Unacceptable behaviour at annual review

diabeticguy

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Just back from the annual review and I am fuming. Was looking forward to getting some praise for once because the results of my HbA1c according to my GP was perfect and showed that the way ahead could perhaps be a little better. However, it seems that the whole appointment was used to criticise my weight. When asked if I had any concerns or ailments, I was berated for being overweight and that any and all ailments were because I was fat. In fact I was being referred for bariatric weight loss surgery !....I never asked nor do I want weight loss surgery. When explaining that I had mental health issues, acute depression, PTSD with anxiety and panic attacks and that I am not always able to deal with issues even if they are as acute as diabetes and the constant anxiety of injections etc. But she dismissed this with ''unless you are in a coma or someone has a power of attorney over you, then you are still able to make your own decisions about what you eat or do not eat'. So after this appointment I have no more idea about my diabetes and how it relates to me, no encouragement and now have a referral for bariatric operation that I didn't ask for nor will entertain.
 

CarbsRok

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Please write to your practice manager and complain. There is no way on earth you should have been treated like this. No idea who is supposed to be writing for an apt for surgery, but it wont be the nurse you saw that's for sure. There is also a strict protocol to be followed before surgery would even be considered.
If you feel you can not deal with this yourself then please contact PALS who will deal with it for you.
Very well done on you improved HbA1c though, that is something to be very proud of.
 
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diabeticguy

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I should have specified that the review was at the Eastbourne District Hospital as part of the diabetes clinic. My GP practice have always been very decent and encouraging but this seems academic when the hospital are quite happy to dismiss any progress by emphasising and criticising other factors that maybe one hasn't mastered yet. Thank you for a speedy reply CarbsRok
 
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CarbsRok

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I should have specified that the review was at the Eastbourne District Hospital as part of the diabetes clinic. My GP practice have always been very decent and encouraging but this seems academic when the hospital are quite happy to dismiss any progress by emphasising and criticising other factors that maybe one hasn't mastered yet. Thank you for a speedy reply CarbsRok
Please then make a formal complaint via PALS regarding your treatment. No matter where it happened it's totally unacceptable. As far as I am concerned it's abuse and bullying and needs to be stopped. If things were on the other foot and you treated the staff like that you would have been kicked out of the clinic.
Very pleased you have a good supportive GP practice that does make a lot of difference :)
 
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Daibell

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Hi. That was very bad treatment. Have you sought support from one of the mental health charities? I do volunteer work (IT) for Mind and they can provide a wide range of support assuming you have a Local Mind Association nearby. There are other charities who can also support depression with CBT and so on as well as counselling. It's good that you realise you need support. It sounds like you do need to lose weight but need support in how to approach it. Take care.
 
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vintageutopia

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I am terribly sorry for you. Write a complaint and don't let it get you down. You have made progress!
 
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Spiker

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Good grief. I was going to say, thinking it was your GP, you can take some consolation that they are now treating you like a non-diabetic (thanks to your great Hba1C!), since as I understand GPs **** everyone off about their weight. It's their standard script.

But from a hospital diabetes team - totally unacceptable. So this was one of the consultants? Was it a locum or registrar or one of the regular team? A doc or a DSN? Or a dietician?
 
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diabeticguy

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Good grief. I was going to say, thinking it was your GP, you can take some consolation that they are now treating you like a non-diabetic (thanks to your great Hba1C!), since as I understand GPs **** everyone off about their weight. It's their standard script.

But from a hospital diabetes team - totally unacceptable. So this was one of the consultants? Was it a locum or registrar or one of the regular team? A doc or a DSN? Or a dietician?
I have never seen the lead specialist even though his name appears on everything 'diabetic' at the hospital. I have never seen this woman before and certainly have no intention to see her again.
 
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Spiker

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I have never seen the lead specialist even though his name appears on everything 'diabetic' at the hospital. I have never seen this woman before and certainly have no intention to see her again.
What was her role and qualifications? A doctor, a DSN or a dietician?
 
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christi99

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Just back from the annual review and I am fuming. Was looking forward to getting some praise for once because the results of my HbA1c according to my GP was perfect and showed that the way ahead could perhaps be a little better. However, it seems that the whole appointment was used to criticise my weight. When asked if I had any concerns or ailments, I was berated for being overweight and that any and all ailments were because I was fat. In fact I was being referred for bariatric weight loss surgery !....I never asked nor do I want weight loss surgery. When explaining that I had mental health issues, acute depression, PTSD with anxiety and panic attacks and that I am not always able to deal with issues even if they are as acute as diabetes and the constant anxiety of injections etc. But she dismissed this with ''unless you are in a coma or someone has a power of attorney over you, then you are still able to make your own decisions about what you eat or do not eat'. So after this appointment I have no more idea about my diabetes and how it relates to me, no encouragement and now have a referral for bariatric operation that I didn't ask for nor will entertain.
You know... that really just stinks. My God, what a great feat to accomplish a great A1C!! Regardless of any weight issues, this is a gold standard for diabetes control. I know excess weight carries other risks etc, but pleeeezzzz, this disease is work enough without being harrassed with insensitive comments. If losing weight was so easy, as easy as just "making decisions about what you eat or not" then the the whole world would be slim and trim- obviously not true. So ignore that attitude and know you did a wonderful job with one piece of your DM management (maybe more, you just didn't give any other info). Keep up the good work. Cheers!
 
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masonbason63

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Being type 1, my health and what really grates me are false people who make themselves out to be something when their not
Hi. That was very bad treatment. Have you sought support from one of the mental health charities? I do volunteer work (IT) for Mind and they can provide a wide range of support assuming you have a Local Mind Association nearby. There are other charities who can also support depression with CBT and so on as well as counselling. It's good that you realise you need support. It sounds like you do need to lose weight but need support in how to approach it. Take care.

Totally agree I've had lots of intense counselling over the years but I was referred to mind for a six week stint and out of all the courses and physiatrists and doctors I'd seen the 6 weeks I got there was most beneficial I've ever had. Just a friendly comment
"Shape and size dosnt matter it's the person inside that counts "

Well done on the HbA1c keep going at it !!!
 
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graj0

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Just back from the annual review and I am fuming. Was looking forward to getting some praise for once because the results of my HbA1c according to my GP was perfect and showed that the way ahead could perhaps be a little better. However, it seems that the whole appointment was used to criticise my weight. When asked if I had any concerns or ailments, I was berated for being overweight and that any and all ailments were because I was fat. In fact I was being referred for bariatric weight loss surgery !....I never asked nor do I want weight loss surgery. When explaining that I had mental health issues, acute depression, PTSD with anxiety and panic attacks and that I am not always able to deal with issues even if they are as acute as diabetes and the constant anxiety of injections etc. But she dismissed this with ''unless you are in a coma or someone has a power of attorney over you, then you are still able to make your own decisions about what you eat or do not eat'. So after this appointment I have no more idea about my diabetes and how it relates to me, no encouragement and now have a referral for bariatric operation that I didn't ask for nor will entertain.
Sir,
you have all my sympathy.
My very first appointment with my local endocrinologist was EXACTLY the same. Where do you live if I may be so bold?
May I suggest that you look at the video I posted, it's American and suggesting that we don't follow published guidelines with respect to carbs. There's possibly a lot you can do by way of complaining but the thing is, your health is much more important.
Weight is a very complex issue, it isn't just calories in and calories out, whoever you saw obviously didn't have the education to know that. My weight escalated to 27st after I was prescribed Rosiglitazone and my GP's way of dealing with my complaints was to put me on Citilapram for anxiety. I was getting fatter and fatter and so laid back about it I was horizontal.
Our weight does affect our health, we know that, we just don't need some idiot to treat us so appallingly. I don't know what sort of eating regime you follow (note I didn't say diet), low carb has helped me a lot. I lost 4 stones when I came off Rosiglitazone, then gained 1 1/2 st on Gliclazide, lost 4 st when I lowered my carbs and another 1 1/2 st after a knee operation, theory is that antibiotics and diplofenac improved intestinal transit time and I didn't absorb as much. My BMR is 2000 and I eat less than around 1200.
I was told to have Bariatric surgery years ago but at the time, when I went to the support group, they were discussing liquidising chocolate and ice cream to get their calorie intake up to 1200, I told them that as I didn't eat chocolate or ice cream, no point.
I would think that if you have an understanding GP, it would be good to go back to your GP and tell him/her everything, after all, if you had surgery it would affect your GP as well.
I think speaking to your GP would be a good start, but if you need dietary advice, listen to the GP, but don't take every word as being what you should do.
Good Luck and don't forget, Don't let the bar stewards get you down.
 
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Pinkorchid

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Well done for what you have achieved so far but to refer you for bariatric surgery that you have not asked for or want is appalling that is bullying. Of course the decision will be yours they can't make you have an operation that you don't want See your GP and tell him how badly you were treated by this woman and say you want to make a complaint about her
 
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kesun

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I should have specified that the review was at the Eastbourne District Hospital as part of the diabetes clinic.
You could ask your GP to refer you to a different diabetes clinic. I'm on the East Sussex/Kent border and have a choice of Eastbourne, Brighton, Hastings and Tunbridge Wells, as well as smaller clinics at Lewes and Uckfield. As well as what others have suggested about complaining to the Eastbourne DGH PALS, why not talk to your GP too? Tell them how awful the Eastbourne team made you feel and say you're not going back. You need a referral to a different db clinic that doesn't act as if it has a bariatric surgery referral quota to fill regardless of patient need.

Good luck,
Kate
 
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Engineer88

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You can ask to be refered to another hospital by your GP, once you have submitted a complaint of course.

Sorry to hear about the **** you had, but trust me they will always find something to pick on :(
 

AndBreathe

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Just back from the annual review and I am fuming. Was looking forward to getting some praise for once because the results of my HbA1c according to my GP was perfect and showed that the way ahead could perhaps be a little better. However, it seems that the whole appointment was used to criticise my weight. When asked if I had any concerns or ailments, I was berated for being overweight and that any and all ailments were because I was fat. In fact I was being referred for bariatric weight loss surgery !....I never asked nor do I want weight loss surgery. When explaining that I had mental health issues, acute depression, PTSD with anxiety and panic attacks and that I am not always able to deal with issues even if they are as acute as diabetes and the constant anxiety of injections etc. But she dismissed this with ''unless you are in a coma or someone has a power of attorney over you, then you are still able to make your own decisions about what you eat or do not eat'. So after this appointment I have no more idea about my diabetes and how it relates to me, no encouragement and now have a referral for bariatric operation that I didn't ask for nor will entertain.

What a bizarre thing to happen. My mind would have been reeling.

I'd suggest you have to do something, or this sort of interaction is the kind of thing that can eat away for ages, in the back of your mind, and potentially influence other parts of your diabetes care and interactions with HCPs. In your shoes, I might be inclined to either ask for another appointment, or write a letter. Whilst a face to face interaction can sometimes bring most satisfaction, writing a letter could allow you to make sure you cover all the points you want to raise, without the emotional rollercoaster that a face to face meeting would almost inevitably bring with it.

I think one of the main things I would want to understand would be why the referral was being made for bariartic surgery without any pre-consultation with yourself to ascertain how you felt about it and to help you understand what feels like a bewildering step on their part. There could, of course, be some great big misunderstanding going on here, whereby the person you met with thought you had requested it or that it had been discussed with you? I'm not saying that's what happened (how could I know?), just floating it as a potentially less destructive reason the situation could have arisen. Whilst many of us have had less than ideal interactions with medics over the years, I doubt the lady you met with was a callous, hurtful individual at heart. In my head, I can just imagine her thought process, thinking the appointment was a nightmare for a whole different set of reasons.

Once you understand the reason it might be felt appropriate for you to consider surgery, it will form a more reasonable foundation for any discussion that should take place. As others have said, for you to undergo any treatment or procedure, you are required, by law, to sign an informed consent, and it feels like you're a long way from being informed enough to consider any form of consent.

I'm not a great advocate of surgical weight loss, as I've observed one person for whom it spectacularly wasn't suitable, and she regained all the weight she lost after it. I'd say that she achieved nothing, aside from puting her body through several traumatic experiences - surgery, effective starvation, malnutrition (because of how she chose to eat post-surgery), and the the strain on her regaining the weight. That said, for many people it opens up a whole new, and healthier life. I've only added this paragraph in case you think I'm agreeing with your HCPs and their approach

I do hope you find a way forward with this, and very well done on the great HbA1c. It's such a shame you didn't get the credit you undoubtedly deserved during your appointment.
 
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christi99

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I have a son who is 26 y.o., diabetic, is 6'5 inches tall and had a BMI of around 34. He has always been very large boned and started putting on weight around 14 y.o. He eats nothing more than the rest of his slim siblings, is about as active and even when he had facial surgery, couldn't eat solid foods for 2 months - and I prepared all foods (blenderized!) and counted calories, carbs, fats etc during that time. He ate approx. 600-1000 calories a day - never more, for 3 months (and walked daily while recovering, that after being in an ICU for a week eating nothing). He lost maybe 10-12 lbs. I would have expected him to lose 20-30 lbs at least.

I give you this background info because his doctor did they same thing to him- looking disgusted at him (btw-his HbA1C is not well controlled) and said "you keep on getting fatter! Look at you! I want you to see a bariatric surgeon". (I was in the room so I saw the manner she spoke and it was pretty humiliating. Well, he was so flustered he said OK and when we went for the consultation- he did not meet the BMI requirements for the surgery. (Here it is BMI of 35-40). Anyway... my 2 points are this: losing weight is not the same for everyone- I think his diabetes makes him resistant to dropping weight., or maybe other metabolic factors. And 2. the insensitivity used in addressing him was simply unacceptable as you said. I know that when one is overweight, and has ever been picked on etc. there are such shame issues involved. He is ashamed to go to the gym because he thinks people will notice so he avoids confronting those feelings of discomfort. I think there is a feeling of wanting to disconnect from the source of shame. (I didn't know he felt that way until he eventually broke down and was very open). It's heartbreaking for me to hear others also being treated with so little empathy and kindness too. I just can't stress enough to him, myself or anyone else how important it is to be kind to yourself 1st and try to avoid or ignore this negative feedback. It helps no one-ever.
 
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graj0

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I have a son who is 26 y.o., diabetic, is 6'5 inches tall and had a BMI of around 34.

That doesn't sound too bad for a young chap so tall. It's another example highlighting the fact that people assume (I nearly said naturally) that overweight people eat too much, even the NHS says so and I quote:-

"Obesity is generally caused by consuming more calories – particularly those in fatty and sugary foods – than you burn off through physical activity. The excess energy is then stored by the body as fat".

I notice that they have inserted the word generally since I last looked some months ago, covering their backsides because the fact is that it is only in a certain number of cases. Watching the video I posted and zand has reminded us of the link, explained things so well. Fat isn't the problem, carbs are, including sugar obviously.

Standard dietary advice shouldn't be the same for everybody, some people can handle carbs, lucky them, I can't.

I hope you can persuade your son to go to the gym or start swimming or walking, they're all good. You know what everyone else can do? Take a . . . . . . . . . . . . . (Not allowed to say that).
 
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