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Hi Type 1.5 diagnosed December 2010!!

Discussion in 'Type 1.5/LADA Diabetes' started by onthegow, Aug 27, 2012.

  1. onthegow

    onthegow · Well-Known Member

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    Hi I have now been diagnosed with TYPE 1.5, but the NHS stated I am TYPE 1, its a matter of time for my body to stop producing insulin!!!

    The start 2010 diagnosed in July with TYPE 2 after having a urine test at the DR's. I had been feeling ill with a urine infection for 7 days and could not take the pain anymore so went to the DR's.

    The DR was very much well i'll do a urine test just routine ( very dismissive that I was feeling the way I was) anyway he turned around and said off to the hospital emergency blood test!! shock what I was thinking, He then did explain he thinks I have diabetes sugar in the urine. anyway 3 days later confirmed TYPE 2. I am ten stone soaking wet fit build and have been fit most of my life with sport etc etc. This was not happening to me.

    Anyway to please the DR etc I changed my diet and things went from bad to worse.

    The introduction to the nurse for check ups and the like, lovely person but when I was saying I felt worse now than before and I had been feeling ill for some years, tired, thirsty, irritable ( but I am male, and we are irritable from time to time she said) the nurse said I was going through an emotional change. I went away and thought give it all I have to change, YES nothing changed, I went back for my follow up and explained to the nurse how I was feeling, what happened next really bothered me, The nurse said I was depressed from the news and a script for anti depression tablets would get me right. My god I hit the roof, yes the nurse said see what I mean, your reaction is not normal. Anyway I asked to see a DR she said I am the specialist nurse for diabetes the DR will only confirm what I have diagnosed, she went through the procedure of my TYPE 2 diabetes etc etc, ( to be honest I do not recall much after her saying I was depressed) The nurse eventually gave me a DR's appointment to get the happy pills.

    DR's appointment, I had 2 days to wait, strange I had to wait so long if I was depressed but hey by the by. I walked in to the DR's officer having been utterly dismayed for the reason I was there and the first thing I said was I am not depressed, all I want is for someone to listen to me about the way I feel ( ill this is not depressed!!) The DR said I will send you to the hospital... to see the specialist...

    Thank god he did 5 days for the appointment, I took one step into the room and the consultant said YOU are never TYPE 2 and certainly not depressed ( he was obviously forewarned ) he said I do believe you are TYPE 1 and I have a simple test to sort this out. A sigh of relief finally someone who actually read my file. next morning fasting blood check followed by a visit to a nurse!!! you can imagine my thought after my last encounter! no she was brill and cannot praise her enough, she put me on novo 30 ( I think) sent away with my worse fear of injections daily but only twice a day so not to bad.

    3 months into the treatment and it was ok, I felt ok or as well as I could, and then infections, urine infections every week for the next two months, back to the hospital because they said I was TYPE 1.5 and because of my diagnosis and treatment at the DR's they would keep me.... I am so lucky they did.

    anyway back to the treatment the nurse changed my treatment to novo rapid and novo 30 the rapid to back up the novo 30. 3 months fine again and then the infections mood swings, worse than ever. this may have been also contributed by the lack of dealing with the diabetes. I tried and almost got to the acceptance but started all over again.

    next visit after a long 2 more months of upsetting the apple cart at home, those of you who have experienced the highs and lows of diabetes will know what I mean, To be honest I am embarrassed about the way I behave from time to time, I know we all get little tired and cranky but I am ashamed. Anyway back to the story I am now put on BASAL BOLUS, LEVIMIR in the evening to cover the background stuff and novo rapid for for meals. all good.

    next back to the DR's for another infection and I started to get issues with receptionist staff wanting to know what why when before they would give me an appointment, I asked did I have to tell them they said no so I said I don't want to, Maybe I should not have done this. anyway lots of issues etc so moved DR's. Moved DR's and more issues of what I could and could not have and how much, I work long shifts and needed to have my supplies to hand, The DR from the new surgery called me to say he will only prescribe one box of strips at a time etc etc, a credit to my hospital nurse she called them and sorted it out. What bothers me is that the DVLA and every other agency want to put conditions on diabetics but when it comes to putting a solution in place to sort the conditions out they all run away!!

    2012 came and I got a few illnesses off work the lot ( I don't take time from work) 4 weeks of Feb ill, had lots going on in my life other than illness but that another story. on off infections up and down sugar readings high as 26+ and a couple of lows -4.

    I felt I do not want to change again and waiting to see the nurse in OCT I am determined to go at least a year on one method or the way I see it I will run out of options. In the last two months I thought I had it sorted then the weather changed and my sugars are like a yo yo.

    I have tried to eat the same things sleep the same time work shifts allowing etc, but nothing seems to work, I have read somethings on here today and it seems most people get some control at some point. I am sure it will come and further discussion with diabetic nurse in OCT hopefully will see another change.

    I think I have accepted my condition but my nearest and dearest will probably disagree. And again being honest they are correct, I do try my best but cannot seem to get to that acceptance and happy stage! It nearly 2 years now since I have been diagnosed and my wife bless her encourages me to speak to other diabetics to get some perspective ( she thinks speaking to like minded people will show me others have gone through this ) My wife and kids are outstanding and again as described above when I am irritable I end up hating myself and cannot seem to always apologise even though I know I should. And to top it all off work is a pain, what with you can't do this and that but I am to tired to go into detail I have a lid on it for now.

    Well now I have got that off my chest any advice, sorry for the long and what must seem like a poor me write up but it needed to be said. ( And just for the record I am a little hacked off but not by any stretch of the imagination a poor me person no matter how this comes across LOL )

    thanks for taking the time to read this.
     
  2. dawnmc

    dawnmc Type 2 · Well-Known Member

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    Hi onthegow, welcome to the forum. Nope you are not alone, nd this site will arm you with more info than you can cope with all at once. Take time to look around and read, educate etc.
    Good luck.
     
  3. angieG

    angieG Type 1 · Well-Known Member

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    Hi onthegow,
    Welcome.
    Your story is pretty much the same as mine.
    Diagnosed type 2 November 2010. Fine for a year on just Metformin, then the levels started to rise.
    After getting to the full dose of 3 tablets the Doctor finally referred me to a Consultant who tested and has concluded I am really a type 1 and I have now been on insulin for nearly 3 weeks. Levels getting much better and I feel so happier and fitter.

    Regards
    Angie
     
  4. binney

    binney Type 1 · Active Member

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    Hi sorry to hear you have had such a bad time of it since your diagnosis,it shouldnt be that difficult to get the right care that you so deserved and no wonder you have been feeling angry,frustrated and upset about such a life changing situation.Its such a shame that you havn't had the support you need to make the many adjustments to your life that having Diabetes requires.Considering you work shifts and have the responsibility of a home and family you shouldnt be so hard on yourself as you have made it through 2 difficult years since diagnosis,so well done you!Your wife is so right about getting support from like minded people,this is a great site to get all the support you could ever wish for.I have recently had problems myself and found so much support and kindness here which has realy helped,so I truly hope you will to.Having been a Type 1 for 24 years and lived the roller coaster life it brings the one thing I must tell you is what my consultant told me at diagnosis" you must control it,dont let it control you". So that does mean testing alot,but its worth it because that way you can be more in control,my other bit of advice is knowledge is power so the more you can gain about this complex condition the better things will be.If you ever need support to get through the bad times just come here,where you will get all the help you need and never have to go through it alone.Take care
    Binney
     
  5. onthegow

    onthegow · Well-Known Member

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    Hi all who have replied. Thanks for your kind words and help. I just need to put it in place now to give my family a rest from my yo-yo effect.
     
  6. Sanober

    Sanober · Well-Known Member

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    Hello there, you will find quite a few of us kicking about here, so please keep posting.

    I was diagnosed properly last November (you can search under my name for the sad sorry saga up to my diagnosis if you want)

    I too was told T2 initially and normal weight, went from eating healthy, to losing weight, pain, nausea, was so tired/peeing/irritable (shouted at my boss a few times...) over nearly a year. This forum has been a great support to me and although not on it as much I still definitely need it!

    Diabetes can be annoying and I still have my down days, (getting tested for thyroid currently) a simple cold knocks me right out and I have to take off work but I feel that since getting the right insulin balance (trust me there are *** days!) it has actually improved my post exercise recovery and not getting anywhere nearly as much pain and stiffness :D

    Time and patience and prioritising are the key I feel personally. The biggest thing I learned was there is simply NO WAY I can get to grips with this illness at the same time and coming to this forum was the best thing I did since the doc told me I had sugar in my urine...

    Good luck to you, you will do just great I know it!
     
  7. onthegow

    onthegow · Well-Known Member

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  8. phoenix

    phoenix Type 1 · Expert

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    There are a fair number of us on here.
    I was originally diagnosed with depression, gave up my job. Moved country,then realised my glucose levels were high.(filched testing strip from pregnant daughter) Self diagnosed with T2, but eventually ended up with DKA and a T1 (LADA) diagnosis.,
    Seven years later, I feel good. I'm in good health now, though have regrets about my career.
    It's controllable, I don't feel bad and have been able to defy things by running marathons and equally 'stupid' things.(I'm now 60)
    I don't know the future but have good control and am putting it off for as long as possible.
     
  9. smidge

    smidge LADA · Well-Known Member

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    Hey Onthegow!

    I'm another who was originally misdiagnosed Type 2 and eventually re-diagnosed Type 1 (LADA). Slim, never been overweight, no family diabetes history, early 40s etc etc etc. I ended up controlling Type 1 diabetes without insulin and with only diet and exercise for a year, losing weight continually until I was really ill and BGs were really high. Complete nightmare, so i know exactly how you feel. I've been on insulin for two years now - first on intermeiate acting only and then very swiftly with rapid-acting added. I think the medical world is just very bad at spotting LADA. There are quite a few of us on here with diagnosis horror stories, so don't feel alone! Stick around and learn - this forum really is invaluable.

    Take care

    Smidge
     
  10. onthegow

    onthegow · Well-Known Member

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    My wife is Amway right. She said to speak to others. Thanks very much. My frustration is that frustration. One min im ok next feel all over the place. I am not patient so hence frustration. I need a hobby other than t1. Lol thanks again everyone. Ill let my wife know that she knows best.
     
  11. onthegow

    onthegow · Well-Known Member

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    9 months on from my first post.
    Well have faith is what I should have been listening too.
    I am feeeeeeling gooooooood.
    Got the work shifts sorted for now and although work has been a huge pain in the rear end none of it matters because I feeeeeelllll goooood. Sugars not always spot on but mostly and some ups and downs but compared to last year ill take how I'm feeling now over that any day.
    I am on here also trying to help others. Love this site like minded people is the way forward.
    Than you


    Sent from the Diabetes Forum App
     
  12. angieG

    angieG Type 1 · Well-Known Member

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    Hi onthegow,

    So pleased you have got to grips with it all now and life is good.
    You have come a long way in the 9 months and as you say your experience will help others just starting out on that journey.
    We all will have days when things don't go quite to plan and we get the ups and downs but if the overall results are good then it makes all the hassle worthwhile.
    Keep up the good work
    Angie
     
  13. onthegow

    onthegow · Well-Known Member

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    Thank you all for your support. All good bit had unexplained high 18.8 today measured carbs and hey it's up. Ah well like everyone says ups and downs. But not going to let it get to me. Cheers.
     
  14. elaine77

    elaine77 · Well-Known Member

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    Hey I'm the same, normal weight, no family history originally diagnosed as type 2 due to having had GD a couple years ago but then blood tests confirmed I am positive for GAD65 antibody so have been told will need insulin eventually :-( only using Metformin at the moment nd rly rly hoping it will stay like that for a long time yet as im only 26 :-(


    Diagnosed with GD in 2010, Completely disappeared postpartum. Re-diagnosed December 2012 with type 1.5 diabetes, age 26, BMI 23 currently controlled by only Metformin, 500mg twice a day.
     
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