Why me

[kazwbb]

I got called into my doctors following some tests and I have now been diagnosed with nephropathy! It's so unfair I could cry.

Since being diagnosed I have completely changed my lifestyle. My bloods are pretty good and my DN is really happy with me BUT I still seem to get all the complications. I was diagnosed with neuropathy and now this too.

It really makes me feel like I should give up trying as nothing seems to work.

 

[Unbeliever]

Sorry to hear that. I believe it is quite common to suffer complications when your levels come down if they have been running high for some ime.
That happened to me with my eyes . I understand that after a time of good control many of these things can be reversed. I read somewhere that with eyes , for example ,this can take up to three years. A good reason to maintain good control and not give up.

My hospital doesn't seem to be aware of this so your Dr may not be either/.

I am sure some of those who have suffered the same complications as you will be along soon and hope they can reassure you.

Best wishes

 

[WhitbyJet]

I feel so sorry for you, I have had excellent control with consistent bg levels and Hb1ac at non diabetic level but I still have some leftover neuropathy, thought, cool, at least its improved, I can live with that, then suddenly, bang, wallop just before Christmas last year my eye starts bleeding and I honestly thought that I had managed to arrest this blasted retinopathy.
I had to have more laser treatment at the time, 2 weeks ago had a check up and all seems fine, all I can do is continue as I have done before, who knows, if I didnt have such good control things might be even worse?!

Before I started with low carb, I had wildly fluctuating bg levels, if I got a 7 it was good, mostly higher, I took a lot of medication as well, for various complaints and aches and pains and blood pressure. I also developed kidney problems, it was around that time that someone told me to look into controlling my diabetes with low carb diet.
It has worked wonders for me, I now have normal blood pressure, cholesterol/trigs, no more rheumatic pains, and kidney function improved, eg highest serum creatinine was 169, it has been a steady 70 to 80 for the past 2 years now and apart from Bitter Melon, I dont take any meds at all.

Dont give up, but make sure you get some exercise, plenty of relaxation, eat a diet as healthy as you possibly can, cook your own meals if poss, eat berries, get those antioxidants inside you, try not to overload those poor kidneys with too much medication (obviously dont stop taking meds, always consult with your medics) or any type of chemicals, this includes over the counter remedies, drink nettle leaf tea (add a little freshly squeezed lemon juice to it).
I assume that you will be seeing a kidney specialist, do your research, have all the questions you want answered ready, write them down, eg what about diet, what about your intake of fluids, and so on

I am sending you a big HUG, I have a jolly good idea of how you must be feeling right now, but hopefully things will improve for you again soon.

 

[kazwbb]

Thanks for the replies.

I have a suspicion that I have been diabetic longer than I thought. My blood pressure is good and I just had the all clear from the retinopathy test so that's something

I am going to carry on being good. I was just upset earlier. I know that maintaining my levels will help prevent further progression and maybe even turn things around.

Thank you for the hug. Am sending one back to you. The eye thing sounds awful!

 

[Defren]

Sorry to hear that. I believe it is quite common to suffer complications when your levels come down if they have been running high for some ime.
That happened to me with my eyes . I understand that after a time of good control many of these things can be reversed. I read somewhere that with eyes , for example ,this can take up to three years. A good reason to maintain good control and not give up.

My hospital doesn't seem to be aware of this so your Dr may not be either/.

I am sure some of those who have suffered the same complications as you will be along soon and hope they can reassure you.

Best wishes

This is really interesting, thank you for sharing. I am only two weeks diagnosed, but in that time have completely changed my diet and am on Metformin and Simvastatin. Since I changed, I have felt ill, really, really ill. Appetite almost non existent, absolute fatigue, weak, aching legs and hips (I am on quinine and have been for years for leg cramps, and also on Vit D and iron supplements). The list goes on and on. My eyesight is very fuzzy (waiting for a diabetes eye test appointment). All in all, since changing my lifestyle, I feel absolutely dreadful. I keep telling myself it is the change in diet, and new medication. I think a word with my GP Is needed though.

 

[Defren]

Thanks for the replies.

I have a suspicion that I have been diabetic longer than I thought. My blood pressure is good and I just had the all clear from the retinopathy test so that's something

I am going to carry on being good. I was just upset earlier. I know that maintaining my levels will help prevent further progression and maybe even turn things around.

Thank you for the hug. Am sending one back to you. The eye thing sounds awful!

Snap. I think I have had diabetes a long, long time before diagnosis. I am angry because I have to have regular bloods for other health issues, and it's only now been diagnosed. I have neuropathy in both hands and as I said, my eyesight is blurry. I suspect there may be other issues associated with undiagnosed diabetes I may have to face in the near future. Good luck to all of us!

 

[Unbeliever]

I felt much worse after acccidental diagnosis and being put immediately on the standard metformin. I was not overweight , had followed a low GI diet for years and ook regular exercise.

If ou have been given he standard release meformin ask for the modified or slow release version.

Don't worry too much about bklurry eyes . That is not a symptom of retinopathy but a symptom of high blood sugars. This will probably clear when yioou are stable.

Just a litttle note when we speak of a reinal bleed it is not necessarily blood but fluid . I used to visualise people with eyes dripping red blood.!