Today at my appointment in the Eye clinic he consultant told me what I had already realised - that after about 3 years of reatment nothing was working and there were no other opions.
He is not washing his hands of me- he will continue o attempt to help for as long as it may make a difference.
While this came as no surprise it is one thing to know something inside yourself and another to hear it said by The Expert.
My macular oedema was caused by my Bg being brought down too quickly . I was told that I had probably been diabetic for most of my adult life. hat would have been about fory years. I had only slight background reinopathy when diagnosed. The hospital wanted to refer me back to the GP.
I do feel that I have been a victim of "targets" Even quite recently when my HBA1C had risen slightly because I was unable to exercise for a few months there was a big todo about reducing it.
I complied as far as i could and once again there was rejoicing. until it was found to have caused more bleeding. But at least the figres ll comply with the argets.
The consultant looked grave the last time I saw him . Today he looked graver still.
My only comfort ,really, is that I feel that I had the best possible treatment from this consultant.
I have always had certain reservations about the treatment on offer and the personnel. I have often declared . much to he horror of family and friends that i would refuse any further treament if i could not see that particular consultant. For once . I do feel that nohing more could have been done.
In the same way that I previously voted with my feet and refused to see the "diabetes doctor"
in my former practice I had to work quite hard to ensure i saw the consultant i trusted but at least i now have no regrets or reservaions. I always felt that if the treatment given by this Dr didn't work it would certainly not have worked when administered by anyone else..
The whole process has. I think, just reinforced my belief that you have to follow your own instincts.
I felt it was wrong to atempt to reduce my levels too quiickly, I knew that the first laser treatment by a registrar had made my eyes worse and i was deernined as far as mightbe possible to ensure I was seen and reated by the one person i trusted. I suppose underlying it all was my "unbelief" in the system.
Today I spoke to various other patients for whom the reatment is and has worked . Some of them had far more complicaed problems han mine so I don't want to frighten or depress anyone else with my post. sometimes treatments don't work whatever anyone does.
The other thing ,of course, is that because my case has been unusually well documented due to my having been referred to the hospital unneccesarily and kept on because of the introduction of the retinal screening programme then lessons may have been learnt and my anguish over the last few years won't have been enirely wasted.
He is not washing his hands of me- he will continue o attempt to help for as long as it may make a difference.
While this came as no surprise it is one thing to know something inside yourself and another to hear it said by The Expert.
My macular oedema was caused by my Bg being brought down too quickly . I was told that I had probably been diabetic for most of my adult life. hat would have been about fory years. I had only slight background reinopathy when diagnosed. The hospital wanted to refer me back to the GP.
I do feel that I have been a victim of "targets" Even quite recently when my HBA1C had risen slightly because I was unable to exercise for a few months there was a big todo about reducing it.
I complied as far as i could and once again there was rejoicing. until it was found to have caused more bleeding. But at least the figres ll comply with the argets.
The consultant looked grave the last time I saw him . Today he looked graver still.
My only comfort ,really, is that I feel that I had the best possible treatment from this consultant.
I have always had certain reservations about the treatment on offer and the personnel. I have often declared . much to he horror of family and friends that i would refuse any further treament if i could not see that particular consultant. For once . I do feel that nohing more could have been done.
In the same way that I previously voted with my feet and refused to see the "diabetes doctor"
in my former practice I had to work quite hard to ensure i saw the consultant i trusted but at least i now have no regrets or reservaions. I always felt that if the treatment given by this Dr didn't work it would certainly not have worked when administered by anyone else..
The whole process has. I think, just reinforced my belief that you have to follow your own instincts.
I felt it was wrong to atempt to reduce my levels too quiickly, I knew that the first laser treatment by a registrar had made my eyes worse and i was deernined as far as mightbe possible to ensure I was seen and reated by the one person i trusted. I suppose underlying it all was my "unbelief" in the system.
Today I spoke to various other patients for whom the reatment is and has worked . Some of them had far more complicaed problems han mine so I don't want to frighten or depress anyone else with my post. sometimes treatments don't work whatever anyone does.
The other thing ,of course, is that because my case has been unusually well documented due to my having been referred to the hospital unneccesarily and kept on because of the introduction of the retinal screening programme then lessons may have been learnt and my anguish over the last few years won't have been enirely wasted.
