Reactive Hypoglycaemia Help! Really Struggling.

Catkysydney

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101
with the likes of jerky and other similar products, it is the processed food and ingredients with the industrial sugars which we have to be careful with. And there are so many traps, that are low carb, sugar free oor No added sugar, fat free or low fat. Protein bars and so on. Some may be ok. But being careful may stop the trigger for a hypo. Even most so called healthy shakes, may be too concentrated.which of course adds, concentrated fruit juices, wether wholly fruit or fruit juices which are watered down.

I do think I mentioned energy levels, before diagnosis, I had none.
After fasting test and going keto, the energy levels increased substantially.
And even now, when in or around keto, my energy levels are brilliant.
I know you have mentioned how much you feel better.
And your cooking exploits are a part of that. Wanting to do more.
It will come.
The pomp and circumstance is not bad. I'm a republican. But saying that, my nephew is a sergeant in the Blues and Royals horse Guards. And in Afghanistan with one of the princes. And done royal duties.
His role within the regiment, is to train the recruits horse husbandry, the horsemanship on duty and parades.
And all the trappings of parade and army life.

I used to meet up with him at footie away games near his barracks or around the Windsor area, with his family. And you will see this level of traditional nonsense in every city in Europe. And you will no doubt enjoy it.

Have a great trip.
My best wishes.

Yes… indeed … I have to be more careful about processed food.. As you mentioned before .. I am learning from some mistakes .. blood sugar is a concern…

Tonight I cooked fried vegetables.. my partner cooked grilled chicken drumsticks. It is amazing for me to keep standing up and cooking ..

I sleep better too .. I took temazepam every night before bed…, but now I forgot to take it sometimes..

I have a great hope .. I enjoy Keto . I don’t need to worry about hypo at all ♀️

Your nephew is a sergeant in the Blues and Royals horse Guards ! So he was in the parade ? Wow !!

You go to the game of footie ? Is it Rugby or Soccer ? ( footy is Rugby in Australia ) I am a great fan of Australian National Rugby League.. I watch games at a stadium and on TV . I met a lot of players at our regular cafe.. I love Burgess brothers , we met their mother and grandmother too ..

Europe has a lo-ong history , so it is very interesting .

I sincerely appreciate your advice and support , Lamont !!

With Best Wishes to you …♀️
 
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Catkysydney

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Hi @Catkysydney, I noticed earlier on in your post that you have a few food intolerances, particular gluten. I have coeliac so gluten is always a big deal for me. Gluten in purchased food and in the ingredients one uses at home to create your own meals , quite frankly is a minefield. My home is completely gluten free. Can you tolerate a small amount of gluten before your body reacts negatively to it, or are you like me, 100% intolerant? I cook everything from scratch. I’m also lactose intolerant, but my body can tolerate a small amount, like a drop in my tea, that kind of thing. Until I stopped gluten, I was unable to tolerate fructose. Fruit was out for me, but now I can eat fruit. The other thing you mentioned was Stevia. I cannot tolerate any artificial sweeteners. I am in several coeliac groups, I don’t participate in general, but something a lot of coeliacs have in common is an inability to tolerate artificial sweeteners. I thought I was on my own with that, but apparently not.
As @Lamont D states there are many traps with store bought products containing hidden nasties such as sugars and gluten. A lot of beef jerky contains gluten unless you make your own. I believe that our global food industry is messed up and our current diabetes epidemic is a direct consequence. Not only diabetes, but many other metabolic disorders.

Thank you very much for your reply !!
Yes , I have quite a few food intolerance.
Lactose intolerance, gluten intolerance ( I am not coeliac, but extremely sensitive ), I cannot digest animal fat…

I can have a small amount of lactose , but it gives me bowel problems …. Gluten is the same , I can eat it, but it gives me problem.

I had Stevens-Johnson Syndrome from Mobic 12 years ago . My digestive system was damaged and after that so troublesome…

I asked my doctor about a blood test for food intolerance, but I was told it would be $500…. Very expensive..

I have developed latex allergy, so banana gives me stomachaches straight away … tomatoes, avocados… etc. they causes stomachaches and I have to rush into the bathroom..

You cook everything from scratch !! It is incredible..
Do you bake gluten free bread as well ?? ( I used to go to a bakery specialising only gluten free ).

Coeliac is very hard to manage and people don’t understand about it .., they tend to say ,”you can eat it a little, right ?”. Definitely not for coeliac patients. It will be serious . I am intolerant, I try to avoid as much as possible such as noodles and pastas , which raise my blood sugar.
I heard Activated Charcoal is helpful .. is it true ??

You cannot take any artificial sweeteners…. This is hard too .. I drink Coke Zero all the time.. and I use Stevia a lot ….

“ I believe that our global food industry is messed up and our current diabetes epidemic is a direct consequence. Not only diabetes, but many other metabolic disorders.”

I could not agree with you more …. We have to be careful …

I started Keto diet with a support from my doctor and dietitian. I will be involved in more cooking …lol.. I have energy .. this is a good side effect.

I appreciate your valuable information…

With best wishes to you …♀️
 

Lamont D

Oracle
Messages
16,493
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Yes… indeed … I have to be more careful about processed food.. As you mentioned before .. I am learning from some mistakes .. blood sugar is a concern…

Tonight I cooked fried vegetables.. my partner cooked grilled chicken drumsticks. It is amazing for me to keep standing up and cooking ..

I sleep better too .. I took temazepam every night before bed…, but now I forgot to take it sometimes..

I have a great hope .. I enjoy Keto . I don’t need to worry about hypo at all ♀️

Your nephew is a sergeant in the Blues and Royals horse Guards ! So he was in the parade ? Wow !!

You go to the game of footie ? Is it Rugby or Soccer ? ( footy is Rugby in Australia ) I am a great fan of Australian National Rugby League.. I watch games at a stadium and on TV . I met a lot of players at our regular cafe.. I love Burgess brothers , we met their mother and grandmother too ..

Europe has a lo-ong history , so it is very interesting .

I sincerely appreciate your advice and support , Lamont !!

With Best Wishes to you …♀️
Footie is association football. Soccer for the yanks.
I'm watching the European footie championship which is in Germany this time around,
A footie feast!

Yes, I support my local club, which we live very close to.
My first ever professional game was on my birthday in 1968. At Everton..
I worked for my club up until covid.
I had various roles, first as a volunteer, then part time, then full time. In the last twenty-odd years before covid.
I have on my travels visited about 140 football grounds. There are still a few on my go to list. But as always, life gets in the way.

My son in law supports Leeds Rhinos. And I do keep an eye on them regularly.
And I much prefer League to union.

And yes, I have some really good photos of my nephew at various royal events either on parade or on duty.
When he was young, he was the same age as my youngest and went to games together, with the rest of the family. At a final in 2018, there was about 20 of my immediate family at Wembley.

You will love the history.

No advice today!!!!!!

Best wishes.
 
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Melgar

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Thank you very much for your reply !!
Yes , I have quite a few food intolerance.
Lactose intolerance, gluten intolerance ( I am not coeliac, but extremely sensitive ), I cannot digest animal fat…

I can have a small amount of lactose , but it gives me bowel problems …. Gluten is the same , I can eat it, but it gives me problem.

I had Stevens-Johnson Syndrome from Mobic 12 years ago . My digestive system was damaged and after that so troublesome…

I asked my doctor about a blood test for food intolerance, but I was told it would be $500…. Very expensive..

I have developed latex allergy, so banana gives me stomachaches straight away … tomatoes, avocados… etc. they causes stomachaches and I have to rush into the bathroom..

You cook everything from scratch !! It is incredible..
Do you bake gluten free bread as well ?? ( I used to go to a bakery specialising only gluten free ).

Coeliac is very hard to manage and people don’t understand about it .., they tend to say ,”you can eat it a little, right ?”. Definitely not for coeliac patients. It will be serious . I am intolerant, I try to avoid as much as possible such as noodles and pastas , which raise my blood sugar.
I heard Activated Charcoal is helpful .. is it true ??

You cannot take any artificial sweeteners…. This is hard too .. I drink Coke Zero all the time.. and I use Stevia a lot ….

“ I believe that our global food industry is messed up and our current diabetes epidemic is a direct consequence. Not only diabetes, but many other metabolic disorders.”

I could not agree with you more …. We have to be careful …

I started Keto diet with a support from my doctor and dietitian. I will be involved in more cooking …lol.. I have energy .. this is a good side effect.

I appreciate your valuable information…

With best wishes to you …♀️
I have trouble with animal fats too! Consuming even a small amount of animal fat brings on nausea, so I don’t eat fats. None Coeliac Gluten Sensitivity NCGS one experiences all the same symptoms as if you were coeliac but without the intestinal damage. My coeliac affects my skin as well. Your Steven’s-Johnson Syndrome sounds unpleasant. I must admit I had to look it up.

When you have serious allergies or intolerances then the only way really is to cook your own food, that way you know what’s going into your meals. I have got used to cooking now I don’t think anything of it. My body cannot tolerate any gluten without symptoms. Unlike my lactose intolerance.

My blood sugars are very unstable. They can be all over the place. Difficult to manage. I was and still have some nasty hypos, but they tend to come in swarms. I would have suspected RH, but as already been mentioned if you become hypoglycaemic on a fast then it’s not HP, and I do. Also my blood sugars rise say to 13 mmol/ls then come down a bit to 10 and stay there for several hours then settle at 6. I don't then go low with a big rush of insulin. From that I concluded I don’t have RH. We do share some similarities though, the issue with your fats is interesting. I did the Keto diet for 9 months, but it did little to lower my blood sugars, I just dropped weight. I am naturally thin, so all that happened was I went under weight.

Do you still have your first phase insulin release? I lost mine a while back.

Anyways nice chatting,
Mel
 

Lamont D

Oracle
Messages
16,493
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I have trouble with animal fats too! Consuming even a small amount of animal fat brings on nausea, so I don’t eat fats. None Coeliac Gluten Sensitivity NCGS one experiences all the same symptoms as if you were coeliac but without the intestinal damage. My coeliac affects my skin as well. Your Steven’s-Johnson Syndrome sounds unpleasant. I must admit I had to look it up.

When you have serious allergies or intolerances then the only way really is to cook your own food, that way you know what’s going into your meals. I have got used to cooking now I don’t think anything of it. My body cannot tolerate any gluten without symptoms. Unlike my lactose intolerance.

My blood sugars are very unstable. They can be all over the place. Difficult to manage. I was and still have some nasty hypos, but they tend to come in swarms. I would have suspected RH, but as already been mentioned if you become hypoglycaemic on a fast then it’s not HP, and I do. Also my blood sugars rise say to 13 mmol/ls then come down a bit to 10 and stay there for several hours then settle at 6. I don't then go low with a big rush of insulin. From that I concluded I don’t have RH. We do share some similarities though, the issue with your fats is interesting. I did the Keto diet for 9 months, but it did little to lower my blood sugars, I just dropped weight. I am naturally thin, so all that happened was I went under weight.

Do you still have your first phase insulin release? I lost mine a while back.

Anyways nice chatting,
Mel
It has always blown my mind since starting the RH forum.
How similar we are in some respects, yet how utterly different in many others.
Similar symptoms but with different outcomes.

The most fascinating was the person with all the symptoms, and all the typical hypoglycaemia issues. However, after every test on BG levels and hba1c, being normal. The tests that followed were all normal, and the hospital and endocrinologist couldn't find other than normal even though the symptoms were obvious.
until they did the eOGTT test and tested every fifteen. As expected, the symptoms were there but the BG were in normal. And they found that his BG levels never went above normal and the symptoms of a sugar crash was there, hypo symptoms, the BG levels never dropped below normal.
The specialist called it flat-line hypoglycaemia.
And believe it or not, keto was the best treatment for it. With a few exceptions as always with keto.

Then there is idiopathic postprandial syndrome.

Good to chat.
Best wishes.
 
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Melgar

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It has always blown my mind since starting the RH forum.
How similar we are in some respects, yet how utterly different in many others.
Similar symptoms but with different outcomes.

The most fascinating was the person with all the symptoms, and all the typical hypoglycaemia issues. However, after every test on BG levels and hba1c, being normal. The tests that followed were all normal, and the hospital and endocrinologist couldn't find other than normal even though the symptoms were obvious.
until they did the eOGTT test and tested every fifteen. As expected, the symptoms were there but the BG were in normal. And they found that his BG levels never went above normal and the symptoms of a sugar crash was there, hypo symptoms, the BG levels never dropped below normal.
The specialist called it flat-line hypoglycaemia.
And believe it or not, keto was the best treatment for it. With a few exceptions as always with keto.

Then there is idiopathic postprandial syndrome.

Good to chat.
Best wishes.
Isn’t that a fact @Lamont D . The number of hypos I was experiencing lessened when I increased my carb intake so the complete opposite to keto! I have often wondered what my results would be taking an eOGTT test, but they are not a routine test here in Canada. It is said often, but it is a truism, we are all different. Our bodies are so finely tuned. If some hormone or chemical is out of range then it can have a knock on effect somewhere else. RH is so interesting and a prime example of something being off kilter, like insulin secretion. Insulin being the hub for so many processes in your body Not just blood sugar management. As always, great to chat , Mel
 
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Lamont D

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Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Isn’t that a fact @Lamont D . The number of hypos I was experiencing lessened when I increased my carb intake so the complete opposite to keto! I have often wondered what my results would be taking an eOGTT test, but they are not a routine test here in Canada. It is said often, but it is a truism, we are all different. Our bodies are so finely tuned. If some hormone or chemical is out of range then it can have a knock on effect somewhere else. RH is so interesting and a prime example of something being off kilter, like insulin secretion. Insulin being the hub for so many processes in your body Not just blood sugar management. As always, great to chat , Mel
A lot of those who practice and give medical advice, have some idea of the complexity of how our body's response to food and drink.
My response to the first phase response is weak, this is detailed as my insulin response, but to give it more detail, there is so many hormones are activated before the actual first forkful. And even scientists are struggling to even name them all and can't say wether it is the norm, or not.
And if on top of that, if we have other hormonal imbalance conditions, the response is different, and another on top.......
Then your first phase will be different even with the same condition.
My daughter struggled with her thyroids. One was hyper and the other hypo.
And her symptoms were all over the place.
So say if, it is similar to a domino effect, where one imbalanced hormone impacts on another and so on.
We get some real weirdness, much like yourself! Ha!
Of course the biggest question is how and why does it all begin?
Why are we so intolerant to certain foodstuff?

The gut biotic, the brain gut axis of signals to the organs, glands and secretions, the millions of good and bad bacteria, the whole process is so complicated.
Just wonder if the boffins could ever figure it out.
 

Melgar

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A lot of those who practice and give medical advice, have some idea of the complexity of how our body's response to food and drink.
My response to the first phase response is weak, this is detailed as my insulin response, but to give it more detail, there is so many hormones are activated before the actual first forkful. And even scientists are struggling to even name them all and can't say wether it is the norm, or not.
And if on top of that, if we have other hormonal imbalance conditions, the response is different, and another on top.......
Then your first phase will be different even with the same condition.
My daughter struggled with her thyroids. One was hyper and the other hypo.
And her symptoms were all over the place.
So say if, it is similar to a domino effect, where one imbalanced hormone impacts on another and so on.
We get some real weirdness, much like yourself! Ha!
Of course the biggest question is how and why does it all begin?
Why are we so intolerant to certain foodstuff?

The gut biotic, the brain gut axis of signals to the organs, glands and secretions, the millions of good and bad bacteria, the whole process is so complicated.
Just wonder if the boffins could ever figure it out.
Totally agree.
I believe my own first phase insulin release is very weak to non existent . I gather our beta cell function starts to decrease significantly a few years before any significant blood sugar problems show up. Is the first phase compromised in the majority of those suffering from RH? My own blood sugar starts to rise around 30 to 40 minutes after the first mouthful. I rarely detect any rise on my CGM before, which I’m assuming I would see It, no matter how subtle. My understanding is that your first phase insulin release is activated from a constant reserve of insulin, within 10 minutes after our beta cells detect a rise in blood sugar. There is only a small amount of insulin in that reserve. The second phase is then activated,the beta cells have to produce that insulin, and then the insulin is continually produced until homeostasis is achieved. Such a fine intricate system. I read somewhere that beta cells are 10 x more sensitive to blood sugar than sny other cell in our body. They are intricately connected to a bunch of blood vessels with the pancreas. It blows my mind. There is a lot to go wrong !
 

Melgar

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And in your case your insulin secretion just keeps going way past the point it should cease !
 
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Lamont D

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16,493
Type of diabetes
Reactive hypoglycemia
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I do not have diabetes
Totally agree.
I believe my own first phase insulin release is very weak to non existent . I gather our beta cell function starts to decrease significantly a few years before any significant blood sugar problems show up. Is the first phase compromised in the majority of those suffering from RH? My own blood sugar starts to rise around 30 to 40 minutes after the first mouthful. I rarely detect any rise on my CGM before, which I’m assuming I would see It, no matter how subtle. My understanding is that your first phase insulin release is activated from a constant reserve of insulin, within 10 minutes after our beta cells detect a rise in blood sugar. There is only a small amount of insulin in that reserve. The second phase is then activated,the beta cells have to produce that insulin, and then the insulin is continually produced until homeostasis is achieved. Such a fine intricate system. I read somewhere that beta cells are 10 x more sensitive to blood sugar than sny other cell in our body. They are intricately connected to a bunch of blood vessels with the pancreas. It blows my mind. There is a lot to go wrong !
I agree with that summation, and of course there is a however.
I did a trial with a gliptin drug, that greatly increased my first phase insulin response, as it was designed to do with T2s, because it does occur with other conditions. As far as I have researched, it is inflammation that effects your health in many ways. And the result with other factors decreases our beta cells.
I would definitely agree with the point of first phase with RH. The rapidly increasing spike, which is abnormal, my spike is always between 40 & 50 minutes. This will trigger my brain signalling the pancreas to get some (more) insulin and an abnormal second insulin response called an overshoot will drive down, similar to a sugar crash, which will put me into hypos. The body's natural ability to prevent hypos, a liver dump. (Glucogenisis) is swamped and prevent it.
The majority of symptoms are caused by the rapidity of the rollercoaster ride of BG levels.
I believe the only time I'm in homeostasis, is in the morning whilst I'm fasting. Until my window from about mid afternoon till around 7pm. This is because I don't want to go to bed having a hypo.
And with the fasting and keto, my energy levels are brilliant.
A lot can go wrong, and no doubt, like me, it did, and I do believe we both are fortunate enough to have found a diagnosis of sorts and a treatment (it's food, how can it be ok that we cannot eat that we should be able to have.)
We have had to do this, both find the reasons and the science and tailor that information to our lifestyles.
My endocrinologist was brilliant, and the conversations we had, not only over the diagnosis, tests, outcomes and more particularly over keto, we got there and he was so supportive of all my actions and reasons for doing it.
And logic, my results from experimenting and experience, went a long way, to help him understand why keto works. Tailored to our tastes and resources.
I only use animal fats.
And I cook everything fresh!
I'm enjoying this.
Best wishes.
 
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Melgar

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I agree with that summation, and of course there is a however.
I did a trial with a gliptin drug, that greatly increased my first phase insulin response, as it was designed to do with T2s, because it does occur with other conditions. As far as I have researched, it is inflammation that effects your health in many ways. And the result with other factors decreases our beta cells.
I would definitely agree with the point of first phase with RH. The rapidly increasing spike, which is abnormal, my spike is always between 40 & 50 minutes. This will trigger my brain signalling the pancreas to get some (more) insulin and an abnormal second insulin response called an overshoot will drive down, similar to a sugar crash, which will put me into hypos. The body's natural ability to prevent hypos, a liver dump. (Glucogenisis) is swamped and prevent it.
The majority of symptoms are caused by the rapidity of the rollercoaster ride of BG levels.
I believe the only time I'm in homeostasis, is in the morning whilst I'm fasting. Until my window from about mid afternoon till around 7pm. This is because I don't want to go to bed having a hypo.
And with the fasting and keto, my energy levels are brilliant.
A lot can go wrong, and no doubt, like me, it did, and I do believe we both are fortunate enough to have found a diagnosis of sorts and a treatment (it's food, how can it be ok that we cannot eat that we should be able to have.)
We have had to do this, both find the reasons and the science and tailor that information to our lifestyles.
My endocrinologist was brilliant, and the conversations we had, not only over the diagnosis, tests, outcomes and more particularly over keto, we got there and he was so supportive of all my actions and reasons for doing it.
And logic, my results from experimenting and experience, went a long way, to help him understand why keto works. Tailored to our tastes and resources.
I only use animal fats.
And I cook everything fresh!
I'm enjoying this.
Best wishes.
Ha, yes there is always a however ! I am definitely a systems person. How systems are interconnected. I just find it a point of interest. Yes, an inflammatory response is a red flag for many diseases and problems. My C-reactive proteins fall within the ‘normal range’ but it’s a marker I keep an eye on when I get by blood panel done. Are your CRP levels something that would be raised in RH ? I mean there can be many reasons for an increase in CRP levels, including insulin resistance, arthritis, and autoimmune disorders. And just out of interest are your C-peptides raised or normal? I’m assuming they are normal as you are on a Keto diet. My C-peptides are normal, but at the lower end. I’m assuming from that I don’t have insulin resistance, or very little as my pancreas doesn’t produce shed loads of insulin to counter the insulin resistance. The fact that I have raised blood sugars, and completely unstable, I fear my pancreas is either periodically compromised or it’s due to coeliac , albeit I’m 100% gluten free, which compromises nutrient absorption. The interesting thing is I produce ketones, not a great amount, but they are consistently there.

I was advised to increase my carb consumption which I did and to my surprise my hypo events decreased Which is completely the opposite to yours. I couldn’t rely on my liver dumping, in fact I would watch as my blood sugars plunged at a fast rate but my liver would not step in with a correction. I had to intervene. This has changed with the upping of my carbs, now my liver dumps, which is what Type 2’s don’t necessarily need or want. I look at my night time graphs and I see my sugars going low, then a glorious thing happens, my blood sugars rise, usually to around 6. So your liver fails to correct the blood sugar tumble.

I love my exercises and I’m guessing part of the reason for my liver sometimes failing to dump is down to my depleted glycogen stores. So there are a number of possibilities for my blood sugars dropping, but as I said, they are far less frequent now. My CGM recorded all my hypos in the low glucose events feature And there were a lot.

The lack of a first phase insulin response, Im sure as you say, is the slow depletion of beta cell mass. But what causes that? What caused yours? If it starts a few years earlier, I read around 10 years, likely when one’s blood sugars are only slightly raised, it cannot be due to beta cell exhaustion or toxicity surely. So many questions !

So similar yet we are different.
 
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Lamont D

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Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Ha, yes there is always a however ! I am definitely a systems person. How systems are interconnected. I just find it a point of interest. Yes, an inflammatory response is a red flag for many diseases and problems. My C-reactive proteins fall within the ‘normal range’ but it’s a marker I keep an eye on when I get by blood panel done. Are your CRP levels something that would be raised in RH ? I mean there can be many reasons for an increase in CRP levels, including insulin resistance, arthritis, and autoimmune disorders. And just out of interest are your C-peptides raised or normal? I’m assuming they are normal as you are on a Keto diet. My C-peptides are normal, but at the lower end. I’m assuming from that I don’t have insulin resistance, or very little as my pancreas doesn’t produce shed loads of insulin to counter the insulin resistance. The fact that I have raised blood sugars, and completely unstable, I fear my pancreas is either periodically compromised or it’s due to coeliac , albeit I’m 100% gluten free, which compromises nutrient absorption. The interesting thing is I produce ketones, not a great amount, but they are consistently there.

I was advised to increase my carb consumption which I did and to my surprise my hypo events decreased Which is completely the opposite to yours. I couldn’t rely on my liver dumping, in fact I would watch as my blood sugars plunged at a fast rate but my liver would not step in with a correction. I had to intervene. This has changed with the upping of my carbs, now my liver dumps, which is what Type 2’s don’t necessarily need or want. I look at my night time graphs and I see my sugars going low, then a glorious thing happens, my blood sugars rise, usually to around 6. So your liver fails to correct the blood sugar tumble.

I love my exercises and I’m guessing part of the reason for my liver sometimes failing to dump is down to my depleted glycogen stores. So there are a number of possibilities for my blood sugars dropping, but as I said, they are far less frequent now. My CGM recorded all my hypos in the low glucose events feature And there were a lot.

The lack of a first phase insulin response, Im sure as you say, is the slow depletion of beta cell mass. But what causes that? What caused yours? If it starts a few years earlier, I read around 10 years, likely when one’s blood sugars are only slightly raised, it cannot be due to beta cell exhaustion or toxicity surely. So many questions !

So similar yet we are different.
I have no idea what my CRPs are, but I believe I would have been told at the time, if they weren't ok.
Because of the diet I was on a decade plus before diagnosis, (recommended) and being misdiagnosed with T2, my bloods were all over the place, and I did have insulin resistance, my arthritis is getting worse especially In my neck, (spondylitis) and my c-peptide is within normal but have had it done two or three times. My annual is five blood vials. I know my bloods during my first and second eOGTT, we're sent to a specialist laboratory. But was assured normal.
Unfortunately, when my my insulin levels were tested during the tests and after, it was always above normal, save for the fasting, first phase. Second phase was above normal and high, but insulin resistance was prevalent.
So I was over producing lots of insulin (overshoot) and swamping any action from my liver, wether there was, is anyone's guess. I still overproduce if I don't stick to keto.
I reckon with my food diary details, that my blood glucose levels peaked and troughed, multiple times a day, before diagnosis, when starting with porridge for breakfast first thing, as recommended.
If I'm not mistaken glycogen, glucagon, are stored for use. To be used when needed. So if not there or an imbalance, that is maybe why?
I asked my endocrinologist when and why, it all began?
He wasn't too certain but he did say it was a long time coming and with the lactose intolerance, the intolerance to other sugars, the glucose intolerance does correlate with the prediabetes, T2 misdiagnosis, insulin resistance, first phase, weight gain and all the symptoms.
But I believe, that looking back and other aligned gut and stomach issues, such as finding helicobactor pylori, a bad bacterial infection, and a hiatus hernia, and being warned of the effect to the antibiotics for the bacteria, has cleared the infection but could have done some damage to my homeostasis.
I was surprised to find a U.S.paper on the bacteria and the gut, brain axis, and hypoglycaemia.
It is included in the wiki page of route causes.
I informed my endocrinologist, who told me........ Maybe......it's as good as an explanation as any.
This is why, RH was formerly known as idiopathic. Because the route cause was a matter of debate, cos they were not sure that food was causing the hypo. Strange?
What else could it have been?
So I do agree that like most endocrine, metabolic conditions, the time it takes to develop is around a decade.
Abnormal BG levels can be dismissed as a one off, but frequent episodes, should always be investigated.
And of course an M.O.T. Should be done.
I have tried many times to find at what BG levels triggers the reaction. But without success. It is I believe an automatic (???) response. But if I do go above normal levels (ish) I do react.
It is intriguing that upping carbs has helped you suffer less symptoms and reduced the hypos.
There must be a reason for this, maybe the imbalance of other hormones not so much insulin, counteract the spike in some way? Maybe insulin in the second phase counters the spike, but does not cause another imbalance? I don't know! Maybe the exercise has a bearing?
As you say so many questions?
The one thing I haven't asked is.......
Have your doctors put a name to it, or the cause, or just another form of hypoglycaemia?
 

Catkysydney

Well-Known Member
Messages
101
Footie is association football. Soccer for the yanks.
I'm watching the European footie championship which is in Germany this time around,
A footie feast!

Yes, I support my local club, which we live very close to.
My first ever professional game was on my birthday in 1968. At Everton..
I worked for my club up until covid.
I had various roles, first as a volunteer, then part time, then full time. In the last twenty-odd years before covid.
I have on my travels visited about 140 football grounds. There are still a few on my go to list. But as always, life gets in the way.

My son in law supports Leeds Rhinos. And I do keep an eye on them regularly.
And I much prefer League to union.

And yes, I have some really good photos of my nephew at various royal events either on parade or on duty.
When he was young, he was the same age as my youngest and went to games together, with the rest of the family. At a final in 2018, there was about 20 of my immediate family at Wembley.

You will love the history.

No advice today!!!!!!

Best wishes.

Wow !! You have been involved in your club so deeply snd sincerely …. I envy you .. you visited 140 grounds ! Amazing !!

My job was a systems analyst/project manager in the mainframe computers.. this sounds boring.

Also at the same time I was a professional ballroom dancer .. so I attended a lot of dance competitions…

I am a very keen supporter of the Rabbitohs(league). We had 4 Burgess brothers in the club , they are from Dewsbury in UK. I love all of them . Currently Sam Burgess is the head coach of Warrington Wolves.

Great to support sports team ….

Your nephew’s photos are attractive , I am sure !!
He had a very important role.

When we are in London , we will attend a historic pub tour, my partner worked in London long time ago , so he wants to do it . Could you recommend which pub is worth visiting , if you have some idea, please ?? My partner loves English pubs..

Very nice to have a talk with you , Lamont !!

I always appreciate all of your stories…

Best wishes to you …..♀️♀️
 

Catkysydney

Well-Known Member
Messages
101
I have trouble with animal fats too! Consuming even a small amount of animal fat brings on nausea, so I don’t eat fats. None Coeliac Gluten Sensitivity NCGS one experiences all the same symptoms as if you were coeliac but without the intestinal damage. My coeliac affects my skin as well. Your Steven’s-Johnson Syndrome sounds unpleasant. I must admit I had to look it up.

When you have serious allergies or intolerances then the only way really is to cook your own food, that way you know what’s going into your meals. I have got used to cooking now I don’t think anything of it. My body cannot tolerate any gluten without symptoms. Unlike my lactose intolerance.

My blood sugars are very unstable. They can be all over the place. Difficult to manage. I was and still have some nasty hypos, but they tend to come in swarms. I would have suspected RH, but as already been mentioned if you become hypoglycaemic on a fast then it’s not HP, and I do. Also my blood sugars rise say to 13 mmol/ls then come down a bit to 10 and stay there for several hours then settle at 6. I don't then go low with a big rush of insulin. From that I concluded I don’t have RH. We do share some similarities though, the issue with your fats is interesting. I did the Keto diet for 9 months, but it did little to lower my blood sugars, I just dropped weight. I am naturally thin, so all that happened was I went under weight.

Do you still have your first phase insulin release? I lost mine a while back.

Anyways nice chatting,
Mel

Hi Mel,
You have fasting hypo ?? Before I had too .. also after exercise, I had hypo.. do you have this ?
You are thin, me too .

When I had OGTT with insulin level,

Result. mmol/L(mg/dL) Insulin(mlU/L)

Fasting. 5.1. ( 91.8 ). 4

1hr. 14.1. ( 253.8 ). 17

2hr. 13.1 ( 235.8 ). 29

2.5hr. 10.2. ( 183.6 )

3hr. 5.3 ( 95.4 ). 9

3.5hr. 3.6. ( 64.8 )

4hr. 3.2. ( 57.6 )

My result was like this ! So I had a big spike and hypo…. Insulin numbers are similar after 2 hour in the highest then became low. So I don’t have insulin resistance.

You have been doing Keto diet and it did not lower your blood sugar ? Hmmm.. my case is fasting sugar is around 6.5 mmol/L( sometimes higher ! “Dawn phenomenon “? ), 2 hour after meal is 6.2mmol/L.

Have you tested C-peptide and autoantibodies ?

Reactive hypoglycemia can lead you to type 1 or type 2 diabetes. This was I heard .. so I tested .., I am not type 1. I may develop type 2..( I was diagnosed with type 2 , my previous doctor completely ignored my hypo, he focused my high spike only )

I cannot digest animal fat .. it makes me vomiting…
Also fatty raw fish is the same.. also I was told from a gastroenterologist that I cannot digest fat.

I have just noticed that I became nauseous by eating macadamia nuts…. Today is the second time .. macadamia nuts are the best nuts for Keto diet.. first time, I ended up taking Zofran .., so nauseous . Both time , I became nauseous straight after I ate macadamia nuts.. Web site said one of the symptoms of nuts allergy is nausea. I will find out this happens again or not. I can eat peanuts without any problems..

More food sensitivity…

I became quite allergic…

Best wishes to you !!♀️
 
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Catkysydney

Well-Known Member
Messages
101
I have no idea what my CRPs are, but I believe I would have been told at the time, if they weren't ok.
Because of the diet I was on a decade plus before diagnosis, (recommended) and being misdiagnosed with T2, my bloods were all over the place, and I did have insulin resistance, my arthritis is getting worse especially In my neck, (spondylitis) and my c-peptide is within normal but have had it done two or three times. My annual is five blood vials. I know my bloods during my first and second eOGTT, we're sent to a specialist laboratory. But was assured normal.
Unfortunately, when my my insulin levels were tested during the tests and after, it was always above normal, save for the fasting, first phase. Second phase was above normal and high, but insulin resistance was prevalent.
So I was over producing lots of insulin (overshoot) and swamping any action from my liver, wether there was, is anyone's guess. I still overproduce if I don't stick to keto.
I reckon with my food diary details, that my blood glucose levels peaked and troughed, multiple times a day, before diagnosis, when starting with porridge for breakfast first thing, as recommended.
If I'm not mistaken glycogen, glucagon, are stored for use. To be used when needed. So if not there or an imbalance, that is maybe why?
I asked my endocrinologist when and why, it all began?
He wasn't too certain but he did say it was a long time coming and with the lactose intolerance, the intolerance to other sugars, the glucose intolerance does correlate with the prediabetes, T2 misdiagnosis, insulin resistance, first phase, weight gain and all the symptoms.
But I believe, that looking back and other aligned gut and stomach issues, such as finding helicobactor pylori, a bad bacterial infection, and a hiatus hernia, and being warned of the effect to the antibiotics for the bacteria, has cleared the infection but could have done some damage to my homeostasis.
I was surprised to find a U.S.paper on the bacteria and the gut, brain axis, and hypoglycaemia.
It is included in the wiki page of route causes.
I informed my endocrinologist, who told me........ Maybe......it's as good as an explanation as any.
This is why, RH was formerly known as idiopathic. Because the route cause was a matter of debate, cos they were not sure that food was causing the hypo. Strange?
What else could it have been?
So I do agree that like most endocrine, metabolic conditions, the time it takes to develop is around a decade.
Abnormal BG levels can be dismissed as a one off, but frequent episodes, should always be investigated.
And of course an M.O.T. Should be done.
I have tried many times to find at what BG levels triggers the reaction. But without success. It is I believe an automatic (???) response. But if I do go above normal levels (ish) I do react.
It is intriguing that upping carbs has helped you suffer less symptoms and reduced the hypos.
There must be a reason for this, maybe the imbalance of other hormones not so much insulin, counteract the spike in some way? Maybe insulin in the second phase counters the spike, but does not cause another imbalance? I don't know! Maybe the exercise has a bearing?
As you say so many questions?
The one thing I haven't asked is.......
Have your doctors put a name to it, or the cause, or just another form of hypoglycaemia?

Lamont, you have insulin resistance ? I don’t .. it is very interesting.. everyone is so different.. but we have reactive hypoglycemia !

I have just found I became nauseous after I ate macadamia nuts.. before I did not have any problems, but because of my Keto diet .. I started eating them quite a lot . I love them.

It happened last week , I felt so nauseous and had to take Zofran . Then I felt slightly nauseous today and I stopped eating them, I realised my nausea is related with macadamia nuts. Website said that one of the symptoms of nuts allergy is nausea.

When I ate bananas, I had stomachaches straight away… But macadamia nuts gave me nausea..
I will find out this will happen again or not. I am quite annoyed, because macadamia nuts are the best for keto and they are delicious…

Keto is perfect for me .. no hyper no hypo ! Absolutely logical !

Best wishes to you ♀️♀️
 
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Melgar

Moderator
Staff Member
Moderator
Messages
865
Type of diabetes
Other
Treatment type
Tablets (oral)
Hi Catkysydney,
I have not done the OGTT thing. I don’t think it’s routinely done in Canada, but I may be wrong. Nobody has suggested it to me not even when I kept having hypos. I see your blood sugars did drop. Mine would have come down a bit but they would have stayed around 9/10 mmol/ls for several hours before slowly coming down to around 6. So my insulin doesn’t ‘ overshoot’. I had some fasting blood work done yesterday, my fasting bloods were 6.4 mmol/ls at noon yesterday. I‘m waiting for my results. They don’t like the fact that my Triglycerides are lowish (0.6) and out of balance with my LDLs and HDLs which are high. This is the second time they have tested me for hyperthyroidism.

The weird thing is my blood sugars have been relatively normal these last few days. They will not stay there unfortunately. Mind, I am on an off label drug that forces my pancreas to produce more insulin.

I had my C-peptides done a while back when they were investigating the cause of my hypos. They were a 537 pmol/ls. So still in the normal range. I haven’t had my antibodies checked. My blood sugars would have to be significantly higher to have those done . I believe they are very expensive tests as you need to do all 4 as not everyone produces GAD antibodies. My brother is late onset type 1. I asked him what his antibodies were but he had no clue.

They are still unsure of my type. My blood sugars are very unstable. No two days are the same even when eating the same food. I am a creature of habit.

Type 2 is about high blood sugars, not hypos unless you are on blood sugar lowering meds.

I can’t digest fat well either. One rasher of bacon will ruin my day lol. I’m not a nut fan. I’ll eat the odd almond but that’s it. It’s mainly animal fats I can’t take. And of course I have the coeliac thing too. You asked me if I made my own bread in an earlier post. I have in the past. I have all the different none wheat flours, but it still tastes and feels like it’s 5 days old! . So I buy it. I’m still cautious with bread as I suffered with the consequences of consuming gluten for so long. That feeling doesn’t go away.

Have a lovely day, not sure what time it is where you are, it’s just before 9am here.

Mel
 

Lamont D

Oracle
Messages
16,493
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Lamont, you have insulin resistance ? I don’t .. it is very interesting.. everyone is so different.. but we have reactive hypoglycemia !

I have just found I became nauseous after I ate macadamia nuts.. before I did not have any problems, but because of my Keto diet .. I started eating them quite a lot . I love them.

It happened last week , I felt so nauseous and had to take Zofran . Then I felt slightly nauseous today and I stopped eating them, I realised my nausea is related with macadamia nuts. Website said that one of the symptoms of nuts allergy is nausea.

When I ate bananas, I had stomachaches straight away… But macadamia nuts gave me nausea..
I will find out this will happen again or not. I am quite annoyed, because macadamia nuts are the best for keto and they are delicious…

Keto is perfect for me .. no hyper no hypo ! Absolutely logical !

Best wishes to you ♀️♀️
Hi,
And I do have insulin resistance. I did at one point maybe ten years ago (ish) I could say I didnt, and mean it.
But the number of times, I have fell off the wagon and the weight went back on and I'm aware that if my average FBG levels and I'm stuck in the sixes. Not diabetic, but just above normal.could be got down, it would make a difference.
I want to be in normal, but it won't budge.
Even tho I'm in keto (ish)
Just to it all!
ha!
I do have the odd nut, but I can do without them.
I'm surprised, but isn't it just typical that something you really enjoy, is not so good for you?

Do you have side effects of the Zofran?
Have never heard of it!
But I have been given, if my stomach is upset etc. The drug omeprazole. It is enteric, like the others I take, mainly because of the lactose in most drugs in tablet form..
There is minefields everywhere!

And I will repeat that I'm so chuffed that keto is working for you.
Also, I think you're getting the benefits of it, as you really control your BG levels.
Made up for you.
My best wishes.
 
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Reactions: Catkysydney

Catkysydney

Well-Known Member
Messages
101
Hi Catkysydney,
I have not done the OGTT thing. I don’t think it’s routinely done in Canada, but I may be wrong. Nobody has suggested it to me not even when I kept having hypos. I see your blood sugars did drop. Mine would have come down a bit but they would have stayed around 9/10 mmol/ls for several hours before slowly coming down to around 6. So my insulin doesn’t ‘ overshoot’. I had some fasting blood work done yesterday, my fasting bloods were 6.4 mmol/ls at noon yesterday. I‘m waiting for my results. They don’t like the fact that my Triglycerides are lowish (0.6) and out of balance with my LDLs and HDLs which are high. This is the second time they have tested me for hyperthyroidism.

The weird thing is my blood sugars have been relatively normal these last few days. They will not stay there unfortunately. Mind, I am on an off label drug that forces my pancreas to produce more insulin.

I had my C-peptides done a while back when they were investigating the cause of my hypos. They were a 537 pmol/ls. So still in the normal range. I haven’t had my antibodies checked. My blood sugars would have to be significantly higher to have those done . I believe they are very expensive tests as you need to do all 4 as not everyone produces GAD antibodies. My brother is late onset type 1. I asked him what his antibodies were but he had no clue.

They are still unsure of my type. My blood sugars are very unstable. No two days are the same even when eating the same food. I am a creature of habit.

Type 2 is about high blood sugars, not hypos unless you are on blood sugar lowering meds.

I can’t digest fat well either. One rasher of bacon will ruin my day lol. I’m not a nut fan. I’ll eat the odd almond but that’s it. It’s mainly animal fats I can’t take. And of course I have the coeliac thing too. You asked me if I made my own bread in an earlier post. I have in the past. I have all the different none wheat flours, but it still tastes and feels like it’s 5 days old! . So I buy it. I’m still cautious with bread as I suffered with the consequences of consuming gluten for so long. That feeling doesn’t go away.

Have a lovely day, not sure what time it is where you are, it’s just before 9am here.

Mel

Hi Mel ,

I am from Sydney Australia . Down under ! So we are in winter now …. I feel every winter became colder than before… We are 14 hours ahead of you . Please enjoy your warm weather !

OGTT was coveted by Medicare system , so I did not need to pay for it at all . It was awful , because I got hypo and they did not give me a cannula, so I had to have needle a lot .. it was painful after the test …. lol…

Now I am doing Keto diet, then my fasting blood sugar is always the highest . Yours was 6.4mmol/L .., mine is usually around there but sometimes much higher…. I heard it is because our liver release the sugar to our blood to prepare our body active . Even so, sometimes shockingly high..lol

You cannot eat animal fat .. same here ! My gastroenterologist told me that I cannot digest fat ..
I can eat thickened cream ( I love it ) and nuts . But macadamia is a concern.. I ate 6 of them today, I had a bit of stomachache, I had to take Buscopan…

Mel, are you doing Keto diet ? Keto is a great help to avoid gluten. Also I heard Keto is good for making our cholesterol normal !

“Most research suggests that keto diets can help lower total cholesterol and LDL (bad) cholesterol levels while raising HDL (good) cholesterol levels.”

This is my expectation too .. I have taking a medicine , but eventually I would like to stop it.

Saying hello from down under.

With Best Wishes to you ♀️
 

Catkysydney

Well-Known Member
Messages
101
Hi,
And I do have insulin resistance. I did at one point maybe ten years ago (ish) I could say I didnt, and mean it.
But the number of times, I have fell off the wagon and the weight went back on and I'm aware that if my average FBG levels and I'm stuck in the sixes. Not diabetic, but just above normal.could be got down, it would make a difference.
I want to be in normal, but it won't budge.
Even tho I'm in keto (ish)
Just to it all!
ha!
I do have the odd nut, but I can do without them.
I'm surprised, but isn't it just typical that something you really enjoy, is not so good for you?

Do you have side effects of the Zofran?
Have never heard of it!
But I have been given, if my stomach is upset etc. The drug omeprazole. It is enteric, like the others I take, mainly because of the lactose in most drugs in tablet form..
There is minefields everywhere!

And I will repeat that I'm so chuffed that keto is working for you.
Also, I think you're getting the benefits of it, as you really control your BG levels.
Made up for you.
My best wishes.

Thank you very much for your reply , Lamont !

I don’t have insulin resistance , but I may develop it later .. we never know ..

Even under Keto diet , my fasting blood sugar is sometimes shockingly high , but it does not cause hypo …lol

But after meal’s sugar level was always good . So I am very happy !

“Do you have side effects of the Zofran?”

Yes, Zofran gave me a headache , then I have to take Panadeine Fort (1/2) to fix it… sigh

I have to be careful about what to eat. “Minefield everywhere “. So true.

I feel once we develop severe allergy , we become more and more allergic.

Thank you very much for your support !! You helped me a lot !

Best wishes to you ♀️♀️