Has anyone out there suffered from severe nerve pain in the tops of there legs hip area and the tops of there arms i cant make my mind up wether its muscle pain or bone pain either way its severe.I was diagnosed type 2 just over a year ago and have settled onto sitaglipton my 3rd try i noticed the pain 3-4 months b4 i was diagnosed but thought it was from being a bit overweight then of course the weight fell off in stones but i have still got the pain oramorph helps but causes bad constipation does anyone know of other ways to help the pain as the doc/nurse is not much help.
Nerve pain.
- Thread starter gaspajack1
- Start Date
I also get a pain but only in my left leg, high up towards the hip. DN says it is neuropathy, but don't know enough about it to agree. If I have been lying on my left side during the night the pain wakes me, I turn over and go back to sleep.
Is it neuropathy? Can anyone out there help with an answer please.
Also, had my retina eye test recently and there is now some diabetic damage, though very early stages. My BS is between 5.5 - 6.4 on waking, though was always in the mid 6's until I started low carbing. Can I reverse the damage?
Is it neuropathy? Can anyone out there help with an answer please.
Also, had my retina eye test recently and there is now some diabetic damage, though very early stages. My BS is between 5.5 - 6.4 on waking, though was always in the mid 6's until I started low carbing. Can I reverse the damage?
benfotiamine has some studies showing that it relieves diabetic neuropathies
Here's a google scholar link to them. google it for yourself benfotiamine is readily available from suppliers of vitamins.
http://scholar.google.ca/scholar?q=benfotiamine&hl=en&btnG=Search&as_sdt=2001&as_sdtp=on
Here's a google scholar link to them. google it for yourself benfotiamine is readily available from suppliers of vitamins.
http://scholar.google.ca/scholar?q=benfotiamine&hl=en&btnG=Search&as_sdt=2001&as_sdtp=on
gaspajack1 said:
If your Dr/Nurse don't know what is going on then I suggest you ask to be referred to a Specialist for proper examination and Diagnosis. You should not have to suffer the pain just because your HCP's are not up to the job.
There are many things this sort of pain could be down to....many are nothing at all to do with Diabetes. We cannot diagnose here but from my own experience of such pains.......
Nerve pain can be as a result of an injury as mine is, not Diabetic Neuropathy.....just Neuropoathy ! I suffer from Sciatica at times like right now because of a L5 spinal injury. I get a pain in my shoulders and down my arms and fingers because of a crushed vertebrae C6 in my spine. None of these things are caused by my Diabetes....just a result of wear and tear and a few bumps and scrapes over the years ! Not everything is down to Diabetes.
Get a referral and get it sorted.......
As far as I'm aware, neuropathy tends to be symmetrical on both sides. It is certainly improved by GOOD BG control.
Iget the odd muscle ache, which isn't neuropathy[more like old age] and Ifind exercie gets rid of it.
Hana
Iget the odd muscle ache, which isn't neuropathy[more like old age] and Ifind exercie gets rid of it.
Hana
Hana.
Much as I hate to disagree with you I can assure you that Neuropathy can be one sided, it all depends on the site of the injury/wear etc. Mine is definitely NOT symetrical......very one sided, then at other times both sides.
If the disease affects a single nerve it is termed mononeuropathy or it could be a more generalised problem known as polyneuropathy. The symptoms of both will depend much on whether the motor, sensor or aotonomic nerves are the ones affected. Pressure/stretching/trauma are commom causes of monoN whilst Diabetes can be a common cause of polyN. The OIP mneeds to know which is which.
In the circumstances a proper diagnosis is required before anybody can say with certainty just what the actual cause is and a correct treatment regime. I agree that good Bg control may well help if it IS Diabetic Nueropathy but will have no effect whatsoever if it is caused by trauma etc.
Much as I hate to disagree with you I can assure you that Neuropathy can be one sided, it all depends on the site of the injury/wear etc. Mine is definitely NOT symetrical......very one sided, then at other times both sides.
If the disease affects a single nerve it is termed mononeuropathy or it could be a more generalised problem known as polyneuropathy. The symptoms of both will depend much on whether the motor, sensor or aotonomic nerves are the ones affected. Pressure/stretching/trauma are commom causes of monoN whilst Diabetes can be a common cause of polyN. The OIP mneeds to know which is which.
In the circumstances a proper diagnosis is required before anybody can say with certainty just what the actual cause is and a correct treatment regime. I agree that good Bg control may well help if it IS Diabetic Nueropathy but will have no effect whatsoever if it is caused by trauma etc.
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when untreated, and BG often running between 15 & 22 late in the day i would suffer the following pain
Lower bg levels 15 -18
Lower legs painfull
feet (to the point of not being able to feel them)
Higher levels 18+
as above
pain in upper arms as though been weight lifting all day
even higher levels 20 +
as above
shoulder pains
back pain right down the spine
no things are being controlled its rare i get an pain, maybe in the legs if im high about 17ish but that very rare now
Lower bg levels 15 -18
Lower legs painfull
feet (to the point of not being able to feel them)
Higher levels 18+
as above
pain in upper arms as though been weight lifting all day
even higher levels 20 +
as above
shoulder pains
back pain right down the spine
no things are being controlled its rare i get an pain, maybe in the legs if im high about 17ish but that very rare now
hello am really new to this site only discovered it by accident, thank god i did.my son is 19 and has been type 1 since he was ten throughout his teenage years he rebelled against his diabetes and to cut a long story short has been in hospital 18 times with dka (bloods at highest were 67).he is really trying to turn his life around moved to a new flat stopped hanging round with scroungers who were only after his dla etc.About 4 months ago he started saying his legs hurt and his gp gave him painkillershe went back a week later as he couldnt eat was feeling awful doc told him to put on some weight and he would be fine.We changed his doctors and the new one said it was neuropothy and he was seen by the diabetic team at hospital that day who confirmed this he was put on anti sickness tabs Two weeks later hospital saw him again and for last week he has been on amitriptalyne and tramadol apart from the initial effects of tramadol i.e feeling really spaced out nothing is working he is up all night crying saying he feels paralysed he has lost 3 stone looks dreadful and cannot walk unaided its heartbreaking to witness this and i was wondering if anyone else has some answers he has been like this 4 months and docs just keep saying it will go.
donnellysdogs
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What dosage of ampitryptalene and tramadol is your son on? Does he take the ampitryptalene at night?
Your son should not be feeling as bad as he does. I have fibromyalgia and my GP has been trialling every drug to try and get me some pain relief and also to be able to sleep better.
I could not take tramadol (due to feeling spaced out) or gabapentin or lyrica due to side effects as well, but my GP has not given up on trying to find me relief. Finally last week he also referred me to a physiotherapist and to the pain clinic, and certainly it sounds like your son could also do with a referral to a pain clinic at your hospital.
It may be that like me that your son will always have some pain, but there are more drugs that can be used for managing pain i.e butrans pain patches (not on a permananet basis though) and drugs listed above, some of these have been recognised as helping diabetic neuropathy pain.
I think your son needs to go back to his HCP's and tell them exactly how his life is being affected and get them to try and help him further. No good looking back at how he may have contributed by having not loooked after himself to the best....better to look forward to see just what can be done to help him now. Getting better control will help, but so will getting better pain relief, as believe me pain and depression can be horribly linked to each other as well, and I really would not like your son to get the depression linked with the pain. I can honestly say that although I have not been suicidal, I have so often wished that Iwasn't alive because I cannot handle the pain I experience.
You say your son has also lost a lot of weight, did he need to lose any, or has it left him being thin?
I hope that you can get your HCP to listen, I have to take my husband to my appointments with my GP because I could not get him to listen to me. When my husband is with me my GP has a totally different attitude to me. (Much improved), previously he would tell me the pain was in my head, but since taking hubby with me, he has never came out with that comment again!!!!
Your son should not be feeling as bad as he does. I have fibromyalgia and my GP has been trialling every drug to try and get me some pain relief and also to be able to sleep better.
I could not take tramadol (due to feeling spaced out) or gabapentin or lyrica due to side effects as well, but my GP has not given up on trying to find me relief. Finally last week he also referred me to a physiotherapist and to the pain clinic, and certainly it sounds like your son could also do with a referral to a pain clinic at your hospital.
It may be that like me that your son will always have some pain, but there are more drugs that can be used for managing pain i.e butrans pain patches (not on a permananet basis though) and drugs listed above, some of these have been recognised as helping diabetic neuropathy pain.
I think your son needs to go back to his HCP's and tell them exactly how his life is being affected and get them to try and help him further. No good looking back at how he may have contributed by having not loooked after himself to the best....better to look forward to see just what can be done to help him now. Getting better control will help, but so will getting better pain relief, as believe me pain and depression can be horribly linked to each other as well, and I really would not like your son to get the depression linked with the pain. I can honestly say that although I have not been suicidal, I have so often wished that Iwasn't alive because I cannot handle the pain I experience.
You say your son has also lost a lot of weight, did he need to lose any, or has it left him being thin?
I hope that you can get your HCP to listen, I have to take my husband to my appointments with my GP because I could not get him to listen to me. When my husband is with me my GP has a totally different attitude to me. (Much improved), previously he would tell me the pain was in my head, but since taking hubby with me, he has never came out with that comment again!!!!
thank you for very helpful reply my son is on 100mg tramadol 4 times a day and 10mg amitriptalyne at night.had a bad day today but managed to get a couple of hours sleep this afternoon.going to ask if they can refer him to pain management clinic thank you because i didnt know there was such a thing.
told the diabetic team at hospital last week how bad this is affecting his life (he cant walk the lentgh of our lounge and fell up the stairs today and my husband has to carry him down them).they told us they cant wave a magic wand.
Depression has set in doesnt stop crying and saying this is no way to live and he cant take any more.keeping an eye on that and supporting him.
As for his weight he was ten stone which for a 19year old 5ft 7 wasnt too bad he now weighs just over 7 stone and looks dreadful bones jutting out everywhere in desparation i went to shop to get him complan but its rammed full of sugar.
again thank you for promt reply after being up all night with him i was at the end of my tether and feeling low my self so glad i found this site!
told the diabetic team at hospital last week how bad this is affecting his life (he cant walk the lentgh of our lounge and fell up the stairs today and my husband has to carry him down them).they told us they cant wave a magic wand.
Depression has set in doesnt stop crying and saying this is no way to live and he cant take any more.keeping an eye on that and supporting him.
As for his weight he was ten stone which for a 19year old 5ft 7 wasnt too bad he now weighs just over 7 stone and looks dreadful bones jutting out everywhere in desparation i went to shop to get him complan but its rammed full of sugar.
again thank you for promt reply after being up all night with him i was at the end of my tether and feeling low my self so glad i found this site!
donnellysdogs
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Oh my goodness, aren't you all having a tough time. I do so sympathize with you all, as I was worried when I read how much pain your son is in.
I have a confession myself, although I am nearer to 50 than 40 I had a bad hypo infront of my Mum this New Year, the first that was this bad....anyway during this hypo I was screaming out that I was fed up with living, that I was fed up with the pump, and that I didn't want to go on living with all this pain- and all this was me screaming this out and being very horrible as well.....it absolutely horrified my Mum, Stepdad and Friend that were staying with us. They didn't realise how much the pain and depression went hand in hand.
When I read your posting about your son, I was concerned that he may too be feeling totally fed up and depressed with the pain. Diabetes can make people depressed, but so can pain. I am so glad that he has your support, but it must be tough on you too. Perhaps if he is tearful, then he may need an antidepressant as well to help him get through this.
I only speak from my experience, I am not a HCP, just somebody that has chronic pain and depression and constant fatigue through fibromyalgia. I take ampitrptalene at teatime and citilopram in the morning. At the moment I am resting from all the trials of pain relief tablets, as I had a severe reaction at the end of last week, and am not due to see my GP till beginning of March.
Are you able to see just one GP that can really take an interest in your son? Sometimes it is best to stick to one GP and ask him if he will try to establish causes of pain and to get some relief from it.
I was also sent to a Neurologist last August, who didn't think I had diabetic neuropathy, but thought I needed an MRI scan of my neck that I am still waiting for.
Apparently the pain clinic where we live is about a year's waiting list, I believe most hospitals have them. I was referred by my GP.
I don't want to pry too much, but what made your son fall down the stairs? I know we bought a bungalow because I found it difficult to go up and down stairs, but the fact that your son has fallen downstairs suggests to me (Not an expert though!!!) that it may not have been because of pain, but possibly being a balance issue.
You also say he has difficulty walking across your lounge, it that through pain or with possible balance problems as well?
Does your son see GP's and HCP's by himself or with somebody else with him?
So many questions I know, but I am concerned because I see some of what your write about your son, in me, and how I felt. There is help that you can get, don't give up, but please seek further help from your GP. Mine actually saw me weekly initially, and I think this may be what your son needs. You can't bombard your GP all at once with a list of problems, so try to book up weekly appointments to discuss issues with him/her.
Do let us know how you get on, I am concerned for all of you, as I know how badly it can afect the people around you....best wishes...
I have a confession myself, although I am nearer to 50 than 40 I had a bad hypo infront of my Mum this New Year, the first that was this bad....anyway during this hypo I was screaming out that I was fed up with living, that I was fed up with the pump, and that I didn't want to go on living with all this pain- and all this was me screaming this out and being very horrible as well.....it absolutely horrified my Mum, Stepdad and Friend that were staying with us. They didn't realise how much the pain and depression went hand in hand.
When I read your posting about your son, I was concerned that he may too be feeling totally fed up and depressed with the pain. Diabetes can make people depressed, but so can pain. I am so glad that he has your support, but it must be tough on you too. Perhaps if he is tearful, then he may need an antidepressant as well to help him get through this.
I only speak from my experience, I am not a HCP, just somebody that has chronic pain and depression and constant fatigue through fibromyalgia. I take ampitrptalene at teatime and citilopram in the morning. At the moment I am resting from all the trials of pain relief tablets, as I had a severe reaction at the end of last week, and am not due to see my GP till beginning of March.
Are you able to see just one GP that can really take an interest in your son? Sometimes it is best to stick to one GP and ask him if he will try to establish causes of pain and to get some relief from it.
I was also sent to a Neurologist last August, who didn't think I had diabetic neuropathy, but thought I needed an MRI scan of my neck that I am still waiting for.
Apparently the pain clinic where we live is about a year's waiting list, I believe most hospitals have them. I was referred by my GP.
I don't want to pry too much, but what made your son fall down the stairs? I know we bought a bungalow because I found it difficult to go up and down stairs, but the fact that your son has fallen downstairs suggests to me (Not an expert though!!!) that it may not have been because of pain, but possibly being a balance issue.
You also say he has difficulty walking across your lounge, it that through pain or with possible balance problems as well?
Does your son see GP's and HCP's by himself or with somebody else with him?
So many questions I know, but I am concerned because I see some of what your write about your son, in me, and how I felt. There is help that you can get, don't give up, but please seek further help from your GP. Mine actually saw me weekly initially, and I think this may be what your son needs. You can't bombard your GP all at once with a list of problems, so try to book up weekly appointments to discuss issues with him/her.
Do let us know how you get on, I am concerned for all of you, as I know how badly it can afect the people around you....best wishes...
It is my understanding that hip, thigh and leg pain could be due to proximal neuropathy and this is most commonly experienced on one side at first, I have been experiencing this on and off for a while, is transient and varies in where the pain feels, as though it moves - I am seeing GP on Monday as it has recently started troubling me more frequently, though since making appointment for next week it is not quite so bad again. Should mention that my feet burn in bed - and sometimes legs feel like leg, bad circulation I guess.
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im currently on antriptline (badly spelt) 25mg which i take half an hour before i go to bed my symptoms are acheing, feels like my feet are on fire, sharp jabbing pains and spasms also a pins and needle like affect in my legs and feet mine is constant most days due to trying to stablelise sugars been told its nerve damage and can be reversed apparently but i have mine due to bad control for years im 24 and was told complications dont happen to your much older i beg to differ im sorry to hear about your son i know how uncomfortable it is sometimes wish i could cut my feet off but im sure that will probably happen at some point in my life : (
Thought this was a good place to post this article about nerve damage. We often see here that people are concerned about pain in their feet and legs but the damage can be anywhere throughout the body. Doctors often dismiss any pain or symptoms as diabetic related but it would be worth seeing if you can relate to anything in this article.
Peripheral affects: -
.....Toes
.....Feet
.....Legs
.....Hands
.....Arms
Autonomic affects:-
.....Heart
.....Blood vessels
.....Digestive tract.
.....Urinary tract
.....Sex organs
.....Sweat glands
.....Eyes
.....Lungs
Proximal affects:-
.....Thighs
.....Hips.
.....Buttocks
.....Legs
Focal affects:-
.....Eyes
.....Facial muscles
.....Ears
.....Pelvis
.....Lower back
.....Chest
.....Abdomen
.....Thighs
.....Legs
.....Feet
It appears that poor control and/or the length of time that you have had diabetes are the main causes.
http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/
Peripheral affects: -
.....Toes
.....Feet
.....Legs
.....Hands
.....Arms
Autonomic affects:-
.....Heart
.....Blood vessels
.....Digestive tract.
.....Urinary tract
.....Sex organs
.....Sweat glands
.....Eyes
.....Lungs
Proximal affects:-
.....Thighs
.....Hips.
.....Buttocks
.....Legs
Focal affects:-
.....Eyes
.....Facial muscles
.....Ears
.....Pelvis
.....Lower back
.....Chest
.....Abdomen
.....Thighs
.....Legs
.....Feet
It appears that poor control and/or the length of time that you have had diabetes are the main causes.
http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/
donnellysdogs
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Gosh, that is really interesting.....
I have had chronic pains, 25+years of type 1, and loads of pain that others say about and list...won't go into all the details.
Was referred to a neurologsit who said I di not have neurapoathy at all.....and yet DSN has suggested has suggested on occasions that I have....
No matter what, the drug that they give for fibromyalgia and diabetic neuropathy called duloxitine (now 60mg)- has now made me feel so **** good-I honestly haven't felt this good for 15 years. Now I don't cvar what the actual diagnosis is or has been, but so grateful that I have something that is finally helping me to feel so good again.....
I have had chronic pains, 25+years of type 1, and loads of pain that others say about and list...won't go into all the details.
Was referred to a neurologsit who said I di not have neurapoathy at all.....and yet DSN has suggested has suggested on occasions that I have....
No matter what, the drug that they give for fibromyalgia and diabetic neuropathy called duloxitine (now 60mg)- has now made me feel so **** good-I honestly haven't felt this good for 15 years. Now I don't cvar what the actual diagnosis is or has been, but so grateful that I have something that is finally helping me to feel so good again.....
