Had enough!!!!

[Emzie star]

Hi guys just need some help or advice I have been T1 since I was 7, now 23, I have delt with the lows many times and managed to get through them but this time I feel like I have hit a brick wall. I can not get control of my bloods through the night I either wake up with hypo during the night or I wake up sky high in the morning but when I do night time testing they are good. I just don't want it now I have had enough I just feel I can't cope and I am losing interest in trying to sort it now I have hit a brick wall and need help!!!!

I am meeting up with DSN this week but feel some time they know what tobdo but can't help with how I feel.


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[Osidge]

Hang on in until you see the DSN. If there are problems that are not being resolved, however, then seeing a specialist might be the way to go.

Take care

Doug

 

[mattmo86]

Hey Emzie,

I'm exactly the same. I'm 26, have had T1 since I was 11, have never had good control and as far as I can see, I'm never gonna have it. Blood is constantly high, low, high, low. I hate the hypos, so just let my blood go high, don't inject docs and nurses never seem to be concerned with the lows, just see all the highs. Right now ive stopped caring all together, I inject if I remember, lantus is hit and miss as to if I remember or not, have stopped recording any bloods/doses.

I work nights, so guessing that don't help, I have no sleeping pattern, diabetes is the last thing I think about until i'm low or extremely high.

All in all I'm fed up.

 

[Emzie star]

Thanks Doug yeah only 2 more days and I see her just struggling amd find it hard that I can not manage it myself I have always been able to sort things.

Thats good to know Mattmo89, not so good your are fed up to but it is nice too know I think that I am not the only one which some times I feel. I don't have any contact with any other type 1 diabetics so hard with things go wrong to know when it is normal to feel like that, my main reason for joining this, but hopefully we get there :grin:


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[Switch2501]

I was the same until last year.
Diagnosed at 14, I'm 29 now.
Went on a carb counting course (ICE), did that for a year, had some success.
Still struggled a bit.
Then applied for a pump. My blood sugars have never been better.

Now I do like to run my sugars a little high (10 tops) and I hardly ever go above that now.
I'm looking at bringing that down closer to 8 or 7.

The pump is just a better way of delivering insulin and a lot more flexible.
Highs during the night? Set your background insulin rate a little higher for a few hours. Dropping low at set time each night? Reduce the rate.

I've never felt better.
Ask about ICE or Berty or Dafne with your DNS and then ask about a pump.

There are some set criteria to get a pump mind. Having an Hba1c of 9.5 is one of them... But I think they can be flexible.


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[Emzie star]

I am on the list for the pump ment to be getting it on June 25th so very excited with that as I have been waiting for years for it. I done the DAFNE course 4 years ago too. That helped me a lot but I just feel I hit a low but I have been reading what a lot of people have said about the pump and how it has helped hut then j also see about some problems with pumps but I am hoping that will help.

I might just need to try power through the next 2 months till I get the pump and hopefully things will start too look up.

I am really glad that the pump has worked for you switch. What you have done as well with setting your targets higher is maybe what I need to do set them slightly higher and when I am hitting them try bring it down more rather than focusing so hard on the targets set during DAFNE

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[princess]

I can really empathise with you all here, I've been on the rollercoaster only 5 years as I became type 1 in my 50's, a real shock to the system but after the 'honeymoon spell' of the first couple of months where everything was perfect I have never had control for any length of time. What I would say about it though is stick with it, you've had it since small I know and had it longer but I'm suffering the consequences of high glucose after only 5 yrs without good control. I've had diplopia (double vision) twice , currently got it still and can't drive or even walk easily as only seeing through one eye you get no depth or width perception, it also took a week in hospital to get good pain control, something I may have permanently, because I've got a cranial nerve palsy, it's really not pleasant, have also had a bell's palsy. It's all nerve connected and wouldn't wish this on anyone. I do so understand the frustration of getting the highs though and even my boyfriend can't understand why I get so 'het up' I could trash the house, and have to admit to throwing my meter and also not testing the rest of the day until bedtime as I just couldn't take seeing a higher reading than I should have, given I've done everything I should, it's hateful and non-diabetics just don't fully understand it. The consultant I have just looks at numbers, gives no advice or help other than to refer me to the nurses, but that said, I have just got one who gets it totally and is the biggest help I've ever had, so please stick with it and best of luck, you're not on your own, and I have to agree, I also joined this site to be in touch with people who can understand and it's the best thing I did. Wishing you all well xx

 

[Switch2501]

As long as I'm no higher than 10 when I'm testing, I consider that a success.
Compared to pre-pump where my sugars could easily be 18 or so on a regular and steady basis.

Eventually ill bring it down but only when I'm good and ready

Remember, at the end of the day, it's your body and change takes time. If the doctors etc are pushing for the perfect 4-7 and your not quite ready for that, tell them and then say where you are going to aim for. They'll respect you for it and it will give you more control over your own care.

I was lucky, when I started on the pump, my ratios were pretty much spot on from the get go so I've never really had any problems. But it could take a while to get everything sorted.
At the end of the day there is a wealth of support out there now

Yes the next 2 months might still suck but do your best with the carb counting, make sure it's fresh in your mind and when it comes to P-day you'll be laughing!

Let us know how you get on!


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[ConradJ]

Hi Emzie star,

You're not alone: your symptoms sound like mine.

I feel like I have hit a brick wall. I can not get control of my bloods through the night I either wake up with hypo during the night or I wake up sky high in the morning but when I do night time testing they are good.

I'm T1, diagnosed at 6. During teen years, the hospital 24-hour blood tests* could never get a reading from my 2am-3am blood tests as the levels went so low.

When I was put onto a pump (2005), the CGMS readings revealed the same trend, namely that sometime between 01.00 and 02.30 my glucose levels would drop off a precipice and disappear... the resulting high's first thing in the morning were the consequence of the rebound from the body going hypo during deep sleep.

You may find that you are also going low at night - probably during a period of deep sleep, causing your body to react and produce the high's of the next morning.

You need to keep a diary of what you're eating, doing and injecting/bolusing in order to compare the days you wake with a high with the days you wake with a low... something (be it exercise, food, alcohol, stress, sex, etc.,) is causing these swings - without that information, neither you nor your DSN will be able to make accurate diagnosis of the cause and recommendations for resolving matters.

In the meantime, hang in there - diabetes is hard (sometimes very, very hard), but it be tempered.

*You're probably not old enough to have experienced the days before blood testing was measured by meters... when I was a teenager, you pricked your finger and dabbed the blood onto a strip, waited 15 seconds and then compared the colour of the strip against the colour chart along the side of the strip container - high tech stuff! (Mind you, compared with the urine testing method that I used in the 70's..!!!)

 

[mhoggarth]

Im like this currently too,

No matter what levels i go to bed with, in the morning im waking up with 13,14,15+

Its getting me down too

 

[donnellysdogs]

Ask your dsn if you could have a cgm for 5-7 days.

 

[ConradJ]

Im like this currently too,

No matter what levels i go to bed with, in the morning im waking up with 13,14,15+

Its getting me down too

I agree with donnellydogs - if you can get a CGM for a week that would help establish what's happening at night whilst you're sleeping, if you can't, then keep a diary for a week... Try to keep to the same daily diet and activity and note what you're doing and feeling during each day (e.g. stress, exercise, etc.) Make a note of your blood results in the diary.

Then, repeat the diary for a second week, but this time try doing something different... for example, if your blood glucose is below 10mmol at bed time, try having a small snack of less than 15grams of carbs (e.g. glass of milk) without injecting/bolusing and see what happens for the next week; does that lower the morning highs?

Other things to consider:
What insulin(s) are you using? Have you changed it/them in recent years?
What are the rest of your daytime levels like? Do you inject/bolus to lower a high blood glucose result in the 4 hours before bed?
Have you changed anything in your life to have led to these morning highs? (e.g. new job/new love life/breakup, etc.)

Good luck... and keep us posted.

 

[dhanasvi]

Hi. I was facing the same issues 2 years back. Finally I switched over to the insulin pump fron the shots. Now I have much better control. To say almost perfect. Your post just reminded me of the old days
:smile:
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[Ausra]

Im like this currently too,

No matter what levels i go to bed with, in the morning im waking up with 13,14,15+

Its getting me down too

You might need more of the long acting insulin, the one that keeps you going for longer
Quick acting insulin works for 3-5 hours , so after it finishes it's all up to the long acting insulin.
Try a carb free meal. Make sure you have good levels before eating and if it spikes after carb free meal (3 hours after meal the Bg should be around 8.0) you need more of long acting insulin.

 

[Emzie star]

Thanks guys it I feel so much better knowing I am not alone here. I went to the DSN and she was great talked about a lot talked about a lot that was mentioned on here so we are trying a few things but I also collect my pump yesterday and I will be attached and working with it for the firat tome on 25th June so I hope this will help things even more going by what everyone is saying the pump helped with management a lot. Thanks again guys and soooo glad I joined the forum now think I would have had a full breakdown with this. :grin:

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[Switch2501]

Glad we could help!


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