Advice needed -slightly complicated

Firstly I don’t mean to upset anyone this is a bit complicated. I was diagnosed with ‘gestational diabetes’ when I was pregnant I had to take steroids during the pregnancy as I was so sick. Baby just turned one. Anyway when I was diagnosed I was gutted and frightened it wouldn’t go away. I believe it never did. Had to take insulin for my FBS and steroid shots for baby’s lungs. Long story short I lost 2 1/2 stone after the birth by doing 2 meals a day scrambled eggs and chicken with cauliflower rice and real butter in the space of 3 months. HBA1c 22 at 3 months PP FBS 5.3. Increased carbs slightly FBS rose. Spoke to low carb private endro you aren’t diabetic your a1c is fine even though FBS was high he looked at my CGM figures. Lost too much weight BMI 16 needed to increase weight for a stupid treatment for anxiety (when anxiety is in the gut) so increaSed carb as advised by endro. All my symptoms got worse tingling feet which fall asleep, burning hands, dry itchy skin, rash on face, more blurry vision and floaters in the eyes, wetting and pooing myself. Fungal nail infection and red soles of feet and sides of feet red; white spots on back. So now I’ve figured I must have put undiagnosed diabetes in remission ate more and it’s come back again. Looking back i had symptoms since 2013 foot Ulcers podiatrist actually said to get blood tests done but they only did a random blood sugar never an a1c (I was thin then) awful panic attacks, boils, frequent UTI’s drinking more water, frequent urination, always snacking, fatigue, cuts that don’t heAl. I used to be anemic so figured it was it with the fatigue and getting older but I’m only 35 years old. Anyway my question is thankfully I haven’t reached diagnostic levels with the HBA1c but I think it’s only a matter of time with these FBS and spiking overnight. Has them taking my off the insulin (not that I want to be on it ever again as I have too much already) wrecked my body and I won’t be able to get all my numbers down again? I’m 8 stone now so don’t really have another 2 and a half to loose but doing very low carb now. Boiled Eggs with real butter and chicken thighs. Going to speak to private endro on Thursday to see what he suggests. I walk half and hour after my meals although atm just doing OMAD as now frightened of food and need to get my numbers down pronto. 30 min cycle and half and hour walk before bed. eGFR 60 and hair falling out in clumps. I know diabetes is not something to mess about with my uncle lost his legs.

 

No BMI now 19 but I was just about obese at booking in appt during pregnancy. I get over 12’s on my glucose monitor sometimes and have to lie down. FBS from 5.7 to 7.7

 

Thank you for your reply I would love to believe I am wrong but I’ll sit up for hours at high numbers. Like if I have something to eat at lunch depending on what it is it will remain high or continue to spike. It’s not even within the range for diabetics as per the diabetes website. Nhs dieticians recommend a carb heavy diet for diabetics which won’t help me or my liver. My endro did say if he’s wrong he will apologise but he cant examine me as he’s based in London and I’m Belfast. Will speak to him again later this week. All I know is I can’t handle carbs so am focusing on protein and fat now. Even nhs dr looked at my feet and agreed I could have put it in remission but we’ll never know as an a1c wasn’t done prior to pregnancy.

 

I spoke to an NHS dietician before and she told me to have a healthy balanced diet with semi-skimmed milk, low fat everything and to snack all the time, I don’t trust them the NHS dietician’s are the worst in my opinion. Oh and to have plenty of fruit and starchy carbs!

 

Hi Lucy thank you for your kind reply. Since I had to increase carbs for the treatment everything has gotten worse with the symptoms and my numbers. I did have a few slip ups lately and there has been a lot of stress so I don’t think that’s helping me either. I’m just so so depressed I feel sick after I eat anything now. Have the cold at the minute too. I’m so fatigued and just struggling in general. I’ve found mentally I feel better when I can keep my numbers low but sometimes they go to 3’s and I feel sick probably as I’m not used to them that low.

 

Thank you but I don’t have anaemia anymore. That’s not good advice for me as if I eat something high carb I can go up to 13’s sit there for ages, feel sick, thirsty running to the toilet and have to lie down. Be spiking all night and itching and not sleep. A metabolically well person that doesn’t happen to never mind the diaheara. I can’t process carbs anymore and quite frankly I don’t want to, I need to heal my liver. An HBA1c is just an average after all. As I’m going to refuse all drug for diabetes as it’s a dietary disease it’s very important for me to keep all my numbers low. Listening to private endro and nhs telling me I didn’t have diabetes was the worse thing ever, I had put it in remission ate more and it’s come back again. A lesson learned to trust my gut now I don’t actually know if it’s possible to do that again hence my post. Im fortunate as I’m not on any meds that I can do fasting to try and heal my body.

 

I’m speaking to my counsellor again tonight. I have so many emotions Lucy. so angry at making myself diabetic, worried about my eyesight and feet. Anxious around food now, stressed will they be wanting me on insulin as my body is messed up now what if I can’t fix it again. That would make me far worse, weight gain and sicker as doesn’t get to the route of the problem and then I would have to eat carbs! I will refuse any meds. I was never unhealthy but now I know I had too many carbs. Made my own soups often (carrot and coriander, potato and leek) used to take salads for lunch to work loads of fresh fruit again high carb. Im so cross at myself and my 16 year old self who only ate an apple a day as she wanted to die and then branched out to some cereal and rice. I as well as the nhs with drugs sore on my liver have destroyed myself. I have to heal myself and make low carb work for the sake of my son who has cerebral palsy which was likely caused by my undiagnosed diabetes. Never mind my poor husband who has to deal with my panic attacks when my numbers are high.