Close loop insulin pump funding NHS

[Magda8112]

I would like to check if anyone has been able to get Omnipod 5 close loop pump on NHS. I live in West Sussex and I was told 18 months ago that I would be eligible for that pump ( I have type 1 diabetes and pancreatitis) so despite all the efforts management of my diabetes is very challenging and I get loads of hypos. I believe close loop pump would help me to get rid of those lows but I keep getting told that it still not funded by NHS in my region. Not sure if that is indeed true or not. Does anyone have any experience here and knows if Omnipod 5 is now available on NHS? Thanks

 

[h884]

I am moving onto Omnipod 5 closed loop soon. Not sure exactly when. It will be NHS funded. I live in Scotland. Hope you get somewhere with this.

In your area It may well not be funded or funding may not be available currently

 

[becca59]

@Magda8112 Technically the funding has been allocated for all areas. It has been ring fenced specifically for closed loops. However, there is a hierarchy for who will get it for the first five years. Starting with children and pregnant women. Then order of severity of problems. So you may not be as high up that list as you would wish to be.

 

[searley]

I would like to check if anyone has been able to get Omnipod 5 close loop pump on NHS. I live in West Sussex and I was told 18 months ago that I would be eligible for that pump ( I have type 1 diabetes and pancreatitis) so despite all the efforts management of my diabetes is very challenging and I get loads of hypos. I believe close loop pump would help me to get rid of those lows but I keep getting told that it still not funded by NHS in my region. Not sure if that is indeed true or not. Does anyone have any experience here and knows if Omnipod 5 is now available on NHS? Thanks

I have closed loop in Hampshire.. BUT I know the hospital have a waiting list of people wanting a pump…. Its expensive and they have limited budget

 

[Idle Sean]

I would like to check if anyone has been able to get Omnipod 5 close loop pump on NHS. I live in West Sussex and I was told 18 months ago that I would be eligible for that pump ( I have type 1 diabetes and pancreatitis) so despite all the efforts management of my diabetes is very challenging and I get loads of hypos. I believe close loop pump would help me to get rid of those lows but I keep getting told that it still not funded by NHS in my region. Not sure if that is indeed true or not. Does anyone have any experience here and knows if Omnipod 5 is now available on NHS? Thanks

I've been on Omnipod since early September, in Oxford HA, and Dexcom CGM for 4 years before that, due to hypo-unawarenes. That unawareness seems to be the biggest factor in my progress through the admin stages which are very slow, but progressive.

 

[oldgreymare]

@Magda8112 Technically the funding has been allocated for all areas. It has been ring fenced specifically for closed loops. However, there is a hierarchy for who will get it for the first five years. Starting with children and pregnant women. Then order of severity of problems. So you may not be as high up that list as you would wish to be.

Hi @Magda8112,

As @becca59 notes, Hybrid Closed Loop (HCL) pump roll-out was approved for NHS England on an extended 5 year rollout in early 2024. This long rollout is due to the significant funding required, the need for more specialist trained staff to support expanded pump use, and also the ability of the pump manufacturers to manufacture the required equipment. After children and pregnant women, I believe that existing non closed loop pump users are next in line. Do you already use a standalone pump? Are you a confident CGM user and share its data with your diabetes clinic?

Also, although the Omnipod 5 is one of the NHSE's approved HCL pumps, not all individual Health Authorities may offer it - some clinics only offer one or two pump types, others can support a wider choice. Do keep engaging with your diabetes team and keep asking what you can do to improve your chances of being approved.

 

[vic hill]

Have some idea how system works all on history
have had 2 TIAS IN MAY AND SEP Th medication i WAS ON gave me a lot of lows eating lots of snacks to to stay normal blood sugars
now have put on better meds thanks to docs NHS
ONE THING I DID LEARN if you go low AFTER MEALS REDUCE BOLIS INSULIN DOWN .
AND DURING SAY LOW AT 11 AM WORK BACK 2 HOURS TO REDUCE BASIL RATES BUT ONLY SMALL CHANGES SAY .3 PER HOUR
VIC ON INSULIN SINCE 1957
good luck I MAY BE OFFERSED CAM X BUT TO COMPLICATER FOR ME STRES S WISE AS STILL DO GARDEN DIY AND WALKS I HAVE TO PLAN FOR 2 HOURS AHEAD ON WALK AND TAKE CARBS EVEY 15 MINS till SETTLES
ANYWAYS STAY SAFE VIC