Epilepsy

[moosymum]

My son is taking Keppra 720mg x 2 a day. The epilepsy is under control, does anyone have any information on taking this drug and diet for diabetes. He's only recently been told he has type 2.

 

[jack412]

Speak to a specialist
A medical treatment for epilepsy is a diet ketogenic
https://www.google.com.au/search?q=epilepsy ketogenic&client=ms-opera-mini-iphone&channel=new&gws_rd=cr,ssl&ei=iz_YU5n7BZbNsQSrqYHABw#channel=new&q=epilepsy ketogenic mct
Mct is a refined coconut oil which can be a replacement
The diabetes will be easier to manage too

Mct/coconut oil can be taken as a supplement too

If ketogenic is too far for you, a reduced carb diet will help a lot, if you reduce carb, the calorie is replaced by fat/ coconut oil
It's called a lchf diet that a lot of t2 use

 

[kesun]

Your son should be fine on low carb high fat (LCHF): my daughter is prescribed the ketogenic diet (very similar to LCHF - we pretty much eat the same things) as an adjuctive threrapy for epilepsy, with Lamotrigine as the other prescription, and before that she combined keto diet with Keppra with no ill effect. The only reason we stopped Keppra was that it was having no effect on her seizures, but that had nothing to do with diet. Unlike your son, she doesn't have diabetes, but I think you're asking what effect diet might have on his seizure therapy, not the other way round.

Good luck to you and your son. Epilepsy is horrible to live with.
Kate

 

[moosymum]

Your son should be fine on low carb high fat (LCHF): my daughter is prescribed the ketogenic diet (very similar to LCHF - we pretty much eat the same things) as an adjuctive threrapy for epilepsy, with Lamotrigine as the other prescription, and before that she combined keto diet with Keppra with no ill effect. The only reason we stopped Keppra was that it was having no effect on her seizures, but that had nothing to do with diet. Unlike your son, she doesn't have diabetes, but I think you're asking what effect diet might have on his seizure therapy, not the other way round.

Good luck to you and your son. Epilepsy is horrible to live with.
Kate

Hi again. My son is 36 has a couple of mental health problems. Aspergers, General anxiety disorder he lives at home. I am his carer but at the present time I am a very confused carer. Thanks for the information so far. I have read somewhere on this forum he could/should be assigned have a diabetic nurse does that automatically happen, he has only recently been given the contact details of the epilepsy nurse. Because of the Aspergers I have enormous trouble to get him to try anything new. We have been trying to make small changes before he goes on the first information session 7th August and I just hope they are helping, the fasting blood test level was 12.9 the Hb1 etc was 84. He only eats potatoes - not rice, pasta. He has carrots, green beans and a few peas with meat every day. White bread only for sandwiches. He's cut out biscuits, chocolate, coke and we have started to go for a walk each evening for 30 mins. He loves banana milk shakes and I have restricted him to 100 grms of ice cream once a week. From reading some threads on the forum it seems to be a try it and see if/what has the most effect! So I'm not too sure what I am asking, perhaps I am trying to make sense without the full knowledge of type 2. When the doctor said he has diabetes he didn't mention anything about tablets or injections, could that be discussed at the meeting or can I assume it can be regulated by diet only? Help. Thanks

 

[kesun]

HWhen the doctor said he has diabetes he didn't mention anything about tablets or injections, could that be discussed at the meeting or can I assume it can be regulated by diet only? Help. Thanks

Those levels aren't horrendously high, and probably could be controlled by diet alone, but only if your son can co-operate. From what I know about ASD, changing diet could be too much for him to cope with. But the moves you've already made, cutting down on sweet carbs and getting more exercise, are bound to help. However, I would talk to your son, and then to the doctor or diabetic nurse, about metformin.

Have you thought of asking for an updated carer's assessment from Adult Social Services? This new diagnosis will increase your burden of caring.

Kate

 

[jack412]

Swap banana milkshake to banana essence and half water half cream
A low carb high fat drink

It really isn't going to be that hard
For mash potato there is mash collie

 

[Dazza1984]

I have been and epileptic since 2006; then diagnosed with Type1 diabetes ~May 2013. I take 1000mg Keppra and 250mg Lamotrigine twice a day. I have spoken at great length with my neurologist and endocrinologis; and they both say it is fine. The drugs, and conditions, have no proven link other than a lost BG causing problems with the nervous system; ie hypos and epilepsy tend not to mix well.

As for diet; again no obvious links. Reg the ketogenic diet that is another matter as obviously we're changing food intake to aid control of seizures. I have never been on this so no experience I'm afraid.

Did they ever diagnose the cause of your son's epilepsy?

 

[moosymum]

Hi. He takes 750mg Keppra x 2 daily and Amitrypiline 50gm x 1 daily. No other drugs. We're not sure why Epilepsy started he was treated for a brain tumor when he was 9. He's had lots of CT scans and MRIs since then and a couple of invasive treatments. He was diagnosed with Myoclonic epilepsy about 4 years ago after a devastating bereavement although he was having strange shaking movements for some time before then. The neurologist has recently discharged him from regular visits in clinic so everything in that area is under control. He has been referred to the Epilepsy nurse recently but hasn't see her yet. The neurologist knows about the diabetes diagnosis.

He has his first 2 hour diabetic meeting on Thursday and I must say the thought of him developing ketone acidosis through a change to his diet fills me with dread. I know someone with type 1 diabetes who has developed that and is having big trouble controlling it all.

Think I am trying to understand it all without specific information relating to him. I am hoping he will be assigned a Diabetes support nurse but not sure that will happen automatically. What happens if it doesn't? Should he test his blood sugar level every day? If so which tester is the most reliable?

 

[jack412]

Dietary ketones isn't dka
But its understandable that you think that, the nurse may not know, the epileptic specialist will know .