• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Newly diagnosed type 1

mcwarrior

Member
Messages
6
Type of diabetes
Type 1
Treatment type
Insulin
Was to the docs a week ago, and was called in for blood results Monday, to be told i had Type 1 diabetes.
To say it was a shock was an understatement. Tuesday (yesterday) i was put on insulin.
I thought type 1 was only from when you were young and type 2 can develop as you get older. seems this is not the case.
The first thing the doc said to me on monday was "your not fat" which was a bit odd, although i've lost 1 1/2 stone in 6-8 weeks.
Then she hit me with the good news.:wideyed:
lots to learn i think now. Just getting used to the injections and testing
 
That is a shock. You will find lots of support and information here.
 
Hi mcwarrior and welcome to the forum :)

Here is the information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 100,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
It is a shock to be diagnosed with T1 when you're not under 40. I was diagnosed in May and went straight from my GP to the hospital clinic to start insulin. I 'm slim and had lost even more weight and I'm physically fit and active. I tell everyone, my body obviously thinks it's still young! I've now been told I'm type 1 and a half. On a positive note, we've managed to get through a good part of life without daily insulin injections. I'm now feeling more myself and back to a healthy weight. I'm not saying it's easy, but it is manageable.
 
Was to the docs a week ago, and was called in for blood results Monday, to be told i had Type 1 diabetes.
To say it was a shock was an understatement. Tuesday (yesterday) i was put on insulin.
I thought type 1 was only from when you were young and type 2 can develop as you get older. seems this is not the case.
The first thing the doc said to me on monday was "your not fat" which was a bit odd, although i've lost 1 1/2 stone in 6-8 weeks.
Then she hit me with the good news.:wideyed:
lots to learn i think now. Just getting used to the injections and testing

I was diagnosed as type 1 18 moths ago aged 38, a real shocker. I had lost 2 stone in about a year, and it was a bit of a relief to find out what was wrong with me as I felt like ****. 18 months in and I have pretty good management, and I'm now getting back into cycling and exercise which was a struggle. Having seem my neighbours son diagnosed with leukaemia at 16 recently I really have the view that things could be far worse.

You will get to grips with it and manage it rather than it manage you.
 
Hi mcwarrior,
I was diagnosed last year at age of 39. Total shocker!! As JRW said I was also a bit relieved as had been feeling so ill for such a long time.
It doesn't feel like it at the time but I promise you things get easier. This forum is great and will help you answer the multitude of questions you'll no doubt have.
Andrea



Sent from the Diabetes Forum App
 
Was to the docs a week ago, and was called in for blood results Monday, to be told i had Type 1 diabetes.
To say it was a shock was an understatement. Tuesday (yesterday) i was put on insulin.
I thought type 1 was only from when you were young and type 2 can develop as you get older. seems this is not the case.
The first thing the doc said to me on monday was "your not fat" which was a bit odd, although i've lost 1 1/2 stone in 6-8 weeks.
Then she hit me with the good news.:wideyed:
lots to learn i think now. Just getting used to the injections and testing
Hi there.
Our circumstances are the same! I was diagnosed last week with T1 completely out the blue and started straight away on Insulin injections twice a day. Shocked beyond belief! I'm very slight 5ft 2 and 8st 5) Nd have always eaten healthily and exercised, so being diagnosed has really hit me hard. I know T1 isn't because as someone said to me the other day ' you've eaten too much sugar then'!?!?
I'm just getting used to it all at the moment - the more I read about what to eat and what not to eat, the more confused I become...
 
Snap Drummermum, the more i read the less i know.
Getting used to the 4 injections a day is going well, but a bit of a pain getting in to a routine. Not yet doing card counting or the like as seeing the Dietitian after my holiday at the beginning of Aug. Spent 4 hrs in 2 visits with the care team, and back again on Friday.
Feeling a bit better, had one near Hypo, but knew the reason for it and spoke about it to care team. Must remember to eat, or take account when doing extra stuff,ie moving a lot of slabs on a hot day.
Still not really taken it all in, it just seems like i have some new gadgets to play with, unfortunately there going to be for life.
Still i;ve been upbeat, and not getting depressed, life goes on, but in a slightly different way to what i'm used to.
 
Hi there.
Our circumstances are the same! I was diagnosed last week with T1 completely out the blue and started straight away on Insulin injections twice a day. Shocked beyond belief! I'm very slight 5ft 2 and 8st 5) Nd have always eaten healthily and exercised, so being diagnosed has really hit me hard. I know T1 isn't because as someone said to me the other day ' you've eaten too much sugar then'!?!?
I'm just getting used to it all at the moment - the more I read about what to eat and what not to eat, the more confused I become...


You'll get a lot of great advice on here. I'm T1 and always been slim for nearly 40 years, so hit me hard too, all I can say on the injections and insulin regime is that it gets easier to manage, and easier to understand. I recommend some books such as Carbs & Cals, and Think Like a Pancreas to help you.

As a diabetic who has got back into regular exercise again, I'm happy to offer advice on that side of things. runsweet is a great website.

Don't let it get you down.
 
Snap Drummermum, the more i read the less i know.
Getting used to the 4 injections a day is going well, but a bit of a pain getting in to a routine. Not yet doing card counting or the like as seeing the Dietitian after my holiday at the beginning of Aug. Spent 4 hrs in 2 visits with the care team, and back again on Friday.
Feeling a bit better, had one near Hypo, but knew the reason for it and spoke about it to care team. Must remember to eat, or take account when doing extra stuff,ie moving a lot of slabs on a hot day.
Still not really taken it all in, it just seems like i have some new gadgets to play with, unfortunately there going to be for life.
Still i;ve been upbeat, and not getting depressed, life goes on, but in a slightly different way to what i'm used to.
It is difficult isn't it?
I'm on two injections a day morning and evening and like you had a near hypo ( not eating enough before bed) I have an appointment at the hospital at the beginning of August with the main diabetes clinic; then will see the dietitian etc;
At the a age of 52, this is not what I expected.. I'm sure there will be good days and bad but to take each day as it comes. No doubt we will find lots of answers on this forum!
 
Last edited by a moderator:
You'll get a lot of great advice on here. I'm T1 and always been slim for nearly 40 years, so hit me hard too, all I can say on the injections and insulin regime is that it gets easier to manage, and easier to understand. I recommend some books such as Carbs & Cals, and Think Like a Pancreas to help you.

As a diabetic who has got back into regular exercise again, I'm happy to offer advice on that side of things. runsweet is a great website.

Don't let it get you down.
Thank you! It is all so overwhelming at the moment. No doubt there will be a thousand and one things to ask over time
 
Hello!
I'm 29 and newly diagnosed. The doctors seemed really surprised and were split as to whether it was type 1 or 2 until the antibody test results came back.
Found it difficult to find support networks for newly diagnosed adults. I read that Theresa May was diagnosed last year. I figure if she can carry on being Home Secretary then I can carry on as normal too. Hoping to find support on these forums :)
Good luck
 
Hello!
I'm 29 and newly diagnosed. The doctors seemed really surprised and were split as to whether it was type 1 or 2 until the antibody test results came back.
Found it difficult to find support networks for newly diagnosed adults. I read that Theresa May was diagnosed last year. I figure if she can carry on being Home Secretary then I can carry on as normal too. Hoping to find support on these forums :)
Good luck
Hi there!
My GP seemed very shocked too and initially was unsure if it was T1or T2. It is a lot to get your head around and at the moment I'm still at the stage of one moment being okay about it then the next worrying.
If you find any good sites let me know!
The most difficult thing for me at the moment is the 'snack' thing. I love chocolate biscuits and crisps and am not a lover of fruit (it doesn't like me much, I have IBS)... Searching for ideas lol. I have an appointment with the dietitian but not for another 4-6weeks. Oh well it's a voyage of discovery.
X
 
I know exactly what u mean! I think for me the thought of not snacking (or pigging out in my case) was the hardest part! I work around chocolate all day so finding it tough.
I saw the dietician quite quickly actually, 3 weeks in (I think they panicked because I work around food). They recommended the GI diet which is basically slow release food ie seeded bread. Cheese is good as doesn't affect sugar much (just watch the fat) and is a real treat. It was a really useful appointment, make the most of it and write down any questions as you think of them so that you don't forget to ask :-)
 
I'm at the dietician on Tuesday. Not snacking is definitely the hardest part for me. I look forward to the evenings when blood sugars are low enough to need a biscuit before bed!
 
Back
Top