Have six with MODY2 in my family. There is a vibrant MODY community (1000+members) on Facebook if you do a search. Would love to see a subthread here as well.
Hi, I am Mody 3, been diagnosed five years ago and managing it without meds. Always happy to share my experience. Rgds !
Hi all, I'm MODY HNF4A (the rare type apparently) - diagnosed almost 10 years ago. My mum also has it (but only found out that it was MODY when I was diagnosed) and my brother carries the gene. My mum was told she was Type 1 and treated with insulin for 25 years. My brother's daughter was born with hyperinsulinism due to the gene. Lots going on with us! Nice to meet you all.
Hi Alice, Nice to meet you. I haven't checked into this app in a while. I'm Mody 3 as are my mum and 2 sisters. I'm treated with insulin as they always thought I was type 1 and after years of using insulin I didn't want to change to tablets. My mum and sisters treat using tablets.