Hi All,
I have 2 girls who are type 1 diabetics. The older was diagnosed at 8yrs of age and is now 13. The little one was diagnosed at 2 yrs and is now 6. We have been through the twice daily injections regime (Mixtard) and basal bolus ie a single long acting insulin injection a day plus 4 fast acting (we used Lantus, then Levemir plus Novorapid). We never really managed to get their BM's properly controlled, it was a constant juggling act, with things always changing.
In the last 15 months both of them have gone onto insulin pumps. This allows tighter control, but is quite hard work especially at the beginning when working out insulin:carb ratios and so on.
I would recommend that anyone with a newly diagnosed child consider going on a Diabetes UK Family Support weekend. We have been on 2! They are great because you get to meet lots of other 'diabetes parents' and your child(ren) get to meet lots of other 'diabetes kids'. (Non diabetic siblings get to go too!)
The parents have workshops each day, with discussions and talks from diabetes nurses and a consultant. The kids go off on outings and the amazing thing is that you can relax and let them go because they are with people who know about diabetes, such as Type 1 adults themselves and diabetes nurses. For us, it was the first time we could stop worrying when they were out of our sight!
You learn loads, for example we first learned about and saw an insulin pump on our 1st weekend. You get to share experiences, moan, cry, laugh, it was very therapeutic!! There is a cost involved, not sure what it is now as it's a couple of years since we last went, but I'm sure you can find out on the Diabetes UK website.
Something to consider anyway, I'm sure it would be worthwhile.
Regards,
Sue