DOES ANYBODY CARE

Pauline1951

Member
Messages
15
Type of diabetes
Treatment type
Insulin
Diagnosed in August 2011A1c 9.9 average readings 15.0 I had to ask GP to see a DSN who said because I was a complex case would have to see a consultant that was two months ago. Went back to doctor he was going to chase it -still nothing. Problems with metformin had to stop. Problems with gliclazide can only take 40mg. Fasting levels circa 7.0 after that they are totally erratic with highs of 25 and above. Diet is my problem can only eat certain foods.
Sticks have been stopped no idea what's happening. Sorry to rant with all my other medical conditions am a little concerned
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hi Pauline and welcome to the forum :) Yes we care, and a lot of us are having the same problems. You have to battle on as best you can. At least your fasting levels sound fine. Some members might come along soon (bearing in mind it's quiet on a Sunday) and share their experiences with you and may have some tips.

Here is some information that might be useful to you which could help you to get your levels down while you wait for appointments/treatments. There is a link to suggestions to try to persuade your HCPs to let you have some strips. See if it works.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

Pauline1951

Member
Messages
15
Type of diabetes
Treatment type
Insulin
Thank you so much for your reply.I really appreciate it. I have read a lot of posts on
The site before registering..I realise I am not alone
 

WhitbyJet

Well-Known Member
Messages
1,597
Pauline - I care as well.
It is shocking that with all your health oconditions you are expected to wait for such a long time to see a specialist consultant. I think I would be a bit more demanding and pushy, has the GP confirmed the referral? If so you could call the consultants secretary and explain your situation, sometimes they have cancellation at short notice, you might be offered a last minute appointment. Definitely keep pressing your GP to chase things up.
With all those medications its no wonder you are not feeling so good, can you ask to have a review? Most medications have side effect. There was a time when I saw consultants, one after another for various complaints, each prescribed Medicines, i was rattling with all those pills inside me. Then pills for various side effects were I became more and more ill. Eventually I saw a very good endocrinologist, she took her time with me, reading all my notes,she shook her head and said let's start from the beginning. You see each consultant did what they thought best, but it left a lot of strings dangling, I needed someone to bring them altogether. My Endocrinologist was worth her weight in gold.

What post of foods can/can't you eat?

I hope you can soon be seen by your specialist consultant and that you get the help you so badly need and deserve.
All the best
 

Pauline1951

Member
Messages
15
Type of diabetes
Treatment type
Insulin
Oh such kind words thank you. I have bipolar, hypothyroidism, COPD, ischemic heart disease,
Arthritic spine amd sadly need all those tablets just to survive. To be honest my depression has kicked in again and I am sulking that I now have yet another medical condition. I liked orange juice and milk in copious amounts for dry mouth. Potatoes, bread, fruit all of which are to be avoided or in small quantities. Not keen on food and eat because I have to. The thought of carb counting and all the rest of it not sure if I can do it. Once I stop feeling sorry for myself and the depression lifts I shal get into gear like every diabetic on here is trying to do.
 

Gappy

Well-Known Member
Messages
483
Dislikes
hypocrisy, prejudice and the corrupt legal system (never got compensation I deserved from an accident)
Diabetes itself isn't hard, I appreciate it's complicated due to other problems though. I was only diagnosed 5 months ago and read all he advice and thought I could never stick to such a rigourous regime-so I never even tried! I did make small changes. After all any change is for the better, then when that change is part of life it's easy to make another change if needed. I started by realising my weakness was bread, it's so easy to make a sandwich after all, so I got wholemeal wraps. I know they're still carbs but 1 wrap is a reduction compared to 3 slices of bread and also cuts on calories as there's no butter on a wrap. Just 1 small easy change but made a big change to me.
 

WhitbyJet

Well-Known Member
Messages
1,597
Oh Pauline, of course you are sulking, who wouldn't? Being ill is just so unfair, i think anyone in your situation would sulk and rant and rave. I used to do lots of that, then I got so angry that i banged my fist on the table and swore I would never stop searching for things that might make me better. It brought out that fighting spirit in me.
For example my cholesterol and trigs were dangerously high. Stating made not much difference, I changed to all things heartfriendly from increased exercise to reduced carbs and healthy fats and nuts in my diet. It worked, I was lucky.
I searched for studies and information, sent emails to various top consultants and so on, i refused to take 'nothing can be done'as an answer.
All I can say Pauline is just don't ever give up hope, if one doctor tells you that there is no help, the next doctor might well have a different answer for you.

I have a print out on heart disease that you may be interested in, when you have made five posts you can send PMs. Let me know your email address via PM and I will send it to you.
 

Pauline1951

Member
Messages
15
Type of diabetes
Treatment type
Insulin
Thank you all for your kind words and support. No doubt I shall come back fighting have too really. Its probably fear and feeling so unwell that's making me want to run.
 

WhitbyJet

Well-Known Member
Messages
1,597
Ahh Pauline, I know the feeling well. But now you posted in this forum, you will soon see how supportive and caring members are. You are not alone anymore, plenty of shoulders to lean on, plenty of hands to grab hold of whenever you need support.
Keep posting, ask questions, talk about your issues.

Here is a big comforting, encouraging hug for you ((((((((((Pauline))))))))))
 

anna29

Well-Known Member
Retired Moderator
Messages
4,789
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals/Children
Liars/Manipulators/Bullying
Hi pauline .
When you arnt getting the help you so badly need it can leave you feeling abandoned .
Thankfully on here in the forum are loads of lovely warm caring thoughtful members.
I echoe what has already been said, you really do need to go back and insist this is addressed and a new care plan is put into action for you.
When you are feeling so ill it is easier to feel like hideing away .
Write any questions or symptoms down , as you think of them. Take these with you next time you vist your HCP and address them all with them.
These are always veiwed by the HCP's as positive action and do seem to draw answers out of them too.
Please do let us know how you go on.
More hugs [[[[[[[[[ Anna ]]]]]]]]] :D
 

Unbeliever

Well-Known Member
Messages
1,551
The problem is hat noone does seem to take an overview hese days. They all seeem o just want to deal with heir own field in isolation. My GPs and nurse totally clam up if I even MENTION the hosptal or my treatment there in passing. I am not even rying o ge any information - I know they never read the notes.

Its very hard hat you ate always required o fight when at your lowest ebb bu you really have o do so or things won't improve.

41 pills for other conditions! Someone needs o look at yiur situaion asap. It is net o impossible hat some aren't reacing wih others o make you ill.

My sister has some of he same condiions as you but never had any problems unil recenly when she had some horrific side effects. These were due to srug ineracion. It has all started to setle now w but ook a litle time but once you know what the problem is there are always alternaives . Its just geting the mix righ.
Its sad that yu have o force he issue yourself - I always think of hose who really can' for various reasons.
Unfortunately it is becessary o be quite asserive these days purely for your own protection.

Once "they" know you are no going o just accept things without question it should help for the future.
Best of luck wih it all.

Stories like this make me sad - and angry.
 

Pauline1951

Member
Messages
15
Type of diabetes
Treatment type
Insulin
Hello Everyone,
A quick update another week has passed still no appointment. My eyesight which has been blurred for sometime has not improved.

I am at a loss as what i should do.

Thank you all for your previous posts of. support and encouragement. I have read so much on this site eyesight permitting i don't really need a consultant just the right medication.

Thanks. Again x
 
Messages
1
Reduce your carbs. overall, however, keep a few of the "good" ones in your diet - whole grain, etc. especially if you are taking metformin - it works more efficiently if you have a few very complex carbs with it. The biggest lesson I've learned, tho, is portion size and control. Just because you may be using whole grain bread or even a reduced carb food, try eating half of what is said to be a serving size for a few days - yes you may lose a pound here or there, but more than that, you will begin to see how food and your body react to each other....as all bodies interact with food very differently! I can even have chocolate cake - about two ounces - and my sugar is very good. However, I do that only very seldom.

I have been diabetic for over 15 years and have never needed oral meds or insulin....eating carefully has been good for me...as I have degenerative joints in my feet and ankles, I cannot do any real walking - but I love to swim and do aqua-robics! No stress on joints and still burn calories and carbs!

Just my humble opinions and what has worked for me.....

Artist