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Type one erectile dysfunction

Discussion in 'Ask A Question' started by Jagger77, Oct 25, 2021.

  1. Jagger77

    Jagger77 · Member

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    Hi everyone.

    I'm new here but looking for some help and advice. I'm a 31 year old man, was diagnosed with type one 10 years ago. Struggled for a lot of those years with my diabetes as I just didn't want to deal with it. Got it back on track however and I'm doing great. Probably around 18 months ago I started noticing problems with my erections. They weren't lasting as long and weren't as strong as usual and over time it got worse. Fast forward to now and I haven't managed to have full sex for over a year (not for the lack of trying!). Spoke to the GP numerous times and asked them to check my testosterone levels which came back ok. Was prescribed different dosages of viagra which done absolutely nothing for me. Then was prescribed cialis, which again, done nothing. I'm not really sure where to turn now. Not due to see my diabetes specialist Dr till February 2022. Asked gp for a referral to urology but said this will take a while. I really don't know what to do now as I'm far too young to not be having sex! I still get the urge just as I always have but the little guy isn't playing ball! I have nerve damage in my legs which could be playing a factor. Any and all advice would be massively appreciated. Thanks so much for reading.
     
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  2. Jaylee

    Jaylee Type 1 · Moderator
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    Hi @Jagger77 ,

    Welcome to the forum.

    When you say "back on track." (management wise.) What are your A1c figures now? & in comparison to what they were..?
    Are we talking about a "short sharp shock" regarding tightening up management, before you discovered your issue.?
    Just thinking outside the box here...
     
  3. Jagger77

    Jagger77 · Member

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    Hey, sorry i should have clarified. When diagnosed my a1c was really bad, if i remember correctly it was around the 16% mark. I was maybe 4 years in before I actually started looking after myself. I've kept on top of everything for years now and my last a1c was 7.4% earlier this year. The issues didn't start until 18 months ago so I'd already been looking after myself for a long time before these issues started. I've never and any sort of erection issues before in my life. I also thought potentially could have been low testosterone as I found myself really tired a lot, no energy, mild testicular pain and the ed. I've addressed all of the issues with my gp numerous times but nothing seems to be getting investigated any further and all I'm told is that it's due to diabetes.
     
  4. Jaylee

    Jaylee Type 1 · Moderator
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    No worries buddy.. Just trying to establish if it could be due to a rapid drop of A1c in a short space of time due to tightening up managment? I had a simalar "kick in the teeth" after finding a sweet spot A1c a few years back with the eyes..?
    I'd never even heard of the condition or knew it a "diabetic thing?" (At the time...)
    The eye mularky is pretty much well documented with drastic "tweaks" to managment. It is preferred "slow & steady..?"

    Yep, doctors are easy to blame any condition on the "boogie."

    Could your intial change in performance be just causing you "stage fright?"
    Do you currently have a partner you could open up to..?
     
  5. Jagger77

    Jagger77 · Member

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    Yes I had problems with my eyes too, was terrified for a while until they sort of went back to normal! I've got a partner who I've been with for 8 years and she knows all about it. She's very understanding about it and we keep trying but it just doesn't work and it's frustrating me more than anything. They blame diabetes all the time for me, which it might well be but there's been no other blood work or investigations other than the low testosterone. As soon as that came back normal, they just said it was due to diabetes.
     
  6. Jaylee

    Jaylee Type 1 · Moderator
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    From what you are saying regarding your relationship. You're in a good positive place to work from..
    Things sometimes don't allways go to plan, which can knock confidence & one or two set backs can prey on the mind prior to the next event?
    Being sensible about things, we can't always judge our performance comparing with the "adult film industry."
    I feel there can be a fair bit of pressure on both parties to compete with the "smoke & mirrors" on the high shelf.. ;)

    Hopefully, the guys on here who have or had been in a similar situation. Can give pointers regarding their own experinced.

    Kind regards. I'm confident you will find your "mojo." :)
     
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  7. Tigger12345

    Tigger12345 · Newbie

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    Hi Jagger,

    I am the partner of a diabetic who is in a similar position, so I did not want to read and run. I'm your age, he's older.
    Around 3/4 years ago it started with them being not as strong and not as long. Long story short, no medications have helped. They want to give him a pump to try help, but that has been delayed currently. We have seen numerous specialists over the last few years and basically been told it has happened due to his lack of management to control his diabetes when he was younger. In the last 2.5 years he has only once been able been able to maintain one.


     
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  8. Jagger77

    Jagger77 · Member

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    Thanks very much! Appreciate your comments :)
     
  9. Jagger77

    Jagger77 · Member

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    Hey Tigger,

    Thanks for your comment. Sounds very similar to me. We haven't had sex in a year due to this and I'm noticing it's getting worse. I've read up about the pump and heard mixed reviews about it but i suppose it's like everything else, will work for some and won't for others. I had poor control too for the first 4 years then for the past 6 years I've been really good and managing very well but don't know if the damage was done when i was poorly controlled or if it's just one of those things. The statistics for diabetic men experiencing some form of ed are quite shocking. I hope you find something that helps :)
     
  10. Tigger12345

    Tigger12345 · Newbie

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    Thank you. You too

     
  11. Jaylee

    Jaylee Type 1 · Moderator
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    I'm a 53 year old guy who in his youth has been a little less than than interested in the diabetes who still has a healthy interest in intimacy. However..
    What I have found over the years is BGs affect emotional involvement when intitiated..? (The physical is not the issue.)
    I'm pretty reserved with high BGs. "Not tonight dear.." (When like this, I'm not even in the mood to generally socialise. Let alone to put on some "Barry White.")

    Now this has been an issue in previous relationships where the other party may have felt inadequate after initiation regarding my lack of reciprocation? Lol, & sometimes I just don't like to be made to feel like a "performing seal."
    Focus on reasonable BG management maybe a starting point to move things forward. There may just be a "Goldilocks zone" where the emotional & physical "happen."

    Good luck.
     
  12. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

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    I haven't seen this but I do rate this man who was diagnosed t1 in 1948 aged 12 and had many years of terrible control with complications attached. No idea if he's ever had your problem.
    The underlying point is that ED is the canary in the mine because if we rule low testosterone and psychological issues out, then it can show early issues with arterial disease. I think you'd be unlucky in that most type 1s get away with a patch of poor control.
    I've had diabetes for 40 of my 50 years and now try to keep insulin as well as blood glucose as low as I can to avoid becoming insulin resistant which can also be damaging to your CV health though it is high blood sugars which cause glycation damage to your pipework.
     
  13. tt456

    tt456 · Newbie

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    Have a look into ED shockwave therapy bro
     
  14. ErinKeegan

    ErinKeegan Type 1 · Member

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    As I know, viagra isn't very good for human health. You can try some sex toys for you, maybe penis rings, there are even vibrating, it stimulates a lot or also there are some pumps https://joynights.org/best-penis-pump/ . If you've already decided the situation, could you write how, please?
     
    #14 ErinKeegan, Aug 11, 2022 at 9:50 AM
    Last edited: Aug 11, 2022 at 10:44 AM
  15. LaoDan

    LaoDan Type 2 · Well-Known Member

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    I don’t know why my post was removed, the study I linked was for T1 , oh well
     
  16. Antje77

    Antje77 LADA · Moderator
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    Hi @LaoDan , I'll send you a PM, I'm sure we can find a solution. :)
     
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