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Pre-proliferative retinopathy

Discussion in 'Type 1 Diabetes' started by supertuffs, Jul 11, 2014.

  1. supertuffs

    supertuffs Type 1 · Member

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    Hi all. I've received a letter today following on from my annual diabetic eye screening. I have pre-proliferative retinopathy.

    Have any other type 1's out there been diagnosed with the same thing? I'm wanting to know what I'm in for.....

    Thanks, a rather scared T1


    Sent from the Diabetes Forum App
     
  2. gfmoore

    gfmoore Type 2 · Well-Known Member

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    Odd, I thought I had replied to this last night? Oh perhaps someone else has the same issue.

    Anyways, I personally have not got that and I'm T2, but I have had to visit the eye docs for laser scans etc. I have found the professionals there (in Stoke) to be very good and helpful so I'm sure you're in good hands. The great thing is that they are screening your eyes and have picked up warning signs, so now they can be pro-active and you and they can do things to keep control. And so you won't go blind in the short term. I have no idea of the long term of course.

    But (and it was the wake up call I needed when I had a blur spot in my eye) you do now need to do everything you can to get control of this monster. I of course don't know how you are dealing with your diabetes, perhaps you'd care to let us know a little about yourself and what you currently do to control your blood glucose levels

    In the mean time here is an intro given to new folk here. And Don't Panic! :)

    edit: found this link http://www.diabeticretinopathy.org.uk/pre-proliferative.html though now looking I am not sure I agree personally with the diet advice. many of us on this forum (but not all) are low carb high fat dieters.


    I'm sure there are many more.

    [Note to moderators is there an official policy on this? I don't want to be treading on anyone's toes. If not perhaps there should be one.]


    Here is the information we give to new members and I think you will find it answers some of your questions. Ask anything else you need to know and someone will help.

    BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 100,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
    There are two approaches to controlling your carbs:

    Reduce your carbohydrate intake
    Choose ‘better’ carbohydrates

    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
    http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    Before meals: 4 to 7 mmol/l
    2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    Before meals: 4 to 7 mmol/l
    2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    Before meals: 4 to 8 mmol/l
    2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips

    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

    structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic

    Note: This post has been edited from Sue/Ken's post to include up to date information.
     
  3. noblehead

    noblehead Type 1 · Guru
    Retired Moderator

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    There's quite a few of us on the forum who have been through what your experiencing, the following thread is a recent one but if you type in Retinopathy in the forum search facility you'll find many more:


    http://www.diabetes.co.uk/forum/threads/having-laser.58142/#post-541040

    If you click on the link that I posted in the above thread it will take you to a site that explains all you need to know about diabetic retinopathy.
     
    • Like Like x 2
  4. gfmoore

    gfmoore Type 2 · Well-Known Member

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    Thanks @noblehead - didn't want the OP to feel alone :)
     
  5. catherinecherub

    catherinecherub · Guest

    @gfmoore
    Can you clarify what you mean with this statement?

    edit: found this link http://www.diabeticretinopathy.org.uk/pre-proliferative.html though now looking I am not sure I agree personally with the diet advice. many of us on this forum (but not all) are low carb high fat dieters.


    I'm sure there are many more.

    [Note to moderators is there an official policy on this? I don't want to be treading on anyone's toes. If not perhaps there should be one.]
     
  6. supertuffs

    supertuffs Type 1 · Member

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    Thanks all for your replies, they really are very much appreciated.

    So, T1 since 1998, and been on the pump since 2010 due to little hypo awareness. I'm 39 years old. My control essentially is good, I struggle keeping level(ish) when exercising and tend to be a little higher post exercise. This could be an issue as exercise features a fair amount for me

    My diet, a lot like others on here is low carb and some high fat. Lots of fresh produce with some fruit. A lot of salads and veg. I have the odd glass of wine!

    I had my screening Monday and already got the letter today. They have said they will refer me to the eye specialist and take things from there.

    I'm guilty of avoiding these people in the medical profession. For years I never wanted to admit I had anything wrong with me and only injected when I became tired or thirsty. The last 8 years have been much more stable for me, although I do have the odd day where I just get fed up of pricking my fingers, infact at times I don't have to prick them, squeezing them a tiny amount produces blood.

    I still struggle with the diabetic doctors, and find the nurses much easier to talk with and understand. The pump is wonderful and I wouldn't want to lose it, on my last appointment I was told the funding may not be there - this doesn't make me want to go back and potentially get into another "funding" conversation where the future of my pump is put into question.

    Huge wake up call I guess, for my past behaviour. My last hba1c was 7.1 so not overly high. I'm more scared of receiving this letter today and not knowing what lies ahead.

    Thanks again for taking the time to talk

    Lisa






    Sent from the Diabetes Forum App
     
  7. gfmoore

    gfmoore Type 2 · Well-Known Member

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    The first point: The site says
    As far as I can work out from the evidence there is nothing wrong with saturated fat.
    Too much fruit contains lots of sugar and that can't be good
    I have no idea about salt, but the evidence - see the Diet Delusion Gary Taubes - shows that the research evidence is not as clear cut as some would like us to think
    Alcohol - some think that alcohol can be beneficial for the liver - clearly not too much, but "more than this leads to brain damage"!!!
    Agree with no trans fats, but as said saturated fat is fine

    My personal take. Happy to provide more info/references if wanted.


    As far as the note to moderators, this was in reference to the advice posted to new forumites. I don't know if someone has been assigned the role of posting the nicely formatted blurb - I just copied it, but I don't want to be presumptuous.


    Have a lovely day :)
     
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