1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Hospital appointment What to ask

Discussion in 'Type 1 Diabetes' started by Smiler99, Oct 5, 2021.

  1. Smiler99

    Smiler99 Type 1 · Active Member

    Messages:
    33
    Likes Received:
    11
    Trophy Points:
    28
    I have recently been diagnosed with type1 end of August
    I went through the shock tears and all emotions, one of my family thought I should be on anti depression tablets personally I just need time to get over the shock
    So I have a appointment on 19th with diabetics team, what do I ask? Or what should I expect?
     
    • Hug Hug x 4
  2. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

    Messages:
    3,092
    Likes Received:
    1,863
    Trophy Points:
    198
    Glad that your are in the system at least and can make use of the time.
    To expect:
    Routinely you will get blood test for hba1c (your average bg readings), blood lipids, liver function etc. plus urine sample for kidney function .
    They should ask how your feet and eyes checks are (you will be on an annual check )
    They won't be expecting complications but the aim of these tests is to sport the possible complications and help you prevent them.
    They may ask:
    How much insulin are you using (basal and bolus)?
    What are your readings for blood gulucose? Traditionally these were logged in a paper diary but the blood testing tech is getting better enabling more spohisticated ways of reading bgs and of analysing the results.
    To this point you could ask about Freestyle libre (NHS provided flash glucose monitoring) particularly if you are good at counting carbs etc. but still suffer frequent lows or play a lot of sport etc. The funding for these things is rationed so you need to be a little pushy!
    For practical support re dosing you may find the diabetic nurse is the best person so come armed with a list of when you are struggling and be aware that none of us do this perfectly after decades of type 1.
     
    • Like Like x 5
  3. KK123

    KK123 Type 1 · Well-Known Member

    Messages:
    3,913
    Likes Received:
    2,471
    Trophy Points:
    198
    Hi there and welcome, I agree with Nicole above. How have you been doing since diagnosis, what is your current routine, how have your numbers been, have any specific issues cropped up? If you are able to tell us that it might help us to help you with some questions to ask the hospital. Of course you are depressed at such a diagnosis, that's natural when you've suddenly been told you have a life changing condition. I am glad you have recognised that there is a grieving process following this and it does not automatically mean that you should be on anti depressant tablets. I wonder how your family thought you should be reacting to this, families mean well but nobody knows what it's like unless they are the ones experiencing it.
     
    • Agree Agree x 3
  4. JMK1954

    JMK1954 Type 1 · Well-Known Member

    Messages:
    424
    Likes Received:
    233
    Trophy Points:
    83
    At a hospital clinic appointment, they are also likely to weigh you. If you have scales at home, it might be worthwhile checking your weight before you go. Hospital scales can be massively inaccurate or spot on. Most recently-diagnosed type 1 people tend to put back any weight they have lost pretty rapidly, so you may find your weight has increased.
    I think we can all understand why you have been feeling down. There would be something seriously wrong with anyone who thought a type 1 diagnosis was good news. Try to ignore people who aren't helpful in what they say or do. Living with type 1 is not always straightforward, but you will get better at managing things. Good luck.
     
    • Like Like x 3
    #4 JMK1954, Oct 5, 2021 at 10:31 AM
    Last edited: Oct 5, 2021
  5. Glucobabu

    Glucobabu Type 1 · Well-Known Member

    Messages:
    222
    Likes Received:
    88
    Trophy Points:
    88
    Please be assured that things will get better. Stay on this forum for support and valuable information on all aspects of life with Type1.
     
    • Agree Agree x 2
    • Like Like x 1
    • Friendly Friendly x 1
  6. Smiler99

    Smiler99 Type 1 · Active Member

    Messages:
    33
    Likes Received:
    11
    Trophy Points:
    28
    I have had my blood done 4 or 5 times for my kidney function and so on this is with a diabetes consultant
     
  7. Smiler99

    Smiler99 Type 1 · Active Member

    Messages:
    33
    Likes Received:
    11
    Trophy Points:
    28
    It was my partner family member I don't have a family network, your right about the grieving process I am okay now I have had good readings
    Thank you
     
  8. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

    Messages:
    3,092
    Likes Received:
    1,863
    Trophy Points:
    198
    That's one less test to get done then. I would expect next lot to be 3-6 months but worth checking what to expect and best of luck with the consultant.
     
    • Like Like x 1
  9. Smiler99

    Smiler99 Type 1 · Active Member

    Messages:
    33
    Likes Received:
    11
    Trophy Points:
    28
    Thank you
     
  10. Juicyj

    Juicyj Type 1 · Expert
    Retired Moderator

    Messages:
    8,487
    Likes Received:
    6,753
    Trophy Points:
    198
    Welcome to the forum :)

    Yes it's a huge shock and with it comes many emotions, grief, depression, anger, denial, all of these can be experienced together or alone in stages as you process the information and learn to adapt but the most important one is the acceptance stage, which is where you start to adopt the behaviours required to cope with type 1 and living with the condition. It's a bumpy road so don't be afraid to ask for help or support ever, your nurse will hold your hand through the early days too so it's good to keep a blood glucose diary and track doses and glucose readings so any patterns can be identified and acted on if adjustments to insulin dosing is required. We do become the experts in our condition though, living with this 24/7 means you're in the driving seat as you can see what's going on so it's important you communicate well with your team. I remember very well my diagnosis so happy to help with any questions :)
     
    • Like Like x 1
  11. SueJB

    SueJB Type 1 · Well-Known Member

    Messages:
    3,288
    Likes Received:
    4,027
    Trophy Points:
    198
    Hi @Smiler99, being diagnosed as T1 shocked me rigid, sent me raging at people, crying and generally being and feeling horrible. Then when I realised that the diagnosis was actually a good thing. I understood there was a problem and started to get to grips with it, insulin and food. It isn't easy all the time but I've gone back to my normal nice person now. Glad to hear you're stabilising.

    Others have covered what to expect

    What to ask really depends on what you want to know but I'd want to ask about
    1. Blood glucose control: has it HbA1c gone up/down, is it in an acceptable range?
    2. Getting on a DAFNE course
    3. The possibility of getting Freestyle Libre

    This forum helped me a lot
     
    • Like Like x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook