1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

help! T1 teen, need a little help

Discussion in 'Children & Teens' started by icylilies, Nov 20, 2012.

  1. icylilies

    icylilies · Member

    Messages:
    20
    Likes Received:
    0
    Trophy Points:
    41
    Hi all,
    I have come to ask for some help. Last summer i was diagnosed T1 and about 4weeks later i restarted school again. I'm very sensitive to insulin, my nurse says my body behaves like a 5year old T1 lol, so i was up and dowm everywhere. It was a frustrating 3months. At christmas i was quickly pushed onto Lantus and a few weeks later I was reffered to great ormond street with chronic fatigue syndrome! It began to ruin me, i never went out, missed clubs continuously, left behind in school etc etc. It was unbelievably frustrating. 3months ago i had a massive argument with my diabetic team, my mum had to leave the meeting because she was too upset. The reason for this argument was I was sure my lantus was the reason, they kept denying it and finally gave in. They let me return to.novo-mix, thankfully I feel a lot better.
    But with that new things have risen. I started school and it was okay, i done a lot of exams lately, got A* and A's! But all the stress has slowly crept up on me :S
    My last meeting with my nurse she said "I CHOSE this so i have to Deal with it and do it myself," i know i chose it and theres significant improvement from my 11 Hb1ac to at 7.4 in free months! I was discharged from great ormond street Nd so much healthier! But they are adamant that it is nothing to do with the lantus.

    This has all just added to the pile of stress. I find it hrd to socialise with my friends and i feel a burden to them all the time. I miss insulin and my levels are perfect, it annoys me because i know i should. Mentally my mind creates an illusion of servere pain when i inject qnd its really really painful!

    I need some advice on how i should carry out my insulin. On a 22units overnight and day injection, which isnt difficul i knoe!

    My mums depressed, theres pressure from school, i dont have any heating in my room which is an extension off the back of the house and have to sleep with two blankets, i get frustrated when tidying up and im really unorganized so everything js a mess.
    I never see my friends. Ever..i never go out never invited anywhere. No one wants to go out with me. All my friends have like close close friends and i just float around, its like they take turns babysitting me.

    Im frustrated and idk how to sort myself out.
     
  2. elainechi

    elainechi · Well-Known Member

    Messages:
    249
    Likes Received:
    0
    Trophy Points:
    36
    wow brilliant for getting your hba1c down........so what you taking novamix twice a day??????. you need to speak to someone about how you feel...do you get free counselling at school or they can give you info whete to get it....don.t know about the lantus but i do know young people need support and this is lacking in the nhs.........you are doing so well and i hope you feel happier soon and hugs to your mum too xxxxx
     
  3. Spearmint

    Spearmint · Well-Known Member

    Messages:
    244
    Likes Received:
    8
    Trophy Points:
    38
    My daughter has suffered from CFS for the last year so i feel for you.

    Lantus is not the only background insulin available so maybe it just didn't suit your body's needs.
    I had my daughter changed from Levemir to Insulatard after a year of erratic levels and that made a huge difference but didn't solve all the problems completely!
    She started on a pump 3.5 weeks ago and she is like a different child now.
     
  4. Gardenqueen

    Gardenqueen · Newbie

    Messages:
    3
    Likes Received:
    0
    Trophy Points:
    21
    Hello there, fab hba1c so don't despair you are doing something right. I am a mum to a 15 year old and if you looked at his record book you would say he was badly controlled as he swings high and low all the time. These swings do affect his mood and hormones and exam stress do not help. We do not carbohydrate count despite being asked to. We guesstimate and have our own system. Our diabetic team think we're fab because whatever we are doing we are doing right as we always have good hba1c's. I think what i am trying to say is that, you are the one with diabetes, you know how your body feels and you obviously are keen to take control. The hospital team are there to advise and support, looks a bit dubious in your case. You have obviously lost confidence in your support network - will you soon transfer to the adult team? You can always discuss with your gp - remember your gp pays for your hospital care. Whatever you decide to do with your insulin regieme remember it is your choice. I would love my son to have a pump but he is adamant that he doesn't want anything attached to him reminding him he has diabetes. I respect that decision and would never dream of making him change just to please me. He has to live with this life long condition, i am just the person who checks his sugars in the middle of the night after he's been to a party! I know my place !
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook