worried

[Hayley64]

My 9 year old son was diagnosed in July been very up and down but last 2 days gone down to 2 point something an hour after insulin and food doses right so worried came so out of the blue so hard to come to terms with had to give my job up to look after him as a single parent nothing in place as far as benefits such a worrying time all round! Sorry for moaning

 

[urbanracer]

My 9 year old son was diagnosed in July been very up and down but last 2 days gone down to 2 point something an hour after insulin and food doses right so worried came so out of the blue so hard to come to terms with had to give my job up to look after him as a single parent nothing in place as far as benefits such a worrying time all round! Sorry for moaning

I think you should be speaking to your medical support team about his insulin doses @Hayley64 . Are you in touch with a diabetes specialist?

Has anything changed in terms of diet, activity levels etc?

 

[Hayley64]

I think you should be speaking to your medical support team about his insulin doses @Hayley64 . Are you in touch with a diabetes specialist?

Thankyou yes rang them earlier maybe going to change ratios but so strange just happened past 2 days it is worrying as still all new

 

[urbanracer]

There are so many things that can affect insulin absorption and glucose levels, - diet, timing of meals, temperature, activity levels (perhaps even from the day before with some people). Has he been doing anything different at home/school?

 

[Hayley64]

There are so many things that can affect insulin absorption and glucose levels, - diet, timing of meals, temperature, activity levels (perhaps even from the day before with some people). Has he been doing anything different at home/school?

Nothing different yesterday or today only thing I did differently was change the insulin cspsule so threw

 

[Hayley64]

Nothing different yesterday or today only thing I did differently was change the insulin cspsule so threw

Threw the other one away and replaced it just incase but not happening after every meal confused

 

[ButtterflyLady]

My 9 year old son was diagnosed in July been very up and down but last 2 days gone down to 2 point something an hour after insulin and food doses right so worried came so out of the blue so hard to come to terms with had to give my job up to look after him as a single parent nothing in place as far as benefits such a worrying time all round! Sorry for moaning

Hi and welcome to the forum.

I suggest keeping up with frequent testing as often as necessary to ensure he isn't having hypos. Have you been given good info on how to treat a hypo? I hope your nurse/doctor can immediately suggest a change to his insulin to prevent hypos, if that's what is best medically.

I know very little about continuous glucose monitors and pumps but if one or both of these would help him then you may need to be proactive and ask about it.

Is there an organisation you can contact for advice and support about getting benefits in place? And don't apologise for moaning, post all you need so we can help you get things improved on the diabetic front and everything else you need such as benefits. All the best.

 

[Hayley64]

Hi and welcome to the forum.

I suggest keeping up with frequent testing as often as necessary to ensure he isn't having hypos. Have you been given good info on how to treat a hypo? I hope your nurse/doctor can immediately suggest a change to his insulin to prevent hypos, if that's what is best medically.

I know very little about continuous glucose monitors and pumps but if one or both of these would help him then you may need to be proactive and ask about it.

Is there an organisation you can contact for advice and support about getting benefits in place? And don't apologise for moaning, post all you need so we can help you get things improved on the diabetic front and everything else you need such as benefits. All the best.

Thank you cannot find much out at all been to citizens advice bureau and when dla comes in to force in October 3 months after diagnosis the rules apparently other can be claimed to go hand in hand but have to manage in meantime! He has been fine until just these blips last 2 days will check levels more frequently now difficult when at school though as having to go in every day to inject him

 

[ButtterflyLady]

Thank you cannot find much out at all been to citizens advice bureau and when dla comes in to force in October 3 months after diagnosis the rules apparently other can be claimed to go hand in hand but have to manage in meantime! He has been fine until just these blips last 2 days will check levels more frequently now difficult when at school though as having to go in every day to inject him

Sometimes CAB advice can be incorrect, so it might pay to check with a benefits advocacy group - not sure if you have those where you live. Others on here can also advise you about benefits, so you might want to start a new thread about it.

If I was a parent I'd want to go to school to manage my child's insulin because I don't tend to trust people with important things. But it may be possible for him to have a teacher aide who does it. If they are competent enough to be trusted. Just something to think about. I think kids with T1 should have a written care plan so the school is clear on how the child's health and safety will be managed at all times, not just when they are being injected.

 

[Hayley64]

Sometimes CAB advice can be incorrect, so it might pay to check with a benefits advocacy group - not sure if you have those where you live. Others on here can also advise you about benefits, so you might want to start a new thread about it.

If I was a parent I'd want to go to school to manage my child's insulin because I don't tend to trust people with important things. But it may be possible for him to have a teacher aide who does it. If they are competent enough to be trusted. Just something to think about. I think kids with T1 should have a written care plan so the school is clear on how the child's health and safety will be managed at all times, not just when they are being injected.

Yes I am worried as no one is trained yet and so young and newly diagnosed have been in touch on phone and benefits office and no one seems to know of anything in place until dla starts does not help me now just extra stress hey ho

 

[ButtterflyLady]

Yes I am worried as no one is trained yet and so young and newly diagnosed have been in touch on phone and benefits office and no one seems to know of anything in place until dla starts does not help me now just extra stress hey ho

Really the school needs to provide an adult to be with him at all times to observe, test and respond if he has a hypo. Classroom teachers cannot do this. It would pay to contact the head teacher and discuss this. You could email them so you have a record. Others here will also know of information you can read about this and perhaps some materials you can send the head teacher explaining their responsibilities. Don't assume they know this.

 

[azure]

If your son has been diagnosed recently, he could be going through the honeymoon period. This is when his body can still make some insulin of its own. This can cause low sugars.

As for the school, they should have a plan for your son as he has a medical condition. They should have advice for all staff about what to do in the event of a hypo. Does your son test his own blood sugar?

 

[Hayley64]

Really the school needs to provide an adult to be with him at all times to observe, test and respond if he has a hypo. Classroom teachers cannot do this. It would pay to contact the head teacher and discuss this. You could email them so you have a record. Others here will also know of information you can read about this and perhaps some materials you can send the head teacher explaining their responsibilities. Don't assume they know this.

Already sent a letter in as a new teacher and stressed how serious the condition is I just constantly worry when he is in or out of my site thank you for your advice appreciate it

 

[Hayley64]

If your son has been diagnosed recently, he could be going through the honeymoon period. This is when his body can still make some insulin of its own. This can cause low sugars.

As for the school, they should have a plan for your son as he has a medical condition. They should have advice for all staff about what to do in the event of a hypo. Does your son test his own blood sugar?

No in this area they do not advise it at this age so I am doing everything at the moment school are going to be trained eventually but got so many to get around and only 3 nurses for this borough

 

[ButtterflyLady]

Already sent a letter in as a new teacher and stressed how serious the condition is I just constantly worry when he is in or out of my site thank you for your advice appreciate it

I've read about other kids here having a dedicated teacher aide. If he had one, it might reduce your stress, and it could also be a help to his wellbeing and his education.

 

[azure]

Hayley, have you checked this out?:

https://www.diabetes.org.uk/Guide-to-diabetes/Schools/

Children with diabetes shouldn't be disadvantaged at school and shoukd receive appropriate care. There's a helpline number there if you need advice.

I also suggest you warn his school about his recent hypis so they can watch out for them. If you don't think they've taken in what you've said, you could write down his hypo treatment and give it to the school. Every person dealing with your son should know what to watch out for.

 

[azure]

No in this area they do not advise it at this age so I am doing everything at the moment school are going to be trained eventually but got so many to get around and only 3 nurses for this borough

At least the training will happen (eventually). I know it must be incredibly stressful for you having to do everything, but I'd do the same myself if it was my child. Hopefully, once the school have received training then you should be able to pass some of the diabetes care over to them. Do make sure that you're happy with what they provide.

 

[catherinecherub]

My 9 year old son was diagnosed in July been very up and down but last 2 days gone down to 2 point something an hour after insulin and food doses right so worried came so out of the blue so hard to come to terms with had to give my job up to look after him as a single parent nothing in place as far as benefits such a worrying time all round! Sorry for moaning

This should help with DLA. It is a guide from DUK.

https://www.diabetes.org.uk/Documents/Advocacy/dla/0229A-DLA-children-guidelines-0114.pdf

This article explains the school's responsibilities.

https://www.diabetes.org.uk/Guide-t...teachers-school-governors-responsible-bodies/

Hope this helps.

CC.

 

[Jaylee]

My 9 year old son was diagnosed in July been very up and down but last 2 days gone down to 2 point something an hour after insulin and food doses right so worried came so out of the blue so hard to come to terms with had to give my job up to look after him as a single parent nothing in place as far as benefits such a worrying time all round! Sorry for moaning

.... There's this section on the forum for parents of Ds too! http://www.diabetes.co.uk/forum/category/parents.16/

 

[Hayley64]

.... There's this section on the forum for parents of Ds too! http://www.diabetes.co.uk/forum/category/parents.16/

Thank you every one will go through it all much appreciated