1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Freestyle libre for type 2

Discussion in 'Type 2 Diabetes' started by timbro, Nov 12, 2018.

  1. timbro

    timbro Type 2 · Member

    Messages:
    7
    Likes Received:
    1
    Trophy Points:
    23
    I've been on insulin (lantus and novorapid) for nearly 6 years and try to follow a healthy carb counting regime. I had a chance peptide test last year and although low it shows I still produce a small amount of insulin ( not conducive for stable blood glucose at all)
    I was therefore wondering if it would be possible to pursued my GP to prescribe freestyle libre sensors?? I have tried them by purchasing them myself and found it to be rather enlightening, however too expensive to keep purchasing.

    Any thoughts??
     
  2. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    12,557
    Likes Received:
    16,186
    Trophy Points:
    298
    I don’t take insulin but from reading on here, many type 1s still can’t get them so I’d doubt it somehow, but you can but ask.

    Edit to add. Please excuse my rudeness at not welcoming you to the forum, just noticed this is your first post.
     
    • Agree Agree x 2
  3. Deleted Account

    Deleted Account · Guest

    You could always try but I would not hold my breath if I was you.
    In my CCG, they are only available for a few type 1, the criteria to get them are very rigorous (2 x DKA hospitalisations or 2 x severe hypo requiring assistance) and the criteria to keep them longer than 6 months are not much more relaxed.

    Like you, I cannot afford to fund them full time for myself but find the results enlightening.
    Therefore, I use it 2 out of every 6 weeks and use it to tweak my insulin (timing and dose) based on trends rather than using it as a finger prick replacement.
     
    • Agree Agree x 2
    • Like Like x 1
    • Informative Informative x 1
  4. timbro

    timbro Type 2 · Member

    Messages:
    7
    Likes Received:
    1
    Trophy Points:
    23
    When I tried the libre I noticed night hypos that were disturbing my sleep but not enough to wake me a new then a rise in blood glucose before I woke for work. Finger pricks before bed and breakfast both generally ok so assumed my lantus level was ok. I tweaked this down gradually by seeing effect on glucose levels during my sleep. Made a lot of difference to how much less tired I was. Same with holiday control.
    Libre does give so much more insight into what affects your glucose levels
     
    • Informative Informative x 3
  5. DaveXF

    DaveXF · Well-Known Member

    Messages:
    96
    Likes Received:
    49
    Trophy Points:
    58
    The libre is expensive, granted, though I believe it to be priceless.
    I should pursue the GP on it, you might drop lucky.
     
    • Like Like x 1
  6. Scott-C

    Scott-C Type 1 · Well-Known Member

    Messages:
    2,475
    Likes Received:
    2,726
    Trophy Points:
    158
    If you enter your postcode in the linked page below, it'll take you to your area's policy page which'll give you a few clues on the likelihood of getting it (not sure how comprensive the site is but worth try).

    https://www.diabetes.org.uk/get_involved/campaigning/flash-glucose-monitoring

    Failing that, google the name of the ccg for your area - some of them have posted policy statements and minutes of meetings, but it varies - some post a lot, some post very little.

    Very few of them are prescribing for T2 but you being on insulin might sway it.

    It will generally be the hospital, not the gp who will make the call on whether to prescribe, but I recall reading recently that in a particular area it was found that if a ccg had a restrictive policy, there was nothing to stop the gp going ahead and prescribing anyway if they thought it met a clinical need, so it would be interesting to see how that develops. Can't remember where I read it.

    Edit to add, the paragraphs headed "Ignoring CCG advice in this link has some detail about that last point:
    https://www.bmj.com/content/363/bmj.k4675
     
    • Like Like x 1
    #6 Scott-C, Nov 12, 2018 at 2:42 PM
    Last edited: Nov 12, 2018
  7. Angelofthemarches

    Angelofthemarches Type 2 · Well-Known Member

    Messages:
    789
    Likes Received:
    1,077
    Trophy Points:
    178
    I'm type 2 non insulin dependent and I self fund (obvs). It is expensive but I keep telling myself the,amazing good it's doing me - 2 1/2 years in and an hba1c of 36, no complications and 20 lbs down. Granted I had to 'listen' to the libre for this to happen.
     
  8. Fenn

    Fenn Type 1.5 · Well-Known Member

    Messages:
    892
    Likes Received:
    1,164
    Trophy Points:
    178
    If you believe testing bg is a good idea for type 2's and who wouldn't? then you should also believe that the libre must be a good idea, its like testing bg X1000, I think if someone is showing an enthusiasm to control their Diabetes then they should be given one, once well controlled I think it should be self funded if wanted or needed still, for learning what food does to us, its an incredible tool and I would urge everyone to try it, even if just for a short while or intermittently. It is hard for me to stress how valuable this is for me.

    Until they can produce it cheaper I don't think its practical to give every type 2 the Libre, especially as most type 2's in my experience don't take much notice of their condition, unless you count cutting down to only one sugar in their tea (present company excepted).

    The Libre or equivalent is the future, its so good, its a game changer.
     
    • Like Like x 1
  9. Angelofthemarches

    Angelofthemarches Type 2 · Well-Known Member

    Messages:
    789
    Likes Received:
    1,077
    Trophy Points:
    178
    I have had a binge eating disorder for 40 years and the libre is the only thing which has helped me keep a handle on my weight and blood sugars. I also wear a fit bit so am now getting a really good handle on how exercise affects me and what kind of exercise seems best. The libre is such a powerful motivator!
     
    • Like Like x 2
    • Winner Winner x 1
  10. timbro

    timbro Type 2 · Member

    Messages:
    7
    Likes Received:
    1
    Trophy Points:
    23
    Thanks pal, frustrating business this diabetes (of any kind). Just when you think you have it sussed, something upsets the apple cart (that's the problem, too much of my 5 a day).
    I will have a look at the links and inwardly digest ( there I go again, that'll send the sugar up).
     
    • Like Like x 1
  11. porl69

    porl69 Type 1 · Well-Known Member

    Messages:
    3,655
    Likes Received:
    4,081
    Trophy Points:
    198
    Hi @timbro and welcome to the forum
    You could always go and ask your GP BUT I highly doubt you would have any joy. No harm in trying.
     
  12. Injebreck

    Injebreck Type 2 · Member

    Messages:
    12
    Likes Received:
    1
    Trophy Points:
    43
    Very unlikely, I'd say. Although it's on the recommended list, the decision lies with the CCG and they'll do anything to cut costs. Many T1s can't get them, in fact, I've just been speaking with someone at the diabetic clinic at the hospital about a CGM and the chances for anyone are low. It's always worth trying, though, just don't hold your breath.
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook