Diabetic for years without knowing, then Insulin and weight gain

tomdat7

Member
Messages
8
Type of diabetes
Treatment type
Insulin
Dislikes
Diabetes, Conservatives, Injustice, Elitism, Poverty, Royalty, Rudeness, Crudeness,
Hi, this is my first post so please bear with me if I go against protocol. I have been diabetic for a good few years and through me insisting I didn't need to go to the Doctors as my headaches and extreme fatigue and bad moods along with anxiety and depression, were all because of stress associated with running my own business, and pain killers would sort me out. I was eventually dragged to my GP kicking and screaming and apologising to him for wasting his time but my sister had insisted and had threatened me that if I didn't accompany her she would disown me. My GP went along with my excuses and humour all the while asking my sister of my symptoms and carrying out tests on me.

" Well Tom, you should have come to see me when Mary asked you to a long time ago, maybe you could have changed your ways and avoided becoming diabetic, your blood levels are off the scale, and I am seriously contemplating admitting you to hospital " I persuaded him not to call an ambulance with a promise of going straight home and taking the prescribed medicines and complete rest for at least three days. I also had to promise to return to see him in seven days, I took the Metformin he gave me, and some gabapentin, as I had told him of the pains in my feet, I returned to see him the following week and my levels had gone down quite a bit, but he referred me to a specialist, anyway to shorten this account I was put on Insulin. I knew nothing of insulin but did as I was told, I also had to see the Practice Diabetic Nurse. The nurse was very nice told me all about diabetes the do's and don'ts took my vitals etc and asked me to return in a month. I went back to the nurse, quite chuffed with my readings, but my joy soon disappeared when she weighed me and I had put on twenty kilo's in a month. To say I was shocked was an understatement, I was distraught, I asked her to weigh me again but it was true. She then said she must have forgotten to tell me about the possible weight gain. I said wasn't it because of me being overweight in the first place that brought on the diabetes, to which she replied yes amongst other things like stress etc, so I said so the insulin helps with my blood sugar levels but at the same time piles weight on, making me far more susceptible to all sorts of other illness's such as heart disease and stroke, etc, etc,. She then came out with a classic, " you have to diet as well you know ".
I explained in detail my daily consumption then asked what she considered I could cut out, she booked me an appointment with a dietician, to say it was a waste of everyone's time would be truthful. Diabetic dieticians have no more idea than the man in the street, because our advised diets change daily, it was only when I was admitted to hospital again with sky high levels that the specialists couldn't get down, that I was told by a consultant that the highly recommended breakfast, porridge oats, was bad for me because the milk I had on them turned to sugar. I had been telling everyone that after my breakfast porridge, my levels went up to around the lower to mid twenties and stayed there for ages, but nobody had blamed the porridge with milk, in fact it is still recommended as a good diabetics breakfast, two or three well intentioned bowls of porridge could bloody kill you.

Because of my unshiftable weight gain, now twenty five kilos, I was told " great news Tom " you are to be prescribed Victoza, this will help you lose weight. Yippee, I thought so I began a course of the miracle injection, I continued to diet, no bread, very little fruit, no porridge, lots of fish and chicken, no beer at all no cordial pop mainly water. After a month nothing to show but terrible constipation, so I read the sheet enclosed with the Victoza, there are no claims of weight loss, only that the Victoza has the effect of causing constipation that in turn makes you feel full and so should stop you eating as much. I was so angry, I felt abused, surely retaining your food, in my case for nearly a week, and all the fats and other dietary materials within your body allows it to extract the high calorie foodstuffs and send them to the areas it shouldn't. Surely if food passes through the body quickly without the body being able to extract the harmful materials it must be better to assist weight loss. So I have given up on the insulin and Victoza, I don't test anymore because no matter what I do the readings are mostly negative, which angers and scares me,

I take the twenty eight tablets daily, for the various illnesses I have, and to be truthful it would be a blessing if as I hope I am selected for the other side, as there isn't a lot to look forward to anymore in this life, only to see my Grandchildren grow a bit more so I can stop worrying about them and they can take their place in the scheme of things. This bloody neuropathy is terrible, it has brought me very close to ending it all a few times, so all you hard buggars out there who think they don't need to see the Doctor, take it from me boys, do it don't get the curse of diabetes.
 

Daks

Well-Known Member
Messages
407
Type of diabetes
Type 2
Treatment type
Diet only
Hi Tom, that's some story you have there buddy, sorry it's been so hard on you, you're not the only one who's had it tough. The most important thing is you have found this forum.

Do you know how many carbs a day you're currently consuming ?
 

jack412

Expert
Messages
5,618
Type of diabetes
Type 2
Treatment type
Tablets (oral)
High, most of the carbs are in the porridge.... not many T2 here can have porridge for breakfast.
I think to lose weight I cut carbs, which cuts my insulin need, which is the hormone that lays down fat from some carbs.
cutting carbs also gets lower and more stable blood glucose

spend some time reading this stuff
From the Southport gp who posts here
http://www.practicaldiabetes.com/SpringboardWebApp/userfiles/espdi/file/March 2014/PP Unwin final proofs revised.pdf

it’s a long page and a few good video’s
http://www.dietdoctor.com/lchf
For me, the more carbs we eat the more carbs we want. they don’t give up easy
http://lowcarbdiets.about.com/od/lowcarb101/a/firstweek.htm
 

Arab Horse

Well-Known Member
Messages
884
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi Tomdat7. It sounds as if you need the LCHF (low carb high fat) diet which is what has helped so many of us on this forum.Look up Prof Roy Taylor's videos, they are an inspiration and have sorted out many of us who were struggling with the recommended diets from dieticians, nurses etc.

Please don't give up. You need to cut the cards completely as I have had to do and you need a glucose meter to test your levels and see what works for you. I was diagnosed when I went for my free NHS health check. I was gobsmacked when I was told I was diabetic as I had no symptoms despite having a glucose of 18.6mmol/L and an HbA1c of 10.4%

I now have an omelette with cheese or bacon and onion and garlic every morning; not what I want or particularly like but I have got used to it. It replaces the fruit and bran flakes with milk that I used to have. I have no bread, potatoes, pasta, pizza underground veg (carrots, parsnips etc). I have a lot of salads and stir fries with meat or fish and avocados are very good in salads. I really miss my fruit, do have a bit occasionally, but diet is so important. About the only part of my diet that has stayed more or less the same is I drank my coffee strong with a dash of milk and no sugar, I now have it without the dash of milk.

Keep posting on here as others will help and encourage you. You need to be really pro active and you will improve things if you stick with it. Once I went on the LCHF diet I lost a stone and a half (I was already at my correct weight) and am now a skinny 7 stone. I am going for a liver scan at the end of the month and after that I am going to do the Newcastle diet so may end up at 6 stone but if it reverses my diabetes it will have been worth it and I can put a bit back on once I have done the diet.

Good luck, don't give up yet.
 

June_C

Well-Known Member
Messages
821
Type of diabetes
Prefer not to say
Treatment type
Diet only
Dislikes
Diabetes, know it alls
Hi Tom, Do take the advice and medication that you've been prescribed. Don't give up, your wife, children and grandchildren still need you. When I was first diagnosed (4 months ago) I was shocked and since then have been through a myriad of emotions. At the moment I'm in the angry mode, why me? I believe we are all dealt hands of cards and we win each game until the final hand is dealt which we cant win. I don't think you've been dealt the final hand, so win the game:)
 

Daibell

Master
Messages
12,652
Type of diabetes
LADA
Treatment type
Insulin
Hi. My personal view is that you must reduce the carbs in your diet and you can make up with protein and fat. This really should reduce your weight and you may well be able to come off the Victoza and may not even need insulin. Weight gain with insulin is due to too many carbs and not the insulin itself. The insulin merely makes it possible for the body to absorb and store excess as fat. I don't agree that the milk was the problem with the porridge. Although milk does have some sugar, I suspect it was too many carbs in the porridge etc. So, go low-carb by having 150gm/day and possibly a lot less and seeing how things go. Review your progress and the Victoza with the GP.
 

donnellysdogs

Master
Messages
13,233
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People that can't listen to other people's opinions.
People that can't say sorry.
Hi Tom

To be honest.. To put weight on then it is due to eating too much / exercising to little rather than blaming than insulin being totally to blame.

You do need to adjust your diet rather than just give up.do look at this forum for udeas to lower carb and have good fats.

Your post highlights how bad you are feeling. However there are ways to beat this.

Would you feel able to list the type of foods you eat on a daily basis? This would help folks here to suggest alternatives.

To help your stomach keep regular, personally, I would recommend that you buy some ground flaxseed (linwoods are a good brand). Start off with a teaspoon a day for a week and then up to 20g a day. It can be sprinkled over anything. Many people have it with mixed berries and cream. Honestly, my stomach was desperate with slowness-very near being paralysed and now it is perfect again. Just from a teaspoon if flaxseed each day (i do have a teaspoon of chia seeds as well).

You have great people here to help you. Please don't take all advice from nhs people that just don't research but just remember their teachings that they learnt from bad advice.... We have lived with diagnosis and we know what works for us.. However, don't forget we are all individuals.. What works for 9 people may not work for the 10th person.
 
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uart

Well-Known Member
Messages
424
Type of diabetes
Type 1.5
Treatment type
Insulin
Hi Tom. I understand exactly where you're coming from. I also had BSL levels in the mid to high twenties and very bad illness and symptoms quite similar to what you describe.

I also received lots of well meaning but ultimately unhelpful advice from dieticians who for a long time dissuaded me from following my instinct of going very low carb (and necessarily higher fat) with my diet. I was already eating almost exactly what they were recommending (oats included) before I was diagnosed with HbA1c over 12.5 and BSL well above 20 mmol/L. So I pretty much already knew that what they were recommending wasn't going to work for me. There was however, just no convincing them of this.

I think that one of the difficulties is the very strong belief in the idea of "good carbs / bad carbs". Good carbs being those with a low glycemic index (GI) and bad carbs being those with a high GI. The problem is that this assumes you have a reasonable carb metabolism in the first place, and that as long as you can avoid the very rapidly absorbed carbs then you'll be alright.

When you have a very impaired carb metabolism however, then even the "not so bad" GI foods can still get your BSL up quite high and have it stay there all day. At this point it becomes much more about the total glycemic load over the day (that is, the total amount of carbs) rather than being about good/bad carbs. Unfortunately though,many dieticians just don't seem to get this.

Please take a look over at the "Low Carb Diet" sub forums here. You'll find some very useful ideas and information there that might be very helpful to you. http://www.diabetes.co.uk/forum/category/low-carb-diet-forum.18/
 
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