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Discussion in 'Diabetes Discussions' started by rosemaree, May 2, 2022.
My GP is excellent and well tuned in to my foibles. It is my Cardiac team that need a kick up the proverbials. They are trialling a new, very expensive, drug and I am the guinea pig. I have found in my n=1 exprerience and from Dr Google that the med is both hyponatremic and hyperkalemic. I have had a couple of emergeny appointments to correct this. But instead of stopping the trial my team want to double my dose, and give me a weekly saline drip in the hospital, and a drug to suppress the potassium buildup. My GP and I have received a very snotty letter saying I am uncooperative, and not following their instructions, so I am currently dischargrd from their care and returned to my GP care. The other problem with the med in question is that it is impossible to get on a regular basis, and I have had to go several weeks withour any BP med coverage at all. They are quite happy to place my safety at risk. So I am happy to go back to the old BP meds that worked ok. I see my GP next month to sort this out, but only a telecon.
I find it frightening that asking questions is seen as a bad thing. Professionally I am a lawyer and am also happy to have a client question me about any advice I give. I am sure I don't know everything and questions may either confirm my advice or give me something else to think of. I hope you continue asking questions- it is what helps everyone's knowledge become broader.
It may be related to this
It takes so long to get to sit at the desk in front of you, that doctors do not recognise that Dr Google has anything to say on the subject of illness, and that the person seeking their advice may actually know more about their symptoms and cures than the 'specialist' How dare you query their advice? Their training is evidence based and peer reviewed. In my experience all that means is that other doctors trained in the same way of thinking read it and agreed.
Would you suggest some websites? I often run into referral help with medical staff for answers to my questions, and the internet is more direct.
I’ll try to get a link later but I started with futurelearn.com. You can try Googling them. Unless it’s changed the courses were free if you didn’t need a certificate of training. It is of course an introduction but gives an idea of what is being taught mainstream. Over the years I’ve taken to reading medical papers directly there’s lots of links all over the place on this site. Re medical professionals I’ve not had much luck with them. I’ve passed on books and papers on the subject but have never had a genuine engaged discussion. It’s always been “ my way or the highway’ kind of attitude. Really sad but hey ho it’s the system and we have to do what we can to be well and stay strong !
Thank you OrsonKartt. I don't believe we should avoid searching for answers on the internet. Of course you have to rely on "respectable" ones.
Just for a bit of balance, my surgery has a dozen doctors. You never get to see the same one so I have had experience of all of them.
I have never once had the bad experiences described in previous pages,
Often the doctors will expect me to be knowledgable (they know the internet exists).
They will often will ask me what I think is wrong (bit weird when I dont know). They will always ask what help I'm expecting.
They are never dismissive when I offer suggestions.
Even when I disagree with them on things like taking statins, they will always try persuasion. They never get angry. They never shout. The worst is that the will try to persuade me by giving me figures of how early I'm likely to die.
Now I'm sure there are doctors with a less than great bedside manner, but sometimes when you get posts saying repeatedly they get problems with every Doctor they see, can't help feeling maybe the patient has an attitude problem. They may not want to hear it but I would suggest the look at their own attitude , approach if they run into shouting matches with every Doctor they see.
Hi oh i do sympathise, just lost my gp who has moved to another surgery she was lovely really caring, her replacement is cold clipped feel like just wants to get you back out the door , cant change to another surgery too far to travel , is is so very important to feel listened to .
Try to ask just one most important question and insist on an answer what about the diabetic nurse ??