- Messages
- 2
- Type of diabetes
- Prefer not to say
- Treatment type
- Diet only
Hi everyone, just looking to join the community, and find some friends who share my condition I suppose. Feeling lonely as I know no one in my real life with diabetes.
My story starts when I was about 12, when I hit puberty basically. I began having extreme low blood sugars, which I would correct by eating up to 5 bowls of Froot Loops lol (not kidding tho). Now that I am more educated I would have considered those definitely reactive hypoglycemia, as it would often happen after taking in large amounts of carbs, like if I had a giant slice of chocolate cake, mmm... So I never saw a doctor, even though it was concerning, I love my parents dearly, but am still confused by the fact they never took me to a doctor until I was 17. At 17 I saw a doctor, was told I was perfectly fine, later in life when I got diagnosed in 2020 at the age of 22 I got to see those old result, found out I was at least considered prediabetic at 17 and not "perfectly okay".
The reason I even went in 2020 was because I was used to checking my sugars when I felt bad, which usually ment catching a low. At some point though seeing lows on my monitor switched to seeing highs upwards to 600-700. By this time I was so scared that I had put myself on a low carb diet after doing minimal research, not the first time I had been on one either, my parents are avid dieters, so I had done low carb a few times in my life. By time I was able to get into a doc a few months had passed doing the low carb diet, but I was still diagnosed with an a1c of 6.5 by my PCP. He considered me type 2 (due to me not being a child), and then put me on metformin. Shortly after diagnosis and getting metformin my a1c began to rise until I hit my highest ever of 8.8 and being on a pretty high metformin dose. The metformin never seemed to make any difference, and all dips in my a1c seemed to only relate with how little carbs I was eating.
I have been off and on my low carb diet for the last 3 years now, and I am to a point where I have to eat such a small amount of carbs to maintain my numbers (between 70-120) i'm 100% getting burned out. I'm miserable, but I have an a1c of 5.1 currently, my lowest ever, and I doubt it will be maintained for much longer, but i'm staying positive. My carb intake probably amounts to less than 10 carbs on a regular basis. I do not indulge. I don't really desire to be so strict either, but the intake of 1 extra gram of sugar messes it all up.
Now 2023 begins and I finally am seeing people with endocrinology backgrounds and getting appropriate tests. I found out in January that I am type 1/LADA/1.5 at age 25 (I really am unsure of which term to use, it is confusing and I only just found out I am not type 2, and have yet to really be given much help with the matter) I have also found out I have Hashimotos tyroiditis, which has been absolutely kicking my butt with symptoms.
Currently my only line of defense for my diabetes is my diet, but I can see why my carb intake has to be so low now as I probably have lost some beta cell function in the last 3 years making my control from diet much harder. I'm in limbo until April where I see an actual endocrinologist, and I am banking so hard on him actually helping, so far no one else I have seen (and shelled out a lot of money for) has helped me.
Anyways that's my story so far, I'm in the middle of a pretty hard stressful time dealing with my health and am just on here hoping to get some of those stressful thoughts out of my head and talk to like minded people. All or any advice is welcome, if anyone wants to share their story that's also welcome. I'm not new to diabetes, but am very new to being type 1/LADA, I know very little about it and next to nothing about insulin. I'm still a bit scared thinking I'll have to be put on it in the next few years due to my new diagnosis. It's clear low carb diets are very important, but it's not working on it's own for me anymore.
This may have been a bit of a my story/vent, and like I said anyone is welcome to share theirs and vent here or to me if they need to. Thanks if you read the whole thing!! Sorry it was long!
My story starts when I was about 12, when I hit puberty basically. I began having extreme low blood sugars, which I would correct by eating up to 5 bowls of Froot Loops lol (not kidding tho). Now that I am more educated I would have considered those definitely reactive hypoglycemia, as it would often happen after taking in large amounts of carbs, like if I had a giant slice of chocolate cake, mmm... So I never saw a doctor, even though it was concerning, I love my parents dearly, but am still confused by the fact they never took me to a doctor until I was 17. At 17 I saw a doctor, was told I was perfectly fine, later in life when I got diagnosed in 2020 at the age of 22 I got to see those old result, found out I was at least considered prediabetic at 17 and not "perfectly okay".
The reason I even went in 2020 was because I was used to checking my sugars when I felt bad, which usually ment catching a low. At some point though seeing lows on my monitor switched to seeing highs upwards to 600-700. By this time I was so scared that I had put myself on a low carb diet after doing minimal research, not the first time I had been on one either, my parents are avid dieters, so I had done low carb a few times in my life. By time I was able to get into a doc a few months had passed doing the low carb diet, but I was still diagnosed with an a1c of 6.5 by my PCP. He considered me type 2 (due to me not being a child), and then put me on metformin. Shortly after diagnosis and getting metformin my a1c began to rise until I hit my highest ever of 8.8 and being on a pretty high metformin dose. The metformin never seemed to make any difference, and all dips in my a1c seemed to only relate with how little carbs I was eating.
I have been off and on my low carb diet for the last 3 years now, and I am to a point where I have to eat such a small amount of carbs to maintain my numbers (between 70-120) i'm 100% getting burned out. I'm miserable, but I have an a1c of 5.1 currently, my lowest ever, and I doubt it will be maintained for much longer, but i'm staying positive. My carb intake probably amounts to less than 10 carbs on a regular basis. I do not indulge. I don't really desire to be so strict either, but the intake of 1 extra gram of sugar messes it all up.
Now 2023 begins and I finally am seeing people with endocrinology backgrounds and getting appropriate tests. I found out in January that I am type 1/LADA/1.5 at age 25 (I really am unsure of which term to use, it is confusing and I only just found out I am not type 2, and have yet to really be given much help with the matter) I have also found out I have Hashimotos tyroiditis, which has been absolutely kicking my butt with symptoms.
Currently my only line of defense for my diabetes is my diet, but I can see why my carb intake has to be so low now as I probably have lost some beta cell function in the last 3 years making my control from diet much harder. I'm in limbo until April where I see an actual endocrinologist, and I am banking so hard on him actually helping, so far no one else I have seen (and shelled out a lot of money for) has helped me.
Anyways that's my story so far, I'm in the middle of a pretty hard stressful time dealing with my health and am just on here hoping to get some of those stressful thoughts out of my head and talk to like minded people. All or any advice is welcome, if anyone wants to share their story that's also welcome. I'm not new to diabetes, but am very new to being type 1/LADA, I know very little about it and next to nothing about insulin. I'm still a bit scared thinking I'll have to be put on it in the next few years due to my new diagnosis. It's clear low carb diets are very important, but it's not working on it's own for me anymore.
This may have been a bit of a my story/vent, and like I said anyone is welcome to share theirs and vent here or to me if they need to. Thanks if you read the whole thing!! Sorry it was long!
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