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now type1

Discussion in 'Type 1 Diabetes' started by hognose, Feb 7, 2018.

  1. hognose

    hognose Other · Well-Known Member

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    i am late on set type 1 am told, and not type 2 as first dia,
    i had a c-peptide test = 0.09 nmol/mmol severe insulin deficiency .

    feeling bit lost at the mo
     
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    #1 hognose, Feb 7, 2018 at 3:30 PM
    Last edited: Feb 7, 2018
  2. Jeremy_Wood

    Jeremy_Wood Type 1 · Well-Known Member

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    Sorry to hear that @hognose but just bear in mind that's exactly what Theresa May went through and she's not doing too bad. Hmmm...

    On a brighter note, at least you now know what it is. It might seem like a whole new daunting challenge but today's support, research and medication surrounding Type 1 is outstanding.

    Plus, we're all here for you.

    J
     
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  3. hognose

    hognose Other · Well-Known Member

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    thank you jeremy
     
  4. Sibyl

    Sibyl Type 1 · Well-Known Member

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    Welcome to the exclusive sugar club, hognose! I was diagnosed T1 in October 2014 when I was 56! On learning more about the condition I realised quite quickly how lucky I was! Old enough to be able to accept it and young enough to learn to cope quickly! It’s a bit daunting at first but with time, practice and back up from the folks on here it soon becomes less difficult.
     
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  5. TheBigNewt

    TheBigNewt Type 1 · Well-Known Member

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    I've noticed healthcare personnel there sometimes have trouble distinguishing Type 1 from Type2. You have nurses and GPs doing most of the medical care and decision making in the NHS. I doubt whether it ever really changes in the individual, but the persons interpreting the lab tests and clinical data may not always get it right and can change their mind it seems. Maybe it doesn't make any difference in the long run either.
     
  6. Juicyj

    Juicyj Type 1 · Expert
    Retired Moderator

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    Hi @hognose The plus is that you have a correct diagnosis now and can take insulin to manage your BG levels, it's when folks are diagnosed t2 and plod on with medication and left with uncontrolled BG levels which is a worry. Once your insulin is working efficiently and you are getting your levels into range it will help you feel better. There's always someone around to chat to here if you have any queries so its not so daunting :)
     
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  7. hognose

    hognose Other · Well-Known Member

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    think at the start they look at age ,weight high bg and just labeled type 2,
     
  8. hognose

    hognose Other · Well-Known Member

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    this is true,
    i am on
    novarapid per meal/snack
    lantus overnight/morning
    upteen bg tests
     
  9. becca59

    becca59 Type 1 · Well-Known Member

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    Welcome to the club!! I was diagnosed 4 years ago at 54. I am still enjoying life and ironically feel I am healthier now than in the last 10 years. The knowledge picked up about food makes me think twice about everything that goes past my lips.
     
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  10. NoKindOfSusie

    NoKindOfSusie Type 1 · Well-Known Member

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    You cannot possibly imagine how much I hate it when people say that.

    It's like walking into a prison cell and having everyone go "HEY! Glad you're here!"
     
  11. hognose

    hognose Other · Well-Known Member

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    really? i found it very nice
     
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  12. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Welcome @hognose! It should all get easier as you learn more and get to know how you react to food, doses etc. Early days so embrace everything you learn and don’t expect to know everything. We’re all learning, all the time.
    You should get a new lease of life now you’ve got the right diagnosis.
     
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  13. Chowie

    Chowie Type 1 · Well-Known Member

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    Welcome to our very exclusive club. It's normal to feel a bit lost, confused and upset. The great news is that will soon pass and before long you will be joining the rest of us quite happily going on a grand adventure. We have all been there done that, so just remember you not alone or unique.
     
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  14. lindijanice

    lindijanice Type 2 · Well-Known Member

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    Ah, Susie, so nice to hear your cheerful voice again.......glad we are all different:) A hearty welcome to the Forum, hognose! Trust that you will find lots of good info and support here, I certainly have and wish you all the best/L
     
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  15. hognose

    hognose Other · Well-Known Member

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    well a insulin pump might be a good idea ?
    better than the injections
     
  16. TheBigNewt

    TheBigNewt Type 1 · Well-Known Member

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    I wouldn't say better, just a different delivery method for the injections, via a subQ plastic catheter using an external infusion pump, which makes the basal delivery continuous and the meal/bolus deliveries very similar to insulin pen injections. Those boluses may be delivered more rapidly because there is already a tract from the catheter tip through the subQ space to the vunules to the circulation. Pumpers use the same short acting insulin all the time whereas we use a long acting basal (Lantus, Levemir, etc) and short acting bolus (Novolog, Humulog, Fiasp).
     
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  17. hognose

    hognose Other · Well-Known Member

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    thank you, are you not a pumper then ?
     
  18. TheBigNewt

    TheBigNewt Type 1 · Well-Known Member

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    I am not. I've done the injections since I was diagnosed in 1984 and have had quite good control without an inordinate amount of hypoglycemic episodes. I think the pump is helpful for people who have a lot of that happen, the infusion rate can be adjusted automatically during the day/night. The person might need less insulin at night to avoid getting low for instance. Which is the most dreaded complication of Type 1 diabetes: "waking up dead".
     
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  19. SueJB

    SueJB Type 1 · Well-Known Member

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    you're doing well with the Hb diddly doos
     
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  20. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

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    Hognose - Forgive my curiosity, but were you an insulin dependent T2 prior to your reclassification?

    If not, could I ask what led to the c-peptide test as your HbA1c results were extremely stable?
     
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