Hi and help!
I have a two year old som and desperately want another however I had an extremely difficult first pregnancy with my eyes and also other bizarre happenings!
The very rare and strange things I went through were adrenal insufficiency (undiagnosed until 4 months post partum) which was very debilirating and then third nerve palsy which occurred at 32 weeks. I've been told these things were so rare it's unlikely to occur again. I also have some degree of autonomic neuropathy apparently. however my eyes are the main issue I am worried about.
Because my sugar levels were too high when I discovered I was pregnant, I brought them down very very rapidly, I think it's quite common or is often a huge reason why background retinopathy progresses so quickly. My eyes went through each stage until I lost most vision, ultimately I had a successful vitrectomy and things did improve around 5 months post preg. The other issue I had / have is the macular edema, this has continued two years on and I'm currently getting injections to reduce it (urgh). I can drive and work so it is more than manageable at present, but I'm trying to find out from others whether it's possible to have a second baby with all that has happened. This time I would be planning for it and have a healthy hba1c so there wouldn't be a sudden drop in levels, but unfortunately I do have damaged eyes so hmmm. I had hoped the macular edema would have been more stable / gone by now as I'd like to be in a more stable place before conceiving.
aNY experience of this and your outcomes / advice you've personally been given would be really interesting to me. My endo is happy, but it's all about the eyes really. My main eye doc said its unlikely to occur, but another has said it will definitely get worse - so conflicting views.
Thanks in advance
I have a two year old som and desperately want another however I had an extremely difficult first pregnancy with my eyes and also other bizarre happenings!
The very rare and strange things I went through were adrenal insufficiency (undiagnosed until 4 months post partum) which was very debilirating and then third nerve palsy which occurred at 32 weeks. I've been told these things were so rare it's unlikely to occur again. I also have some degree of autonomic neuropathy apparently. however my eyes are the main issue I am worried about.
Because my sugar levels were too high when I discovered I was pregnant, I brought them down very very rapidly, I think it's quite common or is often a huge reason why background retinopathy progresses so quickly. My eyes went through each stage until I lost most vision, ultimately I had a successful vitrectomy and things did improve around 5 months post preg. The other issue I had / have is the macular edema, this has continued two years on and I'm currently getting injections to reduce it (urgh). I can drive and work so it is more than manageable at present, but I'm trying to find out from others whether it's possible to have a second baby with all that has happened. This time I would be planning for it and have a healthy hba1c so there wouldn't be a sudden drop in levels, but unfortunately I do have damaged eyes so hmmm. I had hoped the macular edema would have been more stable / gone by now as I'd like to be in a more stable place before conceiving.
aNY experience of this and your outcomes / advice you've personally been given would be really interesting to me. My endo is happy, but it's all about the eyes really. My main eye doc said its unlikely to occur, but another has said it will definitely get worse - so conflicting views.
Thanks in advance
Last edited by a moderator:
