I'm cursed!

mistee71

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FOOTBALL. MY husband is a sports fanatic and watches everything. Most i can put up with just not football.
ARRRGHHH! :evil:

I swear I'm cursed. Things are always going wrong for me.

Because of the CP and how it affects me and the diabetes i have made a claim for DLA.
Obviously they check with your Dr to make sure your not making things up and making a false claim.
Two days ago when trying to get a repeat perscription i found out that my Dr's haven't been given all the information from the hospital. They had no idea i went into hospital over the easter and on discharge i had been given painkillers to come home with and it's not down that i have CP. After a long discussion with a lady in the dispensary at my surgery she came up with an idea to get my painkillers. She asked if i still had the box the painkillers came in coz it will say on the label where i got them from, great idea except the label on my box was just written on and not printed out. Anyway... i still took it to my GP coz at the end of the day where else am i going to get them from? They were in a proper branded box and my name and instructions were written on them. Lucky for me he didn't doubt me and gave me enough to last a year ( not really but a silly amount).
The thing that worries me now is i know DLA has already written to my Dr and because he hasn't got the info he needs how can he tell them whats wrong with me? He said he will get the secretary to chase the hospital but it might be to late then and the DLA will then think I'm lying.

I also went to see my DSN today and been told that the insulin isn't working and she is gonna try me with metformin as well. If that don't work it's Byetta. Am i right in thinking that Byetta isn't an insulin and shouldn't make you put on weight and i wont have to inform DVLA?
 

Paul1976

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The puzzle that is Asperger syndrome that I still can't fit together.
Byetta WON'T make you gain weight! Quite the opposite in fact as it makes your appetite go through the floor,believe me!! :sick: HOWEVER my levels have dropped on it and you DON'T need to inform DVLA as it doesn't cause Hypo's in itself which is the main reason I'm trialling this.

Hope this helps

Paul
 

mistee71

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FOOTBALL. MY husband is a sports fanatic and watches everything. Most i can put up with just not football.
That dont look good!!!!
does it make you feel sick? I haven't got much of an appetite now but coz of the insulin you have to eat which in my case is riddiculus anyway coz the **** stuff dont work. My levels without eating breakfast and dinner never gets lower than 10. Silly :evil:
 

mistee71

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FOOTBALL. MY husband is a sports fanatic and watches everything. Most i can put up with just not football.
CHRONIC PANCREATITIS
 

WhitbyJet

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Oh mistee your doctor will know of your disability already won't he? Doesn't matter if he doesn't know about your latest medicine or pain killer yet.
In any case where DLA is concerned I think there is am unofficial rule that says to refuse all first time applicants no matter what might be wrong with them!!
Re Byetta I am a bit worried I am no doctor ofcourse but it does state pancreatitis as possible side effects. Surely such drugs shouldn't be prescribed for someone whose gastric system is damaged already?
http://www.adrugrecall.com/byetta/chron ... titis.html
Does insulin not work at all? Can they not increase your dose?
Sorry I don't want to stick in my oar but somehow to me insulin seems safer than byetta?
 

mistee71

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FOOTBALL. MY husband is a sports fanatic and watches everything. Most i can put up with just not football.
If i could just chuck in the towel and walk away i would i have never been so confused with all this business :crazy: . So sick and tired with the lot of them. I dont even think they know what they are talking about anymore and are just as confused as me. The DSN saysI'm insulin resistant and by putting up the dose will only succeed in me putting on weight. Next week she's putting me on metformin with it to see if that makes any difference, failing that she wants to try the byetta. I had a bad time on sitigliptin/januvia because it kicked off the pancreatitis so i think yes maybe byetta will do the same. For 10 days i had to keep a food diary with my bg levels and on a few days i didn't have breakfast or dinner but i still kept taking the insulin. My lowest levels was 9 something ???? None of this makes sence to me. If you dont eat how does your levels stay the same.

I'm only taking my insulin every other day now coz if it's not working why do i need to be taking it especially if all that it is doing is helping me to put weight on?
 
A

Anonymous

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hi Mistee.... are you in pain with the CP??? Coz I know pain puts my BGLs too high usually... without food. Just a thought :wink: I hope you can get on top of all this... what a nuisance for you. re: insulin... have they tried different profile insulins on you yet? All the brands have different profiles.... maybe you just need a different one??? Have they got you on basal and bolus insulins?
 

jopar

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If you are being treated by the consultant at the hospital for your CP/diabetes you could have put them down in your claim, as well as your GP... If they refuse DLA, appeal and include your consultants details...

Also enlist the help of CAB, they are good at helping to fill out DLA's forms, and you stand a greater chance of being successful the first time with their help....

Both Bayetta and Victoza suppress the appetite, as to the CP, I know that there are concerns that using either of these that it increases the risk of CP and also apparently newer concerns are with Victoza might increase the risk of pancreatic cancer! But not sure what happens if you've already got CP, perhaps here it's a case of if nothing else is working, then running the risks of using it, outweighs the risk of not! But your DSN can't prescribe it without running past the consultant so should get plenty of time to ask questions about it..

I think you find because Bayetta and Victoza can induce a hypo that you do need to notify the DVLA etc, but give them a phone they soon let you know if you do or don't...
 

Paul1976

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The puzzle that is Asperger syndrome that I still can't fit together.
jopar said:
I think you find because Bayetta and Victoza can induce a hypo that you do need to notify the DVLA etc, but give them a phone they soon let you know if you do or don't...
Only if taken in conjunction with other pancreas stimulating drugs such as Gliclazide OR if it's used as well as Insulin..OTHERWISE It simply DOESN'T cause Hypo's,according to the byetta website,My endo consultant,2 diabetes specialist nurses and my GP,Oh, and my own experiences with it! :wink:
 

mistee71

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FOOTBALL. MY husband is a sports fanatic and watches everything. Most i can put up with just not football.
Haven't had proper pain with the CP for about 8 weeks now just niggles and a bit of nausea. Not really had an appetite.
I haven't been tried on any other insulin just the humulin which i haven't taken for about 4 days now and levels seem stable around 12 even whether i eat or not. I think the DSN only sees insulin resistance and has probably deceided against trying any other. I am suposed to start metformin 500g once a day with it though.

The DLA side of things... I sent my specialist appointment letter to them already but he cant say anything coz i haven't seen him yet not till the 31st. I just hope the Dr's pull there fingers out and get my diagnosis from the hospital.