Worried mum

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
If my daughter keeps her sugars controlled is there a chance she will never get any diabetic complications ?so worried she only 9 and I worry about her future


Sent from the Diabetes Forum App
 

Picci

Well-Known Member
Messages
300
Type of diabetes
Type 1
Treatment type
Pump
I was 10 when diagnosed, I'm 44 now. I went through the awful teens putting diabetes at the bottom of the list and came out the other end safely. I had a healthy pregnancy and a beautiful child who is 8 years old. I have been scrupulous about my control since my early 20s and so far only have mild retinopathy. Reading parents posts break my heart as I only now understand what my parents went through when I was diagnosed. Please please don't worry, I'm sure your child is being well educated about her diabetes care from her parents, just keep up the good work and one day she'll take over and look after herself as good as I do.


Sent from the Diabetes Forum App
 

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
Thank you so much I want my mind to be at rest but just can't stop worrying about her future,she is really sensible injects herself and wants me to teach her to carb count,were doing the best we can for her.since her diagnosis I have not slept I just find it so difficult in knowing that diabetes is forever and she is so brave about it I don't no why I can't feel the same ,from the first few injections her little legs were covered in bruises and she just took it all on her stride,I love her so much I no that's why it hurts like hell I just want to do the best I can for her and keep her healthy,dreading the teenage years incase she rebels against her diabetes but glad u came threw it and went on to be a mum that's all my concerns that she can lead a normal life


Sent from the Diabetes Forum App
 

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
I'm hoping to find a group where I can go to,really need to talk and feel I can't talk to family at the moment I'm just hiding my feeling from them .


Sent from the Diabetes Forum App
 

Picci

Well-Known Member
Messages
300
Type of diabetes
Type 1
Treatment type
Pump
My heart is breaking for you all. You know, when I was diagnosed I don't remember suffering or feeling sorry for myself, I really don't. Mum and dad did a super job of supporting me and I never felt I missed out with the food children love. Mum used to bake cakes etc and sit with a pencil and paper calculating the carbohydrate so that it could be incorporated into my diet. When diagnosed in 1979 carbohydrate counting was the norm. Looking back over my childhood I can honestly say it will have been my parents suffering more than me, honestly. That won't make you feel better because I am a mum and if my child became diabetic I too would feel like you, but I know your children will be suffering less. I've had a super life, I lived in Italy for 17 years.... My parents were worried sick about how I'd get my insulin etc and the health care, but I wasn't going to let anything stop me. The italian health service provided all I needed ( however the standard if care was inferior to the uk) but I thankfully have an excellent understanding of my condition and knew how to look after myself. I feel compelled to let you know that I have wonderful memories of my childhood and I can't recall ever suffering. I was 10 and know that makes a difference to being 3 for example, but us parents as always are the ones who suffer more, that's a fact. Chin up everyone, I'm thinking if you all as I test and inject and think about my insulin dose and carb intake, and I know you will be doing it for your children,,hugs


Sent from the Diabetes Forum App
 

MrsDMiles

Well-Known Member
Messages
90
Hi picci
Sat reading that crying.
Oscar is just my absolute world. It is such a shock for us. Not in the family at all. Just wish wish it was me. I have new baby too, and just feel like its spoiling everything for everyone. Just not fair. He isn't even 3 yet.
Feel so sad. Just wish I could give him my cells. Sorry for being negative and it's brilliant to read your reply but I just can't seem to come to terms with it x x


Sent from the Diabetes Forum App
 

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
Hi picci,so refreshing to hear good things and good life stories with people who have this horrible condition woke up today lots more positive and determined to make diabetes work for us not letting it take over our lives just be a small part of it x


Sent from the Diabetes Forum App
 

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
I just feel if Chloe can handle it so well I have got to paint on that brave face and look at all the positives she's been diagnosed at a age that it will become the norm to her if it was my other daughter who is 12 would have been a nightmare with her mood swings and attitude ,same with ur little one it will become the norm just like brushing there teeth and hair .something they have to do,I can't imagin how extra difficult it is for u just having a new baby that's stressful in its self getting no sleep then not sleeping with this worry as well ,I have been to the doctors who has given me some anxiety pills to help me cope as have butterfly's all day long at work worrying school are taking full care of her ,this seems to help a little but were bound to feel like this .i keep hoping its a bad dream I will wake up from but deep down I no it's not and will have to make the best out of it and not let us drag us down like Puccini says controlling the sugars give the best chance of them leading a normal healthy life .


Sent from the Diabetes Forum App
 

jayne15

Well-Known Member
Messages
115
Big hugs to everyone your feelings are absolutely normal and its so inspirational to hear from other healthy diabetics who have grown up healthy and happy.

I am 6 months into our diabetic journey with my beautiful 7 year old little of girl and there are still some days I feel like you do at the moment, but honestly it really does get easier. I look at my daughter and see a beautiful happy healthy girl something I never really truly appreciated until she was diagnosed.

As parents we can only try our best for our children, we will make mistakes, shout on occasional and cry when things get too much.

I am determined to celebrate what I have and try my best for my daughter until she has the maturity and skills to take this on for her self.

keep your chin up peeps and keep talking xx
 

mariamack1

Member
Messages
7
I know exactly what you are feeling. Although my son was 11 when diagnosed, only 7 months ago, it felt like a bombshell had hit us. I am a single mum and my youngest 8 year old daughter has had epilepsy since she was 3. We have no other family support, but somehow we get through each day, together. My kids amaze me every single day. My son does not let diabetes get in the way of his life, and he is so mature with his understanding and management. He's been carb counting since the start, and he has ambitions now to study biology and chemistry and create his own artificial pancreas! As we say every day, "we" have diabetes, diabetes DOES NOT have us! The more we learn about the condition, the more we understand and management is easier, although we have bad days when we cannot explain high bg, his last Hba1c was 6.8, so we must be doing most of it correct. When the kids are in bed and I'm alone I cry, full of guilt that it is not me that has these conditions, but we smile together, and to see my kids happy and healthy fills my heart with joy. It will get easier, but as parents we will never stop worrying, it's natural xx
 

Blondie153

Well-Known Member
Messages
428
Hi all we are 9 months into the journey. My 9yr old now in pump but started with 2 injections, quickly moved onto multiple injections 5 each day, this involves carb counting everything. I became the weirdo with her own set of electronic scales in the restaurant. But I don't care these are our children we would take it ourselves if we could in a heartbeat if we could but we can't. So we get up we put in our brave face and we refuse to let our children be victims of diabetes. This is the raw deal our kids have been given and we are going to make them strong, sensible, healthy individuals who just happen to have diabetes!!


Sent from the Diabetes Forum App
 

Blondie153

Well-Known Member
Messages
428
Read this again and it sounded very cross!!! Sorry for that, I just want my beautiful, smart daughter to be everything she wants to be and everything she would have been without diabetes and I am going to do my best to get her there! It felt like the end if the world 9 months ago now I feel like it is going to stop her! Is this one of the stages if grief defying the condition???


Sent from the Diabetes Forum App
 

jasperc

Active Member
Messages
35
Hi Blondie, I'd be really interested how you've found the pump? We are thinking of it for my 9 yr old DS but not sure as MDI is going well. He's seen another child with a pump 'eating what they want' and is now desperate for one :0/


Sent from the Diabetes Forum App
 

Blondie153

Well-Known Member
Messages
428
We are a couple if weeks into it and it has already made a huge difference! My daughter is so delighted to have moves away from 5 injections a day which we totally had a handle in to a whole new ball game. My advice to you is if there is any and I mean this any chance grab a pump with both hands. Yes it is a lot if work in these early days but my daughter said to me the other day mum I feel much better now! Sure isn't that what what it is all about making their lives as close to their prediabetes days. Please consider this!


Sent from the Diabetes Forum App
 

jowrich1

Member
Messages
6
To Oscar's mum - MrsDMiles
My son has just been diagnosed recently and he has just turned 3, so I think I can empathise with you. There is no history of diabetes, however I have an underactive thyroid and both conditions are auto-immune. He has dealt with the whole diagnosis brilliantly and my family have adjusted well. I am a neonatal nurse myself so I guess I've taken to the medical side of things much easier than most would. Jake has been given an insulin pump (2 weeks post diagnosis) and that has been an amazing thing for us. It gives a sense of freedom as Jake can eat as much or as little as he likes and as often as he likes as we can give very specific doses of insulin for the carbs he has had. I want to send you my thoughts and love, I'm here if you need a chat as our children are the same age. Keep your chin up, that's to all of you!!
Blondie, yes one of the stages of grief is denial!!
 

MrsDMiles

Well-Known Member
Messages
90
Hello
Just to say there is some great Facebook pages

Diabetic mums

Parents of children with type 1 diabetes

We are on MDI just don't fancy the pump. Scares me and don't think he would like something attached to him?? But hospital said its not a problem if we wanted one.
Having a good day today a d feeling positive :)


Sent from the Diabetes Forum App
 
Messages
11
<My son who is now 10 was diagnosed when he was 8. It was a huge shock and I compleely fell to pieces, wishing it was me instead of him. The thought of him having to inject and carb count for the rest of his life tore me apart but with the fantastic support of the specialist diabetic nurses and the way my son coped with the diagnosis made me pull myself together and things are now a lot easier. Luke is now on an insulin pump and it is fantastic! He coped really well with MDI but suffered with lots of hypos due to his love of sport. I cannot express how much better the insulin pump is and the quality of life it offers.