1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2022 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Need advice : my son developing diabetes, GPs refuse to help

Discussion in 'Parents' started by andrewkoudr, Aug 19, 2013.

  1. andrewkoudr

    andrewkoudr · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    23
    Hello,

    I need your advice. I myself a long-term type-1 diabetic. A few months ago we noticed that my son (10 years old) drinks more than usual, and we measured his sugar, which was 8.9 two hours after last meal. In the morning he had 6.2. We immediately excluded sweets from his meals. We addressed two our GPs who measured morning sugar which was close to upper limit. They refused to make further tests, even a simple one, like glucose tolerance, not saying about antibodies and c-peptides. They say there's no clear clinical picture (he is not skinny, what you want?) and he can eat as much as before and anything. In addition, to make their words more solid, and make our life not as easy, they set social services on us. The case was closed, but it cost me a couple of months of preparation for their visits.
    Third GP promised to call endocrinologist in hospital but obviously did not, as a "letter from hospital was lost somewhere".

    Now my wife and son are abroad. And they have made all these tests. And all of them are bad. My wife is badly depressed as she is going to return to the country where we cannot expect any help from a GP. Changing a practice is possible only theoretically, endocrinologists are not accessible (I wrote numerous letters to hospitals - one reply from tens of letters).

    How to get an appointment to an endocrinologist? What to do?

    Thank you, Andrey
     
  2. viviennem

    viviennem Type 2 · Well-Known Member

    Messages:
    3,140
    Likes Received:
    150
    Trophy Points:
    103
    Re: Need advice : my son developing diabetes, GPs refuse to

    Hi Andrey, and welcome.

    I'm a Type 2 with no knowledge of childhood-onset diabetes, so I can't help very much. I expect that someone with more knowledge will be along soon to give you their advice.

    For myself, I would suggest that you keep a food diary for your son, and do blood tests before and two hours after. Record those also. Then go to see the third GP again, armed with your evidence, and ask again that your son sees and endocrinologist.

    If you are unhappy with your treatment you can complain, first to the practice manager, then to the local PALS service (Patients Advisory Liaison Service, or something like that). I'm not sure what the set-up is now, under the new arrangments - can someone else help? - but I complained very successfully to our local service about the treatment (or lack of) my disabled cousin while she was in hospital earlier this year.

    The main thing is try to keep calm and reasonable - difficult when you're worried sick - and try to get someone on your side. If all else fails, contact your MP. All their contact details are on the web site www.parliament.uk. Make the point that your own experience makes you more certain that his symptoms relate to diabetes.

    Hope that helps a little. I'm sure someone else will be around shortly.

    Viv 8)
     
  3. andrewkoudr

    andrewkoudr · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    23
    Re: Need advice : my son developing diabetes, GPs refuse to

    Thank you, viviennam,

    we have passed all these steps, including MP, unfortunately.
    My fault is I did not mention the main problem : how to get access to a specialist (endocrinologist) to register my son for observation. Specialists are barred by GPs from general public.

    Thank you, Andrey
     
  4. CambridgeLass

    CambridgeLass · Well-Known Member

    Messages:
    148
    Likes Received:
    2
    Trophy Points:
    38
    Re: Need advice : my son developing diabetes, GPs refuse to

    How awful for you. I would test your son's level shortly after eating, say half am hour, if results are over 11 I would go and demand to see someone at the surgery. What do they want - a child to be throwing up before they take action. T1 creeps on you slowly. Some parents look back and realise in hindsight symptoms started weeks before. You have knowledge & foresight to notice any symptoms early on. If your surgery refuses and you want action, I would go to A&E and say you suspect your child has T1, with reasons that you've tested his BG and he is showing symptoms, if that's the case. Our fasting test was on the high end side and hospital was ready to send us home, with the doctor not listening to my concerns. A retest after a meal and she was admitted with a BG of 22 - obviously they started listening to me then.


    Sent from the Diabetes Forum App
     
  5. andrewkoudr

    andrewkoudr · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    23
    Re: Need advice : my son developing diabetes, GPs refuse to

    Thank you, CambridgeLass, it was very helpful. Andrey
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook