Type 2 Metformin, Autism (Aspergers) and Autism related digestive problems - any contradictions with Meform

Ramon1965

Newbie
Messages
2
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Ramon Hartopp-Sancho
Ramon1965

20th Feb 2018

Hi all, I'm new here, and I'm new to Type 2 Diabetes. I am also Autistic - (higher functioning autism - Aspergers) which has amongst its characteristics problems with digestion. I am thus, since 15 years old (I am now 53) am Lactose Intolerant, IBS, (irritable bowel syndrome) since August 1980 - it comes and goes. My question for you all is if Metformin, especially in its slow release format, would have minimal side effects like diahorrea? (I would like to try to avoid that). I just want to get my 'energy' and 'stamina' back like it was some few years ago (pre 2014). Any ideas and or suggestions please? I would be most grateful. Thank you. Sincerely and with respect. Ramon Hartopp-Sancho (Ramon1965)
 

bulkbiker

BANNED
Messages
19,575
Type of diabetes
Type 2
Treatment type
Diet only
Hi Ramon and welcome.
I'll tag in @daisy1 for her intro about how a lot of us control our blood sugars.
I had a very bad experience with Metformin so am probably not the best person to ask.
I did find however that by changing what I ate I could get very good control of my blood sugar levels.
Have a read through Daisy's post when she puts it up and come back with any questions you may have.
The forum is a very helpful space with lots of experienced posters who are very welcoming and helpful.
 
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DCUKMod

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Type of diabetes
I reversed my Type 2
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Ramon Hartopp-Sancho
Ramon1965

20th Feb 2018

Hi all, I'm new here, and I'm new to Type 2 Diabetes. I am also Autistic - (higher functioning autism - Aspergers) which has amongst its characteristics problems with digestion. I am thus, since 15 years old (I am now 53) am Lactose Intolerant, IBS, (irritable bowel syndrome) since August 1980 - it comes and goes. My question for you all is if Metformin, especially in its slow release format, would have minimal side effects like diahorrea? (I would like to try to avoid that). I just want to get my 'energy' and 'stamina' back like it was some few years ago (pre 2014). Any ideas and or suggestions please? I would be most grateful. Thank you. Sincerely and with respect. Ramon Hartopp-Sancho (Ramon1965)

Some people have issues with Metformin. Far fewer have issues with the slow release option.

The only way you would be able to know if it impacts you is to try it. If it doesd upset your tummy and that continues after a period for your body to get used to the medication, then go back to your Doctor and ask for an alternative.

There are many, many different medications available to assist with the treatment of Type 2 Diabetes. They all have potential side effects, but only a few will experience them for any given drug.

Good luck with it all.
 

ickihun

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13,698
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I have to occasionally reduce my slow release to cope with any diarrhea. I have 2 young children who bring bugs home too. So a great concoction.
On reducing for a few days I can keep most of its benefits til I'm happy to increase again for months.... Normally.
I need metformin for other hormonal problems so it's very important I take it to stop me turning into an unbalanced hormonally and a hairy faced, no period wreck.
Without metformin i gain weight.
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
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Tablets (oral)
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Cruelty towards animals.
@Ramon1965

Hello Ramon and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
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Guzzler

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Hello and welcome to the forum, Ramon.
 

Ramon1965

Newbie
Messages
2
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Ramon Hartopp-Sancho
Ramon1965

21st Feb 2018

Hi everyone, Thank you for all of your replies, especially daisy1 and bulkbiker. Although I have obtained yesterday afternoon from chemist the Sukkarto SR 500mg prolonged release tablets, I have yet to try them. I am almost assured that they will give me a rough time. (The did for my late father, George Hartopp, 19 years ago) So, maybe the route that I should try to take is that of diet control (it seems to work for my mum who is 87). I have been recommended to arrange for my GP to arrange me to see visit a Dietitian that understands both what is Autism in adults (I was/is diagnosed as 'High Functioning Aspergers') and the problems that they have with digestion and also, more importantly, 'Sensory Issues'. What that means is for us 'Neuro-Diverse' on the Spectrum, we can have problems with, say, lights too bright, sounds too loud (that one is mine) and 'textures' and taste's' and also 'food looks' (like scrambled eggs or cottage cheese or the look and smell of some cheeses and yogourts) I just won't touch these. Its an Autistic thing ! So the dietitian must have some working knowledge background in these areas before trying to advice me on what to eat and not eat (when I was a small child I was a 'real problem eater' - it got me into trouble then). Anyway, I am MOST GRATEFUL for your kind and patient replies - I will study daisy1's advice list carefully and lastly I enclose the suggestions (unofficial advice) that came from the Kent Autistic Trust (to which I am a lifetime member) ((I live in Kent)) which gives unofficial suggestions moreso based on diet change rather than taking Metformin. Here it is. Thank you.


Edited by a Mod to remove images containing personal information
 
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lovinglife

Moderator
Staff Member
Messages
4,578
Type of diabetes
Type 2
Treatment type
Diet only
Hi Ramon welcome to the forum :) - just read through your posts and can't add anything to the advice but I just want to say I appreciate your struggles with food from an autism point of view, my adult son is ASD and textures etc of food is difficult for him and he hates his food touching in any way.

I'm sure you'll find a way that works for you :)
 

JohnEGreen

Master
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13,232
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Other
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Diet only
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One thing I found with metformin if you take it with food that is at the same time of eating then it's unwanted side affects for me where minimal.
 

AutisticMum

Active Member
Messages
33
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
First person shooter games such as COD.
Ramon Hartopp-Sancho
Ramon1965

20th Feb 2018

Hi all, I'm new here, and I'm new to Type 2 Diabetes. I am also Autistic - (higher functioning autism - Aspergers) which has amongst its characteristics problems with digestion. I am thus, since 15 years old (I am now 53) am Lactose Intolerant, IBS, (irritable bowel syndrome) since August 1980 - it comes and goes. My question for you all is if Metformin, especially in its slow release format, would have minimal side effects like diahorrea? (I would like to try to avoid that). I just want to get my 'energy' and 'stamina' back like it was some few years ago (pre 2014). Any ideas and or suggestions please? I would be most grateful. Thank you. Sincerely and with respect. Ramon Hartopp-Sancho (Ramon1965)
Metoformin upset my IBS but that's not to say it will upset yours.