Hi I have now been diagnosed with TYPE 1.5, but the NHS stated I am TYPE 1, its a matter of time for my body to stop producing insulin!!!
The start 2010 diagnosed in July with TYPE 2 after having a urine test at the DR's. I had been feeling ill with a urine infection for 7 days and could not take the pain anymore so went to the DR's.
The DR was very much well i'll do a urine test just routine ( very dismissive that I was feeling the way I was) anyway he turned around and said off to the hospital emergency blood test!! shock what I was thinking, He then did explain he thinks I have diabetes sugar in the urine. anyway 3 days later confirmed TYPE 2. I am ten stone soaking wet fit build and have been fit most of my life with sport etc etc. This was not happening to me.
Anyway to please the DR etc I changed my diet and things went from bad to worse.
The introduction to the nurse for check ups and the like, lovely person but when I was saying I felt worse now than before and I had been feeling ill for some years, tired, thirsty, irritable ( but I am male, and we are irritable from time to time she said) the nurse said I was going through an emotional change. I went away and thought give it all I have to change, YES nothing changed, I went back for my follow up and explained to the nurse how I was feeling, what happened next really bothered me, The nurse said I was depressed from the news and a script for anti depression tablets would get me right. My god I hit the roof, yes the nurse said see what I mean, your reaction is not normal. Anyway I asked to see a DR she said I am the specialist nurse for diabetes the DR will only confirm what I have diagnosed, she went through the procedure of my TYPE 2 diabetes etc etc, ( to be honest I do not recall much after her saying I was depressed) The nurse eventually gave me a DR's appointment to get the happy pills.
DR's appointment, I had 2 days to wait, strange I had to wait so long if I was depressed but hey by the by. I walked in to the DR's officer having been utterly dismayed for the reason I was there and the first thing I said was I am not depressed, all I want is for someone to listen to me about the way I feel ( ill this is not depressed!!) The DR said I will send you to the hospital... to see the specialist...
Thank god he did 5 days for the appointment, I took one step into the room and the consultant said YOU are never TYPE 2 and certainly not depressed ( he was obviously forewarned ) he said I do believe you are TYPE 1 and I have a simple test to sort this out. A sigh of relief finally someone who actually read my file. next morning fasting blood check followed by a visit to a nurse!!! you can imagine my thought after my last encounter! no she was brill and cannot praise her enough, she put me on novo 30 ( I think) sent away with my worse fear of injections daily but only twice a day so not to bad.
3 months into the treatment and it was ok, I felt ok or as well as I could, and then infections, urine infections every week for the next two months, back to the hospital because they said I was TYPE 1.5 and because of my diagnosis and treatment at the DR's they would keep me.... I am so lucky they did.
anyway back to the treatment the nurse changed my treatment to novo rapid and novo 30 the rapid to back up the novo 30. 3 months fine again and then the infections mood swings, worse than ever. this may have been also contributed by the lack of dealing with the diabetes. I tried and almost got to the acceptance but started all over again.
next visit after a long 2 more months of upsetting the apple cart at home, those of you who have experienced the highs and lows of diabetes will know what I mean, To be honest I am embarrassed about the way I behave from time to time, I know we all get little tired and cranky but I am ashamed. Anyway back to the story I am now put on BASAL BOLUS, LEVIMIR in the evening to cover the background stuff and novo rapid for for meals. all good.
next back to the DR's for another infection and I started to get issues with receptionist staff wanting to know what why when before they would give me an appointment, I asked did I have to tell them they said no so I said I don't want to, Maybe I should not have done this. anyway lots of issues etc so moved DR's. Moved DR's and more issues of what I could and could not have and how much, I work long shifts and needed to have my supplies to hand, The DR from the new surgery called me to say he will only prescribe one box of strips at a time etc etc, a credit to my hospital nurse she called them and sorted it out. What bothers me is that the DVLA and every other agency want to put conditions on diabetics but when it comes to putting a solution in place to sort the conditions out they all run away!!
2012 came and I got a few illnesses off work the lot ( I don't take time from work) 4 weeks of Feb ill, had lots going on in my life other than illness but that another story. on off infections up and down sugar readings high as 26+ and a couple of lows -4.
I felt I do not want to change again and waiting to see the nurse in OCT I am determined to go at least a year on one method or the way I see it I will run out of options. In the last two months I thought I had it sorted then the weather changed and my sugars are like a yo yo.
I have tried to eat the same things sleep the same time work shifts allowing etc, but nothing seems to work, I have read somethings on here today and it seems most people get some control at some point. I am sure it will come and further discussion with diabetic nurse in OCT hopefully will see another change.
I think I have accepted my condition but my nearest and dearest will probably disagree. And again being honest they are correct, I do try my best but cannot seem to get to that acceptance and happy stage! It nearly 2 years now since I have been diagnosed and my wife bless her encourages me to speak to other diabetics to get some perspective ( she thinks speaking to like minded people will show me others have gone through this ) My wife and kids are outstanding and again as described above when I am irritable I end up hating myself and cannot seem to always apologise even though I know I should. And to top it all off work is a pain, what with you can't do this and that but I am to tired to go into detail I have a lid on it for now.
Well now I have got that off my chest any advice, sorry for the long and what must seem like a poor me write up but it needed to be said. ( And just for the record I am a little hacked off but not by any stretch of the imagination a poor me person no matter how this comes across LOL )
thanks for taking the time to read this.
The start 2010 diagnosed in July with TYPE 2 after having a urine test at the DR's. I had been feeling ill with a urine infection for 7 days and could not take the pain anymore so went to the DR's.
The DR was very much well i'll do a urine test just routine ( very dismissive that I was feeling the way I was) anyway he turned around and said off to the hospital emergency blood test!! shock what I was thinking, He then did explain he thinks I have diabetes sugar in the urine. anyway 3 days later confirmed TYPE 2. I am ten stone soaking wet fit build and have been fit most of my life with sport etc etc. This was not happening to me.
Anyway to please the DR etc I changed my diet and things went from bad to worse.
The introduction to the nurse for check ups and the like, lovely person but when I was saying I felt worse now than before and I had been feeling ill for some years, tired, thirsty, irritable ( but I am male, and we are irritable from time to time she said) the nurse said I was going through an emotional change. I went away and thought give it all I have to change, YES nothing changed, I went back for my follow up and explained to the nurse how I was feeling, what happened next really bothered me, The nurse said I was depressed from the news and a script for anti depression tablets would get me right. My god I hit the roof, yes the nurse said see what I mean, your reaction is not normal. Anyway I asked to see a DR she said I am the specialist nurse for diabetes the DR will only confirm what I have diagnosed, she went through the procedure of my TYPE 2 diabetes etc etc, ( to be honest I do not recall much after her saying I was depressed) The nurse eventually gave me a DR's appointment to get the happy pills.
DR's appointment, I had 2 days to wait, strange I had to wait so long if I was depressed but hey by the by. I walked in to the DR's officer having been utterly dismayed for the reason I was there and the first thing I said was I am not depressed, all I want is for someone to listen to me about the way I feel ( ill this is not depressed!!) The DR said I will send you to the hospital... to see the specialist...
Thank god he did 5 days for the appointment, I took one step into the room and the consultant said YOU are never TYPE 2 and certainly not depressed ( he was obviously forewarned ) he said I do believe you are TYPE 1 and I have a simple test to sort this out. A sigh of relief finally someone who actually read my file. next morning fasting blood check followed by a visit to a nurse!!! you can imagine my thought after my last encounter! no she was brill and cannot praise her enough, she put me on novo 30 ( I think) sent away with my worse fear of injections daily but only twice a day so not to bad.
3 months into the treatment and it was ok, I felt ok or as well as I could, and then infections, urine infections every week for the next two months, back to the hospital because they said I was TYPE 1.5 and because of my diagnosis and treatment at the DR's they would keep me.... I am so lucky they did.
anyway back to the treatment the nurse changed my treatment to novo rapid and novo 30 the rapid to back up the novo 30. 3 months fine again and then the infections mood swings, worse than ever. this may have been also contributed by the lack of dealing with the diabetes. I tried and almost got to the acceptance but started all over again.
next visit after a long 2 more months of upsetting the apple cart at home, those of you who have experienced the highs and lows of diabetes will know what I mean, To be honest I am embarrassed about the way I behave from time to time, I know we all get little tired and cranky but I am ashamed. Anyway back to the story I am now put on BASAL BOLUS, LEVIMIR in the evening to cover the background stuff and novo rapid for for meals. all good.
next back to the DR's for another infection and I started to get issues with receptionist staff wanting to know what why when before they would give me an appointment, I asked did I have to tell them they said no so I said I don't want to, Maybe I should not have done this. anyway lots of issues etc so moved DR's. Moved DR's and more issues of what I could and could not have and how much, I work long shifts and needed to have my supplies to hand, The DR from the new surgery called me to say he will only prescribe one box of strips at a time etc etc, a credit to my hospital nurse she called them and sorted it out. What bothers me is that the DVLA and every other agency want to put conditions on diabetics but when it comes to putting a solution in place to sort the conditions out they all run away!!
2012 came and I got a few illnesses off work the lot ( I don't take time from work) 4 weeks of Feb ill, had lots going on in my life other than illness but that another story. on off infections up and down sugar readings high as 26+ and a couple of lows -4.
I felt I do not want to change again and waiting to see the nurse in OCT I am determined to go at least a year on one method or the way I see it I will run out of options. In the last two months I thought I had it sorted then the weather changed and my sugars are like a yo yo.
I have tried to eat the same things sleep the same time work shifts allowing etc, but nothing seems to work, I have read somethings on here today and it seems most people get some control at some point. I am sure it will come and further discussion with diabetic nurse in OCT hopefully will see another change.
I think I have accepted my condition but my nearest and dearest will probably disagree. And again being honest they are correct, I do try my best but cannot seem to get to that acceptance and happy stage! It nearly 2 years now since I have been diagnosed and my wife bless her encourages me to speak to other diabetics to get some perspective ( she thinks speaking to like minded people will show me others have gone through this ) My wife and kids are outstanding and again as described above when I am irritable I end up hating myself and cannot seem to always apologise even though I know I should. And to top it all off work is a pain, what with you can't do this and that but I am to tired to go into detail I have a lid on it for now.
Well now I have got that off my chest any advice, sorry for the long and what must seem like a poor me write up but it needed to be said. ( And just for the record I am a little hacked off but not by any stretch of the imagination a poor me person no matter how this comes across LOL )
thanks for taking the time to read this.
