holiday food is... um... interesting ;) We usually end up going to self catering cottages, which is kind of a mixed blessing. Yes, I get to eat what I like, but we are denied a LOT of the flexibility and food options people usually enjoy while on hol. We have stayed in hotels a few times over the last few years. Once I ended up eating meat and one veg at the carvery for 5 nights in a row.

I am not complaining - believe me, low carb high fat makes me feel better than I have for years - it is like getting a body transplant. But it does come with a cost... and not just money.

:)

Ed. to add: And yes, thanks @Oldvatr forgot to mention the supplements. They make a huge difference, so I am very happy to take them, but I guess they run to over £50 a month. But I don't think they are specifically a T2 thing, although there are several supplements that seem to have had a beneficial effect on my T2ness.
@Brunneria if you have 2 of more scripts per month you would be better off buying an annual pre-payment certificate for £104.00
 
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andcol

Well-Known Member
Retired Moderator
Messages
3,176
Type of diabetes
I reversed my Type 2
Treatment type
I do not have diabetes
So not being on meds I will not get free prescriptions so no saving there for me. The extra costs for me have been
1. Test Strips (250 per month or there about)
2. New clothes several times
3. New glasses each year since diagnosis as my eyes keep improving
4. More expensive food than the rubbish I used to eat
5. More shoe leather because I keep wearing them out from all the walking.
 
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S

Shar67

Guest
Parking fees, GP has very small car park, holds about 6/7 cars, 3 spaces usually taken for staff, parking on street is £1.10 for up to 2 hours, hospital parking starts from £2, though if you are more than 2 hours you can get a voucher from consultant to keep cost at £2, if you are only visiting it is up to £17 per day, if you are in for more than 5 days you can get a refund think you only pay £50.
I don't live on a bus route, have to walk a mile then get a bus to town change for hospital, then go on a very round about route that actually is around the area of my house but with no stops, hour or so later your there.
I go to GP roughly once a fortnight and hospital every month, it soon mounts up.
I could of course get hospital transport but would feel terribly guilty.
 
A

Avocado Sevenfold

Guest
In addition to self funding my testing kit, I had to buy a blood pressure monitor to convince nursie that my blood pressure is not always high. It's only when I see her funnily enough o_O
 

andcol

Well-Known Member
Retired Moderator
Messages
3,176
Type of diabetes
I reversed my Type 2
Treatment type
I do not have diabetes
In addition to self funding my testing kit, I had to buy a blood pressure monitor to convince nursie that my blood pressure is not always high. It's only when I see her funnily enough o_O
oh yes me too and who knows how much time invested in understanding more than them so I can so no to all sorts of meds they try and push.
 

SunnyExpat

Well-Known Member
Messages
2,230
Type of diabetes
Prefer not to say
Treatment type
Tablets (oral)
Probably cheaper, as I eat a lot less than I used to!
 

Oldvatr

Expert
Messages
8,470
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Kitty litter/ toilet rolls for those of us on Metformin.
 

Maryannonsilk

Active Member
Messages
31
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Intolerance
Eggs for breakfast ...cheaper than cereal ...
No biscuits, cakes, wine gums or malteasers...
No snacks at all as I'm not hungry between meals ...
Added expenses ...
Cinnamon and Chromium supplements which definitely help my numbers ..
Testing strips ... NexusXR ...between 50/100 per month ...I think about £11 for 50 through Diabetic UK shop but I subscribe to their testing programme which gives me 400 strips plus lancets and new monitor annually for approx £100 ...
An additional expense is the meal that gives me the best post prandial BG reading ..
Lobster with Garlic Butter
Twice Cooked Fries
Rocket Salad
Glass of Merlot ....my Doc said I can't get that on prescription either
 
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MrsHutt

Well-Known Member
Messages
58
Type of diabetes
Type 2
I actually don't think it's cost me anything extra! I now cook from scratch (so I know what's going in!) instead of buying expensive ready meals. We tend not to have 'puddings' (except full fat yoghurt and fruit), no bread, rice or spuds for me and non-diabetic OH has really cut those carbs down! Only weakness - Lidl rolls twice a week! Test strips etc on prescription - it seems I have a friendly GP and most excellent and supportive diabetic consultant! Sorry!!
 

toscamo

Member
Messages
10
Type of diabetes
Type 2
This sounds like the postcode lottery at play again! I was diagnosed T2 about 15 years ago, given a free glucose monitor and free prescriptions as soon as i was prescribed metformin, no limit on test strips or lancets. Have always seen the clinic's diabetes specialist nurse, not my GP, the nurse books as many hba1c tests as she feels is necessary.