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So tired of trying to find a reasonable doctor

Discussion in 'Diabetes Discussions' started by rosemaree, May 2, 2022.

  1. rosemaree

    rosemaree LADA · Well-Known Member

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    I just don't know what to do anymore :confused: I have always had a hard time with doctors but I am at my wits end.

    I questioned a medication the last doctor wanted to put me on, her response was to get really angry, refuse to explain anything to me, and to actually shout at me telling me I could never understand any of it anyway, and I need to just trust her and do what she says if I want to get better. This after explaining how her last advice/instruction made me very ill.

    Figured I would try someone else, it was a mission, hours drive and had to pay cash but she seemed like she might be more helpful. I can't even begin to explain the experience. I realised as I walked in that I should just leave, but instead I sat there frozen. There was a lot of "you probably think" and if I tried to say anything I was told "no" or "just stop". She would not let me see my blood tests results, and no matter what I said I was wrong. She told me if I had gone to a standard doctor they would have turned me away as my numbers are fine. I eventually managed to get that my hba1c was 6.3, but that was it.

    Some other gems from the appointment include

    - being attacked for saying I was not so sure how accurate the libre trial that I had was
    - being told that novorapid lasts 8 hours, and that I can only do 3 injections a day, they have to be with food, and at least 8 hours apart
    - no corrections, no matter what
    - no fast acting in the morning to help with dawn phenomenon or foot on the floor
    - take more long acting (despite trying to explain the lows)
    - being told lows are only caused by overlapping fast acting shots i.e taking them less than 8 hours apart (this was after I tried to point out a low I had after guessing carbs in a pastry wrong)
    - don't even ask about changing insulin

    I can't even put it all down, I kind of wish I had a recording of it :bag: but that was the gist of her advice. She didn't check anything about how I actually manage myself. She kept saying my numbers were fine even though I was repeatedly saying that I am unwell and constantly exhausted. I eventually managed to get a copy of my blood tests from the lab, there are a couple of concerning things, none were even considered.

    I am just so tired of it.

    On a brighter note, after just over a month and a half of not listening to the doctors advice, I have manged to get my hba1c down from 8 to 6.3!
     
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  2. zand

    zand Type 2 · Master

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    Me too, I always have a hard time at the doctor's as well. It's like an alternative reality where carbs are good, fat is bad and fat people don’t care about their health. I tend to stay away from them as much as possible.

    Last time I saw my GP I told him that my BGs always go up after exercise. Even though he was wearing a mask, it was easy to spot the ridicule in his eyes. He thought I was using it as an excuse not to do any exercise! I mean, I'm fat, right? So obviously I sit around all day doing nothing! Grrrr. What I wanted to talk about was insulin resistance, but he just ignored that.
    If I am brave enough, next time I will point out that he is there to help me, not to judge me or laugh at me. Trouble is fatism is the last remaining legal prejudice.

    I feel for you @rosemaree . My situation is simpler than yours and I usually only need doctors for my blood test. It must be so hard when you are on insulin and need medical advice.
     
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  3. Jaylee

    Jaylee Type 1 · Moderator
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    Hi,

    Been the same stuff for me since I was a kid?

    Some of the stuff about “insulin only sort of working with food” echos with me..

    Actually, back in the day as an 8 year old I was given a “Janet & John have diabetes book?”
    John ran out to play with his friends without eating, hypoed & wound up in a jolly scrape..

    The girl always seemed to get a pat on the head from the dude in the white coat..

    lol, some of these misconceptions seem pretty deep rooted..?
    I wish I could find that 40’odd year old “graphic novel.” With the catchphrase, “if you feel funny, tell mummy.”
     
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  4. M@

    M@ Type 1 · Member

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    What area in South Africa are you from? I have my 6 month checkup at an endocrinologist coming up soon and I could let you know if he's any good on the off chance that you are based nearby. (He is in KZN).
     
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    #4 M@, May 2, 2022 at 3:44 PM
    Last edited: May 2, 2022
  5. Antje77

    Antje77 LADA · Moderator
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    If you do, please keep in mind no mentioning doctors' names on the forum for their privacy.
    You can use the PM function of course.
     
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  6. rosemaree

    rosemaree LADA · Well-Known Member

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    @zand ugh, it is so frustrating, when I was a child I was being a hypochondriac, then when I started gaining weight in my twenties everything was blamed on my weight, now I am diabetic it is all put down as me not having good control, and when that can't be blamed I must be eating and exercising wrong. I get very torn between wanting to say something to them and wanting to just walk away - I don't feel like they can really help me if they have that attitude to start with. My weight has actually gone up and down with being sick/misdiagnosed, and I have been quite fascinated by how differently I have been treated at different weights - it's rather revolting actually :bored:

    @Jaylee that sounds like quite a book :facepalm: definitely a lot of deep rooted ideas though, the blind trust in doctors that is expected always gets me, they have caused me so much harm over the years!

    @M@ thanks, I will PM you about it!
     
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  7. Jaylee

    Jaylee Type 1 · Moderator
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    Yep, I seemed to have lost it when I moved house 20 years ago.. The boy was always getting it wrong where as the girl always had “gold stars..” I was given it on the ward whilst diagnosed in 1976. But from the artwork style with the illustrations it could have been published in the 1960s? I can’t even find it online. (About the size of a “Mr men” book..

    My endo appointments during my teens were interesting & more a catalyst for my rebellious side (I can’t blame my parents.)
    Particularly DSNs Seemed to frown on the fact my “apparent” lifestyle & pursuits were inappropriate for a diabetic.

    In fairness, my GP at the time was cool.. (retired about 10 years ago.)

    I don’t feel you should let it get you down. I try to imagine these people in consultation with their own doctors? ;)
     
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  8. EllieM

    EllieM Type 1 · Moderator
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    I feel really deprived, I never got one of those, despite being diagnosed at the same age as you but in 1970. I suspect that as my mother was T1cthey thought she'd give me all the education I need.

    @rosemaree I am shocked and horrified by your treatment. Most of my doctors have reckoned that I know more than they do about my T1 (true for my GPs but not really for my endos) and though there was some potential discrimination going on I felt it was based on education. Telling them I had a maths degree made me somehow competent to calculate my insulin doses (don't they know that mathematicians don't have to be good at mental arithmetic?) though I feel that there may be some ageism starting to creep in now as I get older.

    Lots and lots of virtual hugs and congratulations on the fantastic hba1c result.
     
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  9. JAT1

    JAT1 Type 1 · Well-Known Member

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    I totally understand your feelings about doctors. I haven't seen any in ages because of that.
     
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  10. Outlier

    Outlier · Well-Known Member

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    I absolutely understand and empathise. I have similar issues with my GP and of course you never know if it's worth changing or if you end up with somebody even less helpful (Hilaire Belloc "Always keep a hold of Nurse/ For fear of meeting something worse"). As for the DN I see, in management-speak: "I have identified training opportunities". There are really good medics about, but I've never been under the care of any.
     
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  11. rosemaree

    rosemaree LADA · Well-Known Member

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    Thanks @Jaylee, I definitely would have been a John then :hilarious: I remember my cousin getting mad with being given so many limitations because of her diabetes in her teen years, but she also fought pretty hard to do her own thing.
    I feel like such a horrible person, all I could think when I read this was a battle of dim wits, but that is my frustration speaking :bag: it does make you wonder though.

    Thanks @EllieM, I am considering writing a letter to this doctor, but I just don't know that I have the energy for it. I have actually had much the same experience with education as with my weight, and have been fascinated by how people treat you differently once they have judged your education - it is so bizarre to me.

    @JAT1 How do you get your meds? I have to see the doctor at least once every six months to get my prescription :(

    @Outlier Yes, this is exactly the problem I have, I sit unsure for ages because I might get someone worse, but then hope gets me looking and this happens :meh:
     
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  12. ert

    ert Type 1 · Well-Known Member

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    My GP doesn't deal with my type 1 diabetes and it is managed by a specialist. Could you see a specialist?
     
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  13. becca59

    becca59 Type 1 · Well-Known Member

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    Ditto!
     
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  14. StewM

    StewM Type 1 · Well-Known Member

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    Yeah I’ve noticed a few posts to this effect on this forum and my GP has never handled my Diabetes care and the possibility of them doing so has never been discussed. So it doesn’t surprise me that a GP left to do so would struggle with the challenges of a highly particular disease.

    In fact, a Specialist Clinic took on a GP to help cover a staffing shortage and I had to make a formal complaint about them (which I was nudged into doing by one of the nurses that worked under them) because of their complete inability to get their head round the condition.
     
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  15. Zhnyaka

    Zhnyaka Type 1 · Well-Known Member

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    I know exactly how you feel! When my doctor told me that I needed to get vaccinated against covid, I asked her what about the fact that type 1 diabetes is autoimmune aggression, is it safe to get vaccinated. Instead of giving me a link to safety studies, she said, 'What else do you have that could die if the beta cells of your pancreas are dead?'
     
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  16. rosemaree

    rosemaree LADA · Well-Known Member

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    @ert @becca59 @StewM, these two are both diabetes specialists :( the next step up would be an endo, but I can't seem to get an answer as to whether a visit would be covered by my medical plan. I am more tempted at this point to try find a standard GP who is able to work with me.

    @Zhnyaka gosh, it is a little petrifying to get an answer like that :blackeye:
     
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  17. StewM

    StewM Type 1 · Well-Known Member

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    That’s a little different then. You’re not actually obliged to see a specific Doctor at your Clinic (this was something I was only informed of when I had my previously mentioned issues). You can feedback a bad experience to the receptionist and demand to only see other Doctors at the Clinic, even if you’re given an appointment for that specific Doctor.

    I was a bit sceptical, but when I did say this to the receptionist each time, with different receptionists, I was just informed “I’d have to wait longer for my appointment” but it was no big thing.
     
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  18. JAT1

    JAT1 Type 1 · Well-Known Member

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    I'm in Canada. Prescriptions for diabetes Type 1 aren't mandatory. My drugstore knows me so they know I'm getting the insulin for myself.
     
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  19. rosemaree

    rosemaree LADA · Well-Known Member

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    @StewM I am in South Africa, but the medical plan that I am on has a list of doctors that I am allowed to see, I just have to pick from the list. I try find out as much as I can about them before making any appointments, but alas :meh:

    I recently had someone tell me that I am not a text book case and I ask too many questions, so doctors don't like that :facepalm:
     
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  20. OrsonKartt

    OrsonKartt Type 2 · Well-Known Member

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    All I can say is thank heavens for on line inexpensive courses run by respected universities. When diagnosed I sat through a decent diabetes course then one on nutrition. It’s a small but really useful step towards self empowerment as the doctors and nurses I come across know so little about these subjects
     
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