M.E./CFS and PCOS

[Sam5350]

Evening all,

I am prediabetic (just outside the diabetic levels) and I have M.E./CFS and PCOS. I know PCOS increases the risk of diabetes but not sure if there is a connection with M.E. also. With M.E. I can be fine one minute and no energy the next, I get headaches when my M.E. kicks in really badly too. I can sleep for 8-16 hours at a time and on occasion I can't sleep at all. The more I think about the more I wonder if there is a connection between the two.
I have read stories where the lifestyle change I am on has completely combated PCOS in others and I am hoping it will do the same for me but also hoping it will shift my M.E. too.
Does anyone else have M.E. - what are your experiences alongside pre/diabetes?

Thanks

 

[Brunneria]

I'm having a problem with your acronyms. What is ME? CFS?

But I just got an excellent summary of how PCOS relates to not only Diabetes but also many co-morbidities (stuff that goes along with) of Diabetes including Metabolic Syndrome (which is not inclusive of all the co-morbidities entitle:
Polycystic Ovary Syndrome (PCOS) – From Definition to Symptoms and Treatment

http://www.docsopinion.com/2017/03/27/polycystic-ovary-syndrome-pcos/

As far as lifestyle changes, some things that go beyond this article, like specific genetic testing and whether or not you are trying to get pregnant inform your lifestyle choices, sometimes dependant on the results of said testing.

That is an excellent article on pcos, thank you @Contralto

 

[Sam5350]

Sorry CFS is Chronic Fatigue Syndrome. M.E. is Mualgic Ecephalopathy or Myalgic Encephalomyelitis as it was known as.

Nowadays they are considered the same thing but originally 2 seperate illnesses.

 

[serenity648]

CFS is Chronic Fatigue Syndrome, often also called ME = ME stands for myalgic encephalomyelitis. Myalgic means muscle aches or pains. Encephalomyelitis means inflammation of the brain and spinal cord.

I have ME. Controlling me blood sugar levels seems to be helping to even out my peaks and troughs.

Spoon theory - https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

the above is a brilliant explanation of ME/CFS in my opinion.

 

[Sam5350]

Thank you Contralto.....some of this info i had not come across before.

 

[serenity648]

well, tested positive to EB, aka CFS but never heard of the other one. Maybe you can explain how it affects you?

Only thing I can think of is this

https://en.wikipedia.org/wiki/Cerebral_hypoxia

There isnt current a test for CFs, is there? If there is, I would like to know so i can ask my doctor for it. What does EB stand for?

Cerebral hypoxia is something different, due to oxygen starvation.

 

[Sam5350]

EB is Epstein Barr...that i know of. Also called glandular fever. I had this in 2006 it took weeks to diagnose by which time i was in hospital on 2 drips cos i couldnt keep anything down.

Have a look at this link regarding CFS it might help. No tests just things a doctor looks for.

http://www.nhs.uk/Conditions/Chronic-fatigue-syndrome/Pages/Diagnosis.aspx

Mine was diagnosed 3 months later. I was off work for a while. No energy slept 16-18 hrs....or didnt sleep at all for days. Headaches and back aches. I couldnt focus or concentrate i would struggle to remember what i had done 3hrs ago. Any bug going i would get it plus a sore throat....within half day i would lose my voice. Thankfully it has got better but i am still not 100% unlikely i ever will be. I am lucky though...many woth CFS/M.E. are bed bound.

Hope this helps.

 

[ickihun]

I'm having a problem with your acronyms. What is ME? CFS?

But I just got an excellent summary of how PCOS relates to not only Diabetes but also many co-morbidities (stuff that goes along with) of Diabetes including Metabolic Syndrome (which is not inclusive of all the co-morbidities) entitled:
Polycystic Ovary Syndrome (PCOS) – From Definition to Symptoms and Treatment

http://www.docsopinion.com/2017/03/27/polycystic-ovary-syndrome-pcos/

As far as lifestyle changes, some things that go beyond this article, like specific genetic testing and whether or not you are trying to get pregnant inform your lifestyle choices, sometimes dependant on the results of said testing.

An excellent post.
The adrenal gland shares the 40-50% of testosterone produced in the body, with the ovaries!

 

[ickihun]

I think its about time insulin resistance had its own nhs department!
Its own early detection blood tests and specific management with targetted treatments.
Metformin alone, isn't enough!

 

[ickihun]

Fairly low inflammation is what my blood tests are coming back about my pelvis and back @debrasue . So pain not from inflammation. I'm on tramadol, nothing more. Cardiologist said again yesterday NO to naproxen even thou given lansoprazol for tummy. I wasn't aware I had a tummy problem.
So the pain is from somewhere other than inflammation!

 

[serenity648]

EB is Epstein Barr...that i know of. Also called glandular fever. I had this in 2006 it took weeks to diagnose by which time i was in hospital on 2 drips cos i couldnt keep anything down.

Have a look at this link regarding CFS it might help. No tests just things a doctor looks for.

http://www.nhs.uk/Conditions/Chronic-fatigue-syndrome/Pages/Diagnosis.aspx

Mine was diagnosed 3 months later. I was off work for a while. No energy slept 16-18 hrs....or didnt sleep at all for days. Headaches and back aches. I couldnt focus or concentrate i would struggle to remember what i had done 3hrs ago. Any bug going i would get it plus a sore throat....within half day i would lose my voice. Thankfully it has got better but i am still not 100% unlikely i ever will be. I am lucky though...many woth CFS/M.E. are bed bound.

Hope this helps.

Thank you. I was diagnosed years ago, from my symptoms. It was after I had Glandular Fever. I was told there was no blood test available.

 

[Sam5350]

There are blood tests to prove it isn't anything else, that's what they did with me, tested for everything else to rule them out then eventually diagnosed M.E.

 

[serenity648]

There are blood tests to prove it isn't anything else, that's what they did with me, tested for everything else to rule them out then eventually diagnosed M.E.

Thank you. Yes, they tested me for lots of things too.

 

[serenity648]

I'm having a problem with your acronyms. What is ME? CFS?

But I just got an excellent summary of how PCOS relates to not only Diabetes but also many co-morbidities (stuff that goes along with) of Diabetes including Metabolic Syndrome (which is not inclusive of all the co-morbidities) entitled:
Polycystic Ovary Syndrome (PCOS) – From Definition to Symptoms and Treatment

http://www.docsopinion.com/2017/03/27/polycystic-ovary-syndrome-pcos/

As far as lifestyle changes, some things that go beyond this article, like specific genetic testing and whether or not you are trying to get pregnant inform your lifestyle choices, sometimes dependant on the results of said testing.

Thank you for this. I am pretty sure I have PCOS too, but it hasnt been diagnosed. I will mention it next time I see the doctor.

 

[Sam5350]

I was diagnosed for PCOS in 2001 blood tests and sonogram. The sonogram was fascinating got to see my ovaries lol.

 

[Brunneria]

The sonogram was fascinating got to see my ovaries lol.

Yeah, I found the same!

 

[Sam5350]

lol not often you get to see inside yourself ha ha