1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2022 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Creon

Discussion in 'Type 3c (Pancreatic) Diabetes' started by Oicair, Jan 18, 2016.

  1. Mawalk48

    Mawalk48 Type 2 · Member

    Messages:
    22
    Likes Received:
    2
    Trophy Points:
    23
    Has anyone tried ailpase think thats how you spell it
     
  2. Shar67

    Shar67 · Guest

    Pancrelipase is the generic name for Creon
     
  3. ANF

    ANF Type 2 · Newbie

    Messages:
    2
    Likes Received:
    0
    Trophy Points:
    41
    Lovely to have found this site as one can feel very isolated. I have found that sitting for approx 20mins after eating a mainish meal helps control the urgency to some extent & obviously small amounts. I also avoid anything with added sugar. I seem to be able to manage my weight if I eat what I do & keep my steps at around 10000, I manage to stay at around 7st 6lbs. Family & friends are very supportive as are various eateries in the area, giving me small portions & letting me know if there is any/much added sugar. I have got very good at ignoring any lingering smell if I am out shopping although my husband sometimes gets glared at. Doesn't happen as much now as in the early years.
     
  4. Mawalk48

    Mawalk48 Type 2 · Member

    Messages:
    22
    Likes Received:
    2
    Trophy Points:
    23
    No this stuff is powder you mix it with a drop of water and have it during your meal and its called ailypase given to me in france
     
  5. Shar67

    Shar67 · Guest

    Ailypase is a lipase replacement suppliment, similar to what you buy from the likes of Holland & Barrett, other than finding that out, the only other thing I found out is, it is the preferred treatment for cats and dogs with lancing issues.

    I was told there was inferior to Creon replacement enzymes but Creon has been proved to be the best.
    As Creon is made from pig pancreas, there are some people who for religious or other may have reservations about taking it. It is the only pig product that both Islamic and Jewish leaders allow to be prescribed as really there is no better alternative.
     
  6. Goodwife

    Goodwife · Member

    Messages:
    9
    Likes Received:
    6
    Trophy Points:
    23
    Hi am new to the forum. I've joined to educate myself more to help my husband who had the Whipple in October last year (had head of pancreas removed gall bladder and duodenum.due to kidney tumour spread) . After a difficult recovery which was expected he seems to manage creons quite well compared with posts here. He takes 2x25000 with each meal and one or two with a snack. This seems to suit him. Our pancreatic nurse said it's like putting dishwasher tablet in machine an does the job! So he takes with a good drink of water before meal. He also takes lansoprazole. His diabetes is the difficulty now. Readings up and down. Great reading everyone's experiences think this an old thread though
     
  7. Shar67

    Shar67 · Guest

    @Goodwife, I am a lapsing vegetarian, I found going veggie was better for me rather than take Creon (I take it with fats and protein meals). I take pantaprazole as I found lansoprazole made me vomit.
     
  8. ballabob

    ballabob Type 3c · Member

    Messages:
    14
    Likes Received:
    6
    Trophy Points:
    43
    I take 5 x 25000 creon just before each meal, following a partial removal of my pancreas, to treat the T2 I take apprx 14 units of Novarapid....... I have never heard of type 3c diabetes what are the symptoms compared to T2 ?
     
  9. ballabob

    ballabob Type 3c · Member

    Messages:
    14
    Likes Received:
    6
    Trophy Points:
    43
    Cant get 40,000 any more so now I take 5 x 25000 before each meal
     
  10. SunnyDuck

    SunnyDuck Type 1 · Member

    Messages:
    9
    Likes Received:
    10
    Trophy Points:
    43
    That's usually only suggested for small children who can't swallow the tablets yet. They are recommended to sprinkle it over apple purée etc rather than their actual food. It's seen as better than no enzymes at all. They're encouraged to swallow whole as soon as they can. You'll be able to see how quickly the enzymes "dizzolves" if you sprinkle it over mash potato.
     
  11. SunnyDuck

    SunnyDuck Type 1 · Member

    Messages:
    9
    Likes Received:
    10
    Trophy Points:
    43
    I was hoping this situation would change! Still keeping my fingers crossed! I was lucky that as I have been on them 20+ years that my pharmacy had a good batch which kept me going a while!
     
  12. SunnyDuck

    SunnyDuck Type 1 · Member

    Messages:
    9
    Likes Received:
    10
    Trophy Points:
    43
    There are several others on the market which are also made from pigs. Different ones are preferred for different reasons. Most people are usually on creon as I believe it is one of the cheaper options.
     
  13. Shar67

    Shar67 · Guest

     
  14. SunnyDuck

    SunnyDuck Type 1 · Member

    Messages:
    9
    Likes Received:
    10
    Trophy Points:
    43
    Creon 25,000 (contains pancreatin *Pork*) 100 caps = £28.25
    Nytrizym 22 (contains pancreatin *Pork*) 100 caps = £33.33
    Pancrease HL (contains pancreatin *Pork*) 100 caps = £40.38

    Those are all similar dosage to the 25 creon. Pancrease HL is also a 25,000 dosage (albeit protase and amylase is slightly higher) and nutrizym is manufactured as a 22 rather than 25 (they chose dosage of 11..22..etc). Creon micro and pancrex are granule versions whereas pancrex V is a slightly lower strength to creon 10,000. Of course they go up in price on strength but I've given you the cost of the three in the same category. I've tried them all, there's not a huge amount of difference as you would expect as they all do the same thing. Others i know find different ones work better but obviously that happens with other drugs too, some people are just better to suited to one opposed to the other.
    Just wanted to say I didn't reply to start a back and forth disagreement, after 20 odd years of being on this drug and knowing more than 200 people also on it I'm well aware that creon is advertised as "the only one" or "the best" many don't know others exist or get the chance to try them. Whereas in fact everyone's personal need is different and some preparations can work superiorly on certain people. Just putting the other options out there.
     
  15. sean1964

    sean1964 Type 3c · Well-Known Member

    Messages:
    45
    Likes Received:
    19
    Trophy Points:
    48
    Hello Ballabob!

    It's not different symptoms as such. But there are characteristics.
    There are more definitions etc. in this forum. Please take a look / make a post.

    One difference will hopefully be the way the diabetes is treated. e.g malabsorption may play a role.
    Also often an assumption is made in the (non) taking of insulin for type 2's.

    Do you class yourself as type 2? Do you fit the criteria? Isnt type 2, resistance to your own insulin? Or underproduction by a complete pancreas?

    Sean
     
  16. Pammy_50

    Pammy_50 Type 1 · Active Member

    Messages:
    27
    Likes Received:
    18
    Trophy Points:
    23
    I was diagnosed with pancreatic tumour march 2016 surgeons removed pancreas spleen Dudeonal gland and part of the stomach plus gallbladder.
    5mnts later I am diagnosed with type 1 diabetes insulin dependent I am taking creon 12 tablets per meal I am currently feeling very low due to the weight gain has due to the pancreatic tumour I lost alot of weight.
    Please can someone advise me I cannot understand this diabetes at all
     
  17. Pammy_50

    Pammy_50 Type 1 · Active Member

    Messages:
    27
    Likes Received:
    18
    Trophy Points:
    23
     
  18. sean1964

    sean1964 Type 3c · Well-Known Member

    Messages:
    45
    Likes Received:
    19
    Trophy Points:
    48
    Hiya Pammy

    How do you mean about the diabetes?
    Do you mean you are having real difficulty with the control?
    Are you on basal / bolus insulin regime?

    Sean

    Approx 5* creon 40,000 per meal. Was 8* 25,000 (same ofc) but adjust with size and fat / protein content.
     
  19. Pammy_50

    Pammy_50 Type 1 · Active Member

    Messages:
    27
    Likes Received:
    18
    Trophy Points:
    23
    Hi Sean
    Diabetes is a struggle to understand I am unsure what my insulin comes under I take 18 units twice daily novo mix 30 long acting?
    Blood glucose levels are between 5 and 10 daily unless I go into hypo mode dropping to 2 . something.
    I monitor carbs daily still weight is increasing I cannot excerise due to internal surgery and ongoing pain walking any distance brings on steathorrea and pain do what I can.
    I went to bed Saturday night reading 7.4 I totally forgot to take my insulin only to get up next morning to a reading of 9.4 I cannot understand why.
    Appreciate any support I can get thanks Sean
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook