1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.
  2. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  3. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2019 »
    Dismiss Notice
  4. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Diabetic retinopathy and ocular hypertension

Discussion in 'Diabetes Discussions' started by FB1976, Apr 10, 2017.

  1. FB1976

    FB1976 Type 1 · Newbie

    Messages:
    3
    Likes Received:
    3
    Trophy Points:
    43
    Hi, I am new to this forum, but have a question. I have just been told I have retinopathy in both eyes but I also have ocular hypertension as well, which I know can lead to blindness. Does anyone else have the same conditions? I also had surgery about 15 years ago for cataracts in both my eyes and now have plastic lenses in both eyes.

    Not sure what will happen next.
     
    • Like Like x 1
  2. noblehead

    noblehead Type 1 · Guru
    Retired Moderator

    Messages:
    23,629
    Likes Received:
    19,628
    Trophy Points:
    278
    Hi @FB1976 and welcome :)

    I've had diabetic retinopathy issues in the past but have been all clear for around 12 years now, not any problems with ocular hypertension but it is something they watch out for.

    What happens next, they'll monitor you closely from here on to spot any changes in your retinopthy and will likely start you on drops for the OH, if you take a look at the following it discusses DR & OH in greater detail with advice and information that you should find useful:

    http://www.diabeticretinopathy.org.uk/Information_for_patients.html

    Best wishes and good luck.
     
  3. DiabeticDadUK

    DiabeticDadUK Type 1 · Well-Known Member

    Messages:
    336
    Likes Received:
    906
    Trophy Points:
    178

    Hi there!

    I've been through retinopathy. Currently managing ocular hypertension in one eye (the bad one). What would you like to know / discuss?

    For the hypertension you'll probably be prescribed a steroid and anti inflammatory. I take Pred Forte x2 and Azopt x2 daily. If your pressure goes up and the meds can't get things stable they'll likely suggest some laser under a local.. I had pressure of 44 in the left eye in 2014. The pain was something extraordinary. Meds helped it a little but only laser sorted it out. Now running pressure around 12, 13 which I'm told is fine. No problems for the last 3 years in that regard but I'll likely be on the eye drops for the foreseeable (pardon the pun)

    For the retinopathy I've had laser and some deep laser in theatre and a vitrectomy in both eyes. A vitrectomy is no walk in the park so hopefully it won't come to that for you. In short, approx 2 hours under general in theatre. A whole host of drops to keep the inflammation and infections at bay. Two weeks with your face down (5-10 min break every hour) to give your retina the best chance to heal and take the pressure off it. After having both eyes done, I've seen an awful lot of blurry carpet. They may insert synthetic oil in your eye to stop it collapsing or a gas bubble. The oil stays put, the gas bubble gets absorbed slowly.

    Ohh... retinopathy doesn't always mean vitrectomy. That's just my story in short :)
     
  4. FB1976

    FB1976 Type 1 · Newbie

    Messages:
    3
    Likes Received:
    3
    Trophy Points:
    43
    Thanks for the reply and the explanation, it's a lot more than any health professional has explained.
     
    • Like Like x 1
  5. DiabeticDadUK

    DiabeticDadUK Type 1 · Well-Known Member

    Messages:
    336
    Likes Received:
    906
    Trophy Points:
    178
    Glad to be of some use. If you notice a headache around the eye with hypertension and it doesn't go away then hop down to eye casualty before it gets too much. I awaited for 24 hours and wished I'd gone sooner. IV for a few hours lowered the pressure and pain to a manageable level but holy cow it hurt until then.
     
  6. Dark Horse

    Dark Horse · Well-Known Member

    Messages:
    1,325
    Likes Received:
    738
    Trophy Points:
    133
    If you were found to have ocular hypertension before you developed retinopathy, the ocular hypertension is likely to be from a different cause than @DiabeticDadUK 's and so the symptoms/treatment would be different. Ocular hypertension could lead to glaucoma so may or may not be treated, depending on the circumstances. There is more information here:- https://patient.info/health/chronic-open-angle-glaucoma

    What happens next with retinopathy depends on how advanced the retinopathy is. With background retinopathy, for example, you wouldn't need any treatment and would still be screened annually. There is more information here about the different stages of retinopathy and what treatments may be offered:- https://patient.info/health/diabetic-retinopathy-leaflet
     
    • Agree Agree x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook