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I have been coeliac since a young child and out of the blue just before the age of 60 had a routine coeliac blood test which showed up I was diabetic with a reading of 99. My gp rang and told me I was highly likely to be type 1 and put me on metformin . He said I would have a dietician appointment and diabetic appointment too. I had one follow up phone call but was not given much information or help from my gp at all. It was 3 months and I went for my next blood test and readings came down to 66 but the metformin was making me feel so unwell I was changed to gliclazide and after starting testing my blood sugars they were all over the place. The gp admitted he had dictated letters but they had not gone off but thankfully my son in laws brother who is type 1 was so helpful and even sent me a libre sensor to try. I had 5 hypos in 1 week and the worse being at 2am in the morning dropping to 3 and I felt awful for a few days after and this is very worrying as I am the carer for my husband who had mixed dementia. After ringing the gp telling them how awful I felt a nurse rang me back and has now agreed to refer me to a consultant and assures me the dietician letter has gone off too. My sugars are so up and down and I must admit it’s been so hard with the coeliac disease as most gluten free foods are laden with added sugars which makes it so hard to find suitable things to eat. I’ve got no energy and just feel pretty low right now but am determined to get on top of this hopefully when I get the right help as I am 4 months down the line now and have had no professional help until this nurse since last week. Has anyone else been left in limbo like me or is it a postcode lottery like everything else.