How can background retinopathy turn into significant retinopathy in 7 months

Soph895

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67
Type of diabetes
Type 2
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Non-insulin injectable medication (incretin mimetics)
I had my diabetic eye screening last June and there was background retinopathy. Today I had to go hospital after a routine eye test picked more damage. Apparently I now have significant retinopathy and macular edema. What I can’t get my head round is that my sugars have been well controlled in the last 6 months. I now have to have laser and injections.
I explained this to the doctor today and she didn’t even answer my question.
The only thing that change ld was that I was out on mounjaro injections back in may last year.
 

Antje77

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I'm so sorry your eyes have gotten worse right after greatly improving your diabetes.

It's not fair, but this is a thing, quickly improving blood glucose can worsen retinopathy. https://pmc.ncbi.nlm.nih.gov/articles/PMC6587545/

I hope the laser and injection will solve the problem. Long time, your improvents should help preventing your eyes getting worse.
 

Grant_Vicat

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@Soph895 I agree completely with @Antje77 's comment above in every respect. Judging by your other posting "Will my eyes get better....?" it shows there was already a problem spotted by the optician. Even after my eyes were lasered I was warned that I should keep as tight a control as possible, but that it wouldn't be a guarantee of no further problem. The thing is that it is impossible to be absolute in predicting. All I can say is that preventative measures are being taken for your eyes now and this will put you in better position to give your eyes the best chance. I hope you can overcome the disheartening diagnosis and continue with determination. I hope all goes well.
 

Soph895

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Messages
67
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
@Soph895 I agree completely with @Antje77 's comment above in every respect. Judging by your other posting "Will my eyes get better....?" it shows there was already a problem spotted by the optician. Even after my eyes were lasered I was warned that I should keep as tight a control as possible, but that it wouldn't be a guarantee of no further problem. The thing is that it is impossible to be absolute in predicting. All I can say is that preventative measures are being taken for your eyes now and this will put you in better position to give your eyes the best chance. I hope you can overcome the disheartening diagnosis and continue with determination. I hope all goes well.
Thankyou , it’s just a lot to get my head round . My anxiety makes me fear so much about the future, I’m only 29 and now keep thinking I’ll be blind by the time I’m 60. But I’m trying to be positive
 

Soph895

Well-Known Member
Messages
67
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
I'm so sorry your eyes have gotten worse right after greatly improving your diabetes.

It's not fair, but this is a thing, quickly improving blood glucose can worsen retinopathy. https://pmc.ncbi.nlm.nih.gov/articles/PMC6587545/

I hope the laser and injection will solve the problem. Long time, your improvents should help preventing your eyes getting worse.
Thankyou, I really hope so too, i hope my vision gets better once i have the treatment. It’s not terrible right now but there definitely blurry changes. I might even phone the hospital to speak to the diabetic nurse regarding this and my medication just to put my anxiety at ease
 
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Nicola M

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As @Antje77 says improving your control can worsen your eyes (I am one of those people I had an improvement in my HbA1c of over 3%) I was fortunate that I did not need any treatment but even with good control it still took just over 2 years for my eyes to go back to "normal"
 
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Antje77

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Thankyou , it’s just a lot to get my head round . My anxiety makes me fear so much about the future, I’m only 29 and now keep thinking I’ll be blind by the time I’m 60. But I’m trying to be positive
@Grant_Vicat , I think you mentioned somewhere you had diabetic eye problems 40 years ago, improved your blood glucose, and I've seen for myself you function and drive just fine a couple of months ago.
Maybe worth telling your story again?
@Soph895 you improved your BG, so you have every reason to expect you won't go blind, well done!
 
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Grant_Vicat

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Thankyou , it’s just a lot to get my head round . My anxiety makes me fear so much about the future, I’m only 29 and now keep thinking I’ll be blind by the time I’m 60. But I’m trying to be positive
In 1979 the ophthalmologist told me that if I didn't change my lifestyle I would be blind by the time I was 23> Thanks to him we both proved this to be inaccurate! I could say that that stament caused me the most deep depression I have ever experienced. Eyes are tougher than we realise, but obviously not to be treated casually. I also think you live in anage when diagnosis and a suitable treatment is vastly improved. It must have been about 1989 when another ophthalmologist said, "Blimey, it's like looking at a street map of London" while examining one of my treated retinas. I'm glad to say that my vision belies this observation!
 

Grant_Vicat

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@Grant_Vicat , I think you mentioned somewhere you had diabetic eye problems 40 years ago, improved your blood glucose, and I've seen for myself you function and drive just fine a couple of months ago.
Maybe worth telling your story again?
@Soph895 you improved your BG, so you have every reason to expect you won't go blind, well done!
Thank you @ANTJE here is the much more detailed account written in 2009 than the replies I have sent to @Soph895
;
One evening, in my first year at King’s [College, London], I was sitting at my desk, amazingly doing some work, when I was suddenly unable to see out of my right eye. It was as if a bottle of drawing ink had been poured into the eyeball. Various ideas flooded into my imagination, almost as rapidly as the real substance into my sight. Blind panic took control. I ran down Champion Hill and across Denmark Hill, straight into the Hospital, I would guess in under sixty seconds. Arriving at Accident and Emergency, I was greeted by the ubiquitous unsympathetic gaze of a receptionist:
“What’s your problem?”
“I can’t see out of my right eye.”
“Who sent you here?”
“I did.”
“Did you contact your GP?”
“Listen, I’m an outpatient here and I’m diabetic” (magic words).
“Oh, I see, do you know your Hospital Number by any chance?”
“Yes, A*****4.”
“Fantastic. Ah, Mr Vicat. I see from your notes that retinopathy has been noted. I’ll get someone to attend to you.”
A doctor duly appeared and informed me that I had had a haemorrhage and that nothing could be done until it had cleared enough to see what damage had occurred. I was put under the care of Mr **********, a short, wire-rimmed-bepectacled man with whispy grey hair, twinkly beaming eyes and an everlasting supply of Fox’s Glacier Mints stuffed into his white coat. I found this ironic, seeing that the majority of his patients were diabetic! During one of his consultations in my second year he asked me about my life. I told him that I was living in Kensal Rise; that I cycled into King’s College in the Strand every day; that I played squash; and that I drank moderately (I’m sure he didn’t fall for this). His response was that I should stop burn-ups on the Edgeware Road, that I should avoid squash, moderate my alcohol intake, and that I should shun aerobic exercise or anything that would make me red in the face. If I did not heed his words, I would be blind by the time I reached twenty-three.
“Thank you” I said. “Do you realise that in one sentence you have ruled out all the finer points of living?”
To say that I was depressed would be accurate, but somewhat insufficient. What was the point of carrying on in London? Was I likely to experience any of the ambitions I might entertain? Would I ever see my children? Worse still, would I ever have any? Would I ever drive and explore my country, let alone the World? How could I learn any more music? These were just some of the thoughts that spun round in my head, as though my brain had been sucked into a tumble dryer.
 

Soph895

Well-Known Member
Messages
67
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
As @Antje77 says improving your control can worsen your eyes (I am one of those people I had an improvement in my HbA1c of over 3%) I was fortunate that I did not need any treatment but even with good control it still took just over 2 years for my eyes to go back to "normal"
Did you experience blurry vision? It’s so surprising this can happen
 

Soph895

Well-Known Member
Messages
67
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
In 1979 the ophthalmologist told me that if I didn't change my lifestyle I would be blind by the time I was 23> Thanks to him we both proved this to be inaccurate! I could say that that stament caused me the most deep depression I have ever experienced. Eyes are tougher than we realise, but obviously not to be treated casually. I also think you live in anage when diagnosis and a suitable treatment is vastly improved. It must have been about 1989 when another ophthalmologist said, "Blimey, it's like looking at a street map of London" while examining one of my treated retinas. I'm glad to say that my vision belies this observation!
Thanks for sharing, so did your vision come back/improve with treatment? How are you doing now?
 
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Soph895

Well-Known Member
Messages
67
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
@Grant_Vicat , I think you mentioned somewhere you had diabetic eye problems 40 years ago, improved your blood glucose, and I've seen for myself you function and drive just fine a couple of months ago.
Maybe worth telling your story again?
@Soph895 you improved your BG, so you have every reason to expect you won't go blind, well done!
Thankyou, I worked so hard on my self and just don’t want my vision to get worse and hoping it would improve. I do a lot of drawing and designing - part work and part hobby, I would hate for my vision to deteriorate and not do what I enjoy
 
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Grant_Vicat

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Thanks for sharing, so did your vision come back/improve with treatment? How are you doing now?
I have very good visual acuity in both eyes. If I look up at a bright blue sky, I am then aware of some scarring, but it is not as inasive as you might think. I posted in answer to @Antje77 's suggestion above and could have added that I still draw, paint, learn music, read, enjoy birdwatching, and am not as restricted as that ophthalmologist's advice in 1979 would lead you to believe. I got married in 1982, have a 40 year-old daughter and 13 year-old granddaughter. Life is great. Funnily enough I had the first haemorrhage since 1983 in March last year. This was probably caused by lifting something too heavy and has completely disappeared, like the other ones. It did take 4 months to clear.
 
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Grant_Vicat

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Thank you @ANTJE here is the much more detailed account written in 2009 than the replies I have sent to @Soph895
;
One evening, in my first year at King’s [College, London], I was sitting at my desk, amazingly doing some work, when I was suddenly unable to see out of my right eye. It was as if a bottle of drawing ink had been poured into the eyeball. Various ideas flooded into my imagination, almost as rapidly as the real substance into my sight. Blind panic took control. I ran down Champion Hill and across Denmark Hill, straight into the Hospital, I would guess in under sixty seconds. Arriving at Accident and Emergency, I was greeted by the ubiquitous unsympathetic gaze of a receptionist:
“What’s your problem?”
“I can’t see out of my right eye.”
“Who sent you here?”
“I did.”
“Did you contact your GP?”
“Listen, I’m an outpatient here and I’m diabetic” (magic words).
“Oh, I see, do you know your Hospital Number by any chance?”
“Yes, A*****4.”
“Fantastic. Ah, Mr Vicat. I see from your notes that retinopathy has been noted. I’ll get someone to attend to you.”
A doctor duly appeared and informed me that I had had a haemorrhage and that nothing could be done until it had cleared enough to see what damage had occurred. I was put under the care of Mr **********, a short, wire-rimmed-bepectacled man with whispy grey hair, twinkly beaming eyes and an everlasting supply of Fox’s Glacier Mints stuffed into his white coat. I found this ironic, seeing that the majority of his patients were diabetic! During one of his consultations in my second year he asked me about my life. I told him that I was living in Kensal Rise; that I cycled into King’s College in the Strand every day; that I played squash; and that I drank moderately (I’m sure he didn’t fall for this). His response was that I should stop burn-ups on the Edgeware Road, that I should avoid squash, moderate my alcohol intake, and that I should shun aerobic exercise or anything that would make me red in the face. If I did not heed his words, I would be blind by the time I reached twenty-three.
“Thank you” I said. “Do you realise that in one sentence you have ruled out all the finer points of living?”
To say that I was depressed would be accurate, but somewhat insufficient. What was the point of carrying on in London? Was I likely to experience any of the ambitions I might entertain? Would I ever see my children? Worse still, would I ever have any? Would I ever drive and explore my country, let alone the World? How could I learn any more music? These were just some of the thoughts that spun round in my head, as though my brain had been sucked into a tumble dryer.
Sorry @ANTJE this should be directed to @Antje77
 
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Lakeslover

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Messages
468
Type of diabetes
Type 2
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Insulin
Yes, please speak to your diabetic nurse about Mounjaro. I was told they couldn’t prescribe it to me because I had background retinopathy.
 

Nicola M

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Did you experience blurry vision? It’s so surprising this can happen
I didn't no, I had no idea anything was wrong until I went to my yearly check-up and they then referred me to the Hospital for 3 monthly appointments. I must admit I was scared as I'd never previously had eye issues and no one told me that improving your control could affect your eyes!
 

MrsA2

Expert
Messages
6,758
Type of diabetes
Type 2
Treatment type
Diet only
Did you experience blurry vision? It’s so surprising this can happen
I did, and for quite a few weeks after suddenly going low carb soon after my t2 diagnosis .
I have no medical idea what causes it.
I prefer to look at it as the sugars clearing out of body:)

Lately, since Christmas (4 years later) I've been having blurry eyes again. It might be the carbs I ate and the alcohol I drank but I'm not a professional and am awaiting to see my opthalmologist. I trust them, and would never take a chance with my eyes. I recommend you trust them too.

You've done well to go there so far, now follow on with the rest of it. They only have your interests at heart, and you've done nothing to cause this. Sometimes it just happens. And there's so much they can do