Waiting for Hospital treatment.

nicdavcamb

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I moved from surrey 18months ago and felt okay for a bit. But having had a 4 way bypass in 2000 and being a type one diabetic for 59 years, In February 2014 suddenly developed a sense of downing at night. This was diagnosed as heart failure.

I have been attending Adenbrookes Hospital for cardiology, was sent for various scans one at Papworth for a MRI scan all seemed okay no scaring from bypass. I came over ill at home and one day thought I was having a hypo, but on testing found I was 10.6. I then went to take of Jumper and collapsed in hallway between bedroom and bathroom. I do not know how long I was out for, only to say, I had arranged for an electrician to call. fortunately I managed to get up and open door, he helped me to an armchair and passed me the phone. I rang the doctor and she came round. My blood pressure had dropped to 100, which is quite low, it did however increase over a few hours to normal 120/80 which is normal.

I went to see my cardiologist, in October 2014, who said that he would put me down to have a Pacemaker/defibrillator fitted. I would need another scan to measure for the fitting, I waited until January 2015 to enquire why I had not heard. Was told that the Hospital had changed its computer input to a new one and that my records were not changed over so again was told that this would be dealt with.

In February I was sent for the scan and was told the results would be ready for my Doctor to download at lunch time that day. I rang the consultants secretary 6 weeks later enquiring when I would have the Pacemaker fitted and was told that it had not been downloaded. So I waited and in the end rang the PAL office (Patient Advise and liaison service). This was done nearly three weeks ago and despite ringing them last week, have not heard anything from them......

My gripe is how much longer do I wait as this is affecting my Diabetes to a level I have not experienced before.
 
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Enclave

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I feel for you mate ,.. I have heart failure.. But mine is due to several heart attacks .. Hang on in there and hope you get your treatment soon .
 
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Alanp35

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I, too, am waiting for triple bypass plus fix whatever else they may find. I feel that the NHS is perhaps overloaded for these specialist services and this is a way of slowing things down helping "catch up" somewhat. Waiting lists are lengthening and we are all part of,it.
 
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Patricia21

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I have waited since the 17th January to see a surgeon to talk about having my gallbladder out ,still no appointment.
I had a severe attack of pancreatitis on new years eve thought to have been caused by gallstones,I was in hospital abroad for three days.
Its not as serious as you folk have,but I live in fear of that pain again.
All my Dr says is go to A and E if I have problems.
 
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donnellysdogs

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You all ought to contact PALS until you find out answers.
Best to email rather than phone...as this is a formal enquiry that cannot then be forgotten.

Under the Freedom of Information Act you can ask for details to be sent to you for waiting times for these ops and investigations. They have I believe 24 days to respond. I believe there a FOI person at each hospital. Once you have this information you could then contact the Patient Engagement Group at the hospital and write to them stating that you find tjis length of time etc unacceptable and wish that this matter be raised with the hospital CEO.

There are a lot of ways to get improvements but they must be done officially...
 
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Enclave

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I, too, am waiting for triple bypass plus fix whatever else they may find. I feel that the NHS is perhaps overloaded for these specialist services and this is a way of slowing things down helping "catch up" somewhat. Waiting lists are lengthening and we are all part of,it.
Don't know if it helps, but when I had my bypass op I only had a few days to wait. People were called in by the urgency of their case. I did however have a long time with dithering doctors before I was referred to the hospital for a assessment for surgery.
 
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donnellysdogs

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Its always worthwhile checking where you are on the waiting list and whether you have been accidentally missed off.

My dad had bad pains in his stomach in March and a GP was called out on a Sunday.
GP thought was kidney stomes but told my parents he would make a referral to hospital. It wasn't done. My dad left it until October before chasing up when he felt ill again and he then had an urgent hospital appointment and was opened up and closed up in December. He died January. Too late. They had completely missed him off the waiting lists and the tumour attached to his main artery going to kidney was the size of a water melon and inoperable.

Please just make sure that you have not been overlooked in anyway.
 
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Patricia21

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I have rang patient admissions and I am on a list,I was told the Dr goes through his list and looks at the urgency of his cases.
Appart from dreading the pain again we are unable to make any holiday arrangements for the summer.
Some of my family live abroad,also my travel insurance would be high.
So sorry about your Dad donnellysdogs
 
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donnellysdogs

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I have rang patient admissions and I am on a list,I was told the Dr goes through his list and looks at the urgency of his cases.
Appart from dreading the pain again we are unable to make any holiday arrangements for the summer.
Some of my family live abroad,also my travel insurance would be high.
So sorry about your Dad donnellysdogs

Good.. Keep chasing up monthly though.....
My dad was a long time ago now!
 
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