1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.
  2. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  3. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2019 »
    Dismiss Notice
  4. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

I Have Been Type One For 4 Years But Just Found Out Im Actually Monogenic (mody)

Discussion in 'Diabetes Discussions' started by ailsa12, Aug 27, 2018.

  1. ailsa12

    ailsa12 MODY · Member

    Messages:
    22
    Likes Received:
    8
    Trophy Points:
    43
    so on Friday I was at the hospital to ask about getting a libra and they had the results of my genetic tests and I don't have type one after all. so I have come off insulin, now I have been taken very small doses and have a low carb diet, they have changed me onto diamicron. Today was the first day, im a bit worried that I might end up having to eat much more than I normally do to keep up with the insulin in my system. has anyone got experiance swapping from insulin to diamicron and being low carb?
     
    • Like Like x 1
    • Hug Hug x 1
  2. Carolann13

    Carolann13 Type 1 · Member

    Messages:
    20
    Likes Received:
    12
    Trophy Points:
    43
    Wow, that's great news for you
     
  3. JohnEGreen

    JohnEGreen Other · Expert

    Messages:
    8,910
    Likes Received:
    19,453
    Trophy Points:
    198
    I rated your post with a hug for having such a change foisted on you but if it is in fact good news have a winners star as well.:)
     
  4. _petal_

    _petal_ MODY · Member

    Messages:
    13
    Likes Received:
    7
    Trophy Points:
    43
    I'm also a mody (hnf1a / mody3) and I was also originally diagnosed as Type 1. In my case it took 29 years before my diagnosis was changed, which happened about 5 years ago now.

    I have had 2 attempts at Gliclazide but both times it hasn't worked that well for me, so I've reverted back to insulin.

    It is good being able to take a tablet - I didn't miss the injections - but for me I did have issues with having to more closely match the carb intake to the amount of gliclazide taken, and ensure that the carb intake was always the same for my evening meal (I generally eat once a day). I did find this really inflexible.

    Also, my blood sugar always rises considerably upon waking and the gliclazide never brought my blood sugar levels back down until mid-afternoon. Running at anything between 8 and 14 for those 9 hours wasn't doing me any favours, and insulin works so much better for reducing the morning blood sugar rise.

    I hope you're adjusting ok, it's worth sticking with it for a while to see if it works better for you, and you can always swap back to the insulin if you prefer the flexibility it offers. Good luck!
     
    • Like Like x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook