1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2022 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Some background retinopathy

Discussion in 'Type 2 Diabetes' started by Rebecca29, Jan 25, 2022.

  1. Rebecca29

    Rebecca29 Type 2 · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    43
    Got my letter yesterday and i cant shake off the scared feeling.
     
    • Hug Hug x 5
  2. Antje77

    Antje77 LADA · Moderator
    Staff Member

    Messages:
    14,010
    Likes Received:
    8,953
    Trophy Points:
    298
    Welcome to the forum!
    I'd be scared if my letter said that, but I've heard from many people that their result said 'some background retinopathy' but then with the next check it was gone again.
    Hope it will be the same for you!

    How are you managing your diabetes at the moment? Keeping your numbers as healthy as possible is the best way to prevent damage, but sometimes this is easier said than done.
     
    • Agree Agree x 2
  3. Barry05

    Barry05 Type 2 · Active Member

    Messages:
    29
    Likes Received:
    24
    Trophy Points:
    48
    For 2 or 3 years my eye scans came back with results of having background retinopathy and my blood sugar levels were gradually becoming higher, my reaction at first was that much as you are having.... The nurse kept altering my medications to keep up with it but to no avail....
    However upon my last eye scan two months ago, retinopathy wasn't detected, apparently it fluctuates depending on what's in my intake......
    Since the good recent result I am more conscious of what goes inside me.......
     
    • Like Like x 2
  4. tinmonkey

    tinmonkey Type 2 · Member

    Messages:
    19
    Likes Received:
    23
    Trophy Points:
    63
    I had a similar result 2 years ago.

    I went very low carb, did intermittent fasting and lost weight. For the last 2 eye screenings there's been no sign of any eye problems.

    Good luck!
     
    • Winner Winner x 1
  5. klogs17

    klogs17 Type 2 · Well-Known Member

    Messages:
    62
    Likes Received:
    118
    Trophy Points:
    53
    My result in December said the same. Just as scared but another reason to keep managing my diabetes as best I can.
     
    • Like Like x 1
  6. Rebecca29

    Rebecca29 Type 2 · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    43
    Thankyou for your replies.
     
    • Like Like x 1
  7. Z_e_u_s

    Z_e_u_s Type 2 · Active Member

    Messages:
    32
    Likes Received:
    12
    Trophy Points:
    68
    Received same results last December but what I am very confused about is that my Hba1C has gone down consistently since diagnosis (over a year ago) and has been sitting within 'normal' range for almost a year (32 last blood test in September same as previous one in May last year). MySgr app is telling me it has gone down even more since my last check and I can see my insuline tolerance has improved since I see lower numbers than I used to.
    I had NO signs of retinopathy when my Hba1C was high (96 at diagnosis) but had neurological damage showing once I started to control it (also had bad neuropathy..now milder but taking ALA and turned to acupuncture for that).
    So, at least in my case, being careful and bringing numbers down doesn't necessarily mean keeping troubles away.

    As a consolation I am having ice-cream more often ;)

    P.S.: I am not encouraging anybody to turn to ice-cream if you don't see rewards for your hard work! I am just stating where I am at right now.
     
    • Hug Hug x 1
  8. TriciaWs

    TriciaWs Type 2 (in remission!) · Well-Known Member

    Messages:
    1,090
    Likes Received:
    622
    Trophy Points:
    173
    I was told I had a slight bleed in one eye after my last scan, done 2.5 years since the previous one. I was shocked and scared as I'm in remission but I had a chat with someone from the hospital eye screening team who explained the results and said it was probably when my BS was up a bit with an infection and that it was already showing signs of healing.
    I've gone back to checking I don't have carb creep and testing more often for a few days.
     
  9. Dark Horse

    Dark Horse · Well-Known Member

    Messages:
    1,841
    Likes Received:
    999
    Trophy Points:
    133
    A sudden improvement in HbA1c is thought to potentially worsen retinopathy in the short term but reduce it in the longer term. This would be much more significant if the retinopathy was quite advanced to start with. More details here:- http://diabeticretinopathy.org.uk/retinopathyprogression.htm
     
    • Like Like x 1
  10. Ronancastled

    Ronancastled Type 2 · Well-Known Member

    Messages:
    1,038
    Likes Received:
    656
    Trophy Points:
    173
    Not uncommon to be picked up on the first scan post diagnosis, none of us know for sure how high our BG has been nor the length of time prior to diagnosis.
    I got the letter but then rang the surgery who are given a more detailed report.
    Nurse could tell me there were 2 micro blotches (not technical term) on one eye only.
    Anyway, the following year came back all clear after getting my BG in order.
    Cause of that I've now gone back to every 2 years instead for scans.
     
  11. Rebecca29

    Rebecca29 Type 2 · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    43
    Ive been diabetic for almost 9 years. I have lost almost 4 stone. nov last year (was hospitalized with covid pneumonia) so eaten small meals as no appetite but still some naughty treats but now its stopped (it helps that i have not like the taste of most bad foods since the hospital)

    I have filled my freezer today with cod (no crumbs/skin)

    Spouts, broccoli, peas etc

    Chicken breasts

    Then tuna, sweetcorn, no sugar/salt baked beans, eggs, brown pasta(just to try it as don't eat much pasta), shredded wheat but not sure about milk now as seen some posts saying semi skim is not a good choice (I don't like any other milk).

    I also see the diabetic nurse end of feb for bloods and hopefully chat.

    I hope i can keep this background for the rest of my life if i cant improve it. Thankyou for reading.
     
    #11 Rebecca29, Jan 26, 2022 at 5:22 PM
    Last edited: Jan 26, 2022
  12. MrsA2

    MrsA2 Type 2 · Well-Known Member

    Messages:
    3,142
    Likes Received:
    4,250
    Trophy Points:
    198
    Both the beans and the shredded wheat are way carbier than the semi skimmed milk.so too is sweetcorn
    Have you tested them for their effect in your body? You may find they are too high for you.

    Everything else you chose was very good and low carb
     
  13. Rebecca29

    Rebecca29 Type 2 · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    43
    No not tested them but will this week. Its confusing as lists/recipes UK ones for type2 say its ok to eat in moderation. I guess my blood reading will let me know if I can or not I guess.
     
    • Like Like x 1
  14. Rebecca29

    Rebecca29 Type 2 · Member

    Messages:
    16
    Likes Received:
    3
    Trophy Points:
    43
    Once again thankyou for your replies. I'm still anxious alot since my background retinopathy diagnosis. Keeping bg as low as I can I just hope it works and my eyes stay healthy.
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook