First day of treatment for bladder neuropathy

Re: First day of treatment for bladder neuropathy

Good luck today. I don't envy you.

Re: First day of treatment for bladder neuropathy

Hang in there Emmie. My sister in law is a continence nurse and she tells me that the electronic nerve stimulation is quite effective.
Tales a while for it to take effect but so worth it.

I hope you can be healthy and as active as you want to be.
Big hug for you x

Re: First day of treatment for bladder neuropathy

Hi Emmie I have had diabetes for the past 20 years. Diagnosed aged 8. I too have several complications. I also have nerve damage to my bladder causing urine retention. I self- catheterise daily and am on the waiting list for sacral nerve stimulation so I know only too well what you are going through. If you ever need to talk I'm here


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Re: First day of treatment for bladder neuropathy

Hi Emmie yes it's devastating having so many complications at such a young age. I don't just have nerve damage to the bladder it has affected several parts of my body. I have peripheral neuropathy which causes numbness and severe pain some days i can barely walk which have resulted in fractured metartasol and Charcot fractures in both feet. This has resulted in permanent deformities and I can never wear normal shoes. I have to wear special shoes. I have automatic neuropathy which causes my blood pressure to drop, I get dizzy and have a fit. Gastroparesis this is nerve damage to the stomach which means my stomach doesn't empty properly which causes a whole host of gastric problems and makes it difficult to control diabetes. I have neurogenic bladder I can't empty bladder and have to self - catheterise. Nerve damage in back. I have had the neuropathy for the past 7 yrs. gastroparesis and neurogenic bladder 3-4 yrs. it was very difficult to come to terms with. I did get very depressed by things and it still gets me down now

I have not heard of this electric nerve stimulation I would like to know more about. As I said I'm on the list for sacral nerve stimulation - waiting list is 9 months. It's basically like a pasmaker for the nerves first they fit a temporary one if this works they fit a permanent one. There no guarantee it will work so it could all be for nothing


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Re: First day of treatment for bladder neuropathy

Hi Emmie & everyone
I've had a weak bladder for about 30yrs - but as a result of a hysterectomy. I was not diabetic at that time. DIagnosed in 2009.

I have at times little control and have been told I have urge incontinence. As a result, especially after my double knee op in 2010, I have had to wear protective pads when I go out of the house, and even then have had several accidents. It is no fun having to walk through people with an obviously wet pair of trousers. Had to have a catheter inserted because not get out of bed to wee, which knackered the sphincter. Much better now thank goodness! So can appreciate your embarrasement. I have to empty bladder about every 1½ to 2hrs and often when out have to find a "tiddle spot" as I call it. Not always easy. My husband is now used to it and does not blink an eye, but we had a friend visit about 2yrs ago and she was horrified that I could not control my bladder and said I could not respect myself by squatting in public. I suppose it can embarras people.

I was told about the electronic stimulation treatment by our local physio, but did not use it. I pray it will help you strengthen your pelvic muscles and so help control evacuation. Look forward to hearing how you get on

Having read all your comments it has alerted me to the fact that diabetes can cause similar effects. Going to see urologist beginning of August and will ask him about it