several auto-immune conditions

Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
hypocrisy, politicians, bankers.
Hello Diabetes Community. I am William Brian Thomas, aged 69, diagnosed Type 1 in 1999. I cycle and read a lot, not contemporaneously, and would like to hear from Type-1'ers who have more than one auto-immune condition. How do they manage; are there side-effects?

I have, as well as DT1, an under-active-thyroid, IgA which may be a leaking kidney, Dermatitis Herpetiformis [DH]and,indirectly, severe knee arthritis.

I have started with background nephropathy and, for 5 years, had numb feet soles but pass all the tuning fork tests.

The DH is kicking in now [severe rash] as I occasionally eat "illegal" foods, even if mostly from M&S and Tesco.


Would love to hear from you

Will.I,Am B.
 

totsy

Well-Known Member
Messages
3,041
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
liars, animal cruelty
Hi William.
welcome, i started with thyroid problems first which i was told was part of the reason i developed type 1 diabetes, i then got m.e ,then fibromyalgia and im being tested for lupus, so i do have a few auto immune conditions
 
Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
hypocrisy, politicians, bankers.
thank you Totsy. My thyroid issue was diagnosed about a year before my T1 diabetes, which fits in with your experience. Interesting that it may have triggered my Type 1 diabetes; I had always assumed that the death of my mother had been sufficiently traumatic to cause the Diabetes onset only 3-4 months later.

You are much worse off them me though, so good luck with your progress and test for lupus.

I assume your T1 control is goodish. Mine is not great - several sevens but now an eight.

Just as an aside, my Dermatology "Specialist" gave me an unlicensed or unregistered pill to ameliorate my DH rash; it nearly killed me! After about 17 days the "new" pill had destroyed all my white cells and I was hospitalised for a week! I have a continuing argument with "those that know" that I do NOT have coeliac disease. But its rare cousin DH.
 

Alanp35

Well-Known Member
Messages
895
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Cricket, golf
Hi there,
You are not on your own, believe it.

From what I understand auto-immune problems never heal or finish or go away. If you have one then there is a strong likelihood that you may get others.
When I was 10 I got rheumatoid arthritis (Stills disease), that progressed to juvenile rheumatoid arthritis. The catalyst the doctors feel was mumps at Easter and by June that year the RA was up and running. A couple of years later leukoderma (vitiligo) was added. This problem leaves odd-shaped white patches on the skin because there is no melolin in the skin to enable a tan to take place. It can result in severe burns after only a few minutes in the sun, even in the UK. A few years later asthma came and went and occasionally makes an appearance, hypothyroidism came soon after, as did eczema on my palms and soles of feet. All of these require medication, some of it horrendous in their side-effects and to be honest I wonder at times if the "cure" is worse than the disease.
It is what it is and we need to manage it, both the health problems and the drug therapy that goes along with it. This is why I feel that we need "sympathetic" medical support, understanding that our mental health is also affected and even though we may be surrounded by supportive family and friends we may well feel very alone perhaps even lonely.
My motto for over 55 years has been "Keep on trucking" and this I have done. I worked full-time very successfully with very little time off sick, some times 3and 4 years without a day off sick. Feeling like **** but still managed to get in to work and do my job.
It is now just 12 months since my last day at work as I made a decision that I needed to start to do things for me. It has been a release, a sweet release and I am enjoying every moment.
Strength comes from within with that spark that is in each of us. Sure it is tough, but then we need to be tough in order to not only to survive but to live our lives and live as full a life as possible.
T1, the latest addition to my repertoire has been a shock for me, a real shock I can assure you and it will take a while for me to settle down with it. I keep thinking that this is a dream, a nightmare and that I will get a phone call from the GP telling me that they gave me someone else's test results. In reality I also know that that is not the case? From what I have read on here it will be more like a roller coaster, and they make me sick. If I am to continue with my life I need to manage this and ensure that I do what I can to ensure that the journey is as smooth as possible. It is all that any of us can do. It is in our own hands to manage our health support teams as well but that is another story.
Keep on trucking folks and let us all keep supporting each other as best we can. This forum is a great place of learning, of support, full of big hearts and generous spirit.
Enjoy




Sent from the Diabetes Forum App
 
  • Like
Reactions: 2 people
Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
hypocrisy, politicians, bankers.
Hi there,
You are not on your own, believe it.

From what I understand auto-immune problems never heal or finish or go away. If you have one then there is a strong likelihood that you may get others.
When I was 10 I got rheumatoid arthritis (Stills disease), that progressed to juvenile rheumatoid arthritis. The catalyst the doctors feel was mumps at Easter and by June that year the RA was up and running. A couple of years later leukoderma (vitiligo) was added. This problem leaves odd-shaped white patches on the skin because there is no melolin in the skin to enable a tan to take place. It can result in severe burns after only a few minutes in the sun, even in the UK. A few years later asthma came and went and occasionally makes an appearance, hypothyroidism came soon after, as did eczema on my palms and soles of feet. All of these require medication, some of it horrendous in their side-effects and to be honest I wonder at times if the "cure" is worse than the disease.
It is what it is and we need to manage it, both the health problems and the drug therapy that goes along with it. This is why I feel that we need "sympathetic" medical support, understanding that our mental health is also affected and even though we may be surrounded by supportive family and friends we may well feel very alone perhaps even lonely.
My motto for over 55 years has been "Keep on trucking" and this I have done. I worked full-time very successfully with very little time off sick, some times 3and 4 years without a day off sick. Feeling like **** but still managed to get in to work and do my job.
It is now just 12 months since my last day at work as I made a decision that I needed to start to do things for me. It has been a release, a sweet release and I am enjoying every moment.
Strength comes from within with that spark that is in each of us. Sure it is tough, but then we need to be tough in order to not only to survive but to live our lives and live as full a life as possible.
T1, the latest addition to my repertoire has been a shock for me, a real shock I can assure you and it will take a while for me to settle down with it. I keep thinking that this is a dream, a nightmare and that I will get a phone call from the GP telling me that they gave me someone else's test results. In reality I also know that that is not the case? From what I have read on here it will be more like a roller coaster, and they make me sick. If I am to continue with my life I need to manage this and ensure that I do what I can to ensure that the journey is as smooth as possible. It is all that any of us can do. It is in our own hands to manage our health support teams as well but that is another story.
Keep on trucking folks and let us all keep supporting each other as best we can. This forum is a great place of learning, of support, full of big hearts and generous spirit.
Enjoy




Sent from the Diabetes Forum App
Hi there,
You are not on your own, believe it.

From what I understand auto-immune problems never heal or finish or go away. If you have one then there is a strong likelihood that you may get others.
When I was 10 I got rheumatoid arthritis (Stills disease), that progressed to juvenile rheumatoid arthritis. The catalyst the doctors feel was mumps at Easter and by June that year the RA was up and running. A couple of years later leukoderma (vitiligo) was added. This problem leaves odd-shaped white patches on the skin because there is no melolin in the skin to enable a tan to take place. It can result in severe burns after only a few minutes in the sun, even in the UK. A few years later asthma came and went and occasionally makes an appearance, hypothyroidism came soon after, as did eczema on my palms and soles of feet. All of these require medication, some of it horrendous in their side-effects and to be honest I wonder at times if the "cure" is worse than the disease.
It is what it is and we need to manage it, both the health problems and the drug therapy that goes along with it. This is why I feel that we need "sympathetic" medical support, understanding that our mental health is also affected and even though we may be surrounded by supportive family and friends we may well feel very alone perhaps even lonely.
My motto for over 55 years has been "Keep on trucking" and this I have done. I worked full-time very successfully with very little time off sick, some times 3and 4 years without a day off sick. Feeling like **** but still managed to get in to work and do my job.
It is now just 12 months since my last day at work as I made a decision that I needed to start to do things for me. It has been a release, a sweet release and I am enjoying every moment.
Strength comes from within with that spark that is in each of us. Sure it is tough, but then we need to be tough in order to not only to survive but to live our lives and live as full a life as possible.
T1, the latest addition to my repertoire has been a shock for me, a real shock I can assure you and it will take a while for me to settle down with it. I keep thinking that this is a dream, a nightmare and that I will get a phone call from the GP telling me that they gave me someone else's test results. In reality I also know that that is not the case? From what I have read on here it will be more like a roller coaster, and they make me sick. If I am to continue with my life I need to manage this and ensure that I do what I can to ensure that the journey is as smooth as possible. It is all that any of us can do. It is in our own hands to manage our health support teams as well but that is another story.
Keep on trucking folks and let us all keep supporting each other as best we can. This forum is a great place of learning, of support, full of big hearts and generous spirit.
Enjoy




Sent from the Diabetes Forum App


Hi Alanp35; what a wonderful and uplifting response from your goodself. You really are a positive force in this world and long may you live to give out your wonderful vibes. Thank you again Alan!
 

mandysimpkins

Member
Messages
5
Type of diabetes
Friend
Treatment type
I do not have diabetes
Two years ago, a tiny piece of leukoderma appeared on my face and I didn’t pay much attention to it. When it became large, I went to hospital immediately, where I was examined and it was diagnosed as vitiligo.Six months ago, I came to Vitiligo Treatment Center of a TCM Hospital for re-examination. I have fully recovered from vitiligo and showed no sign of recurrence. see more skin treatment on the website of vitiligotcm.
 

Indy51

Expert
Messages
5,540
Type of diabetes
Type 2
Treatment type
Diet only
Welcome to the forum, William.

I'm not a type 1, but I read a lot about various health conditions as part of my general voyage of discovery re. my Type 2 and IBS. There seems to be a very strong correlation between gluten and autoimmune conditions - dermatitis herpetiformis sometimes being called the "gluten rash". Type 1 and coeliac also often seem to go hand in hand. Are you on a gluten free diet?
 

Engineer88

Well-Known Member
Messages
2,130
Type of diabetes
Type 1
Treatment type
Pump
I'm T1 23 years and coeliac for 11yrs as well as hypothyroid about 1 yr but im really bad at taking my thyroxine :(
 

nickys_angel

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
I have been T1 for just over 3 years now since my first heart attack at age 42. I also suffer from Hashimoto's Thyroiditis (15+ years), Renal Tubular Acidosis (12 years) diagnosed after being paralysed in all 4 limbs for a short time and other conditions such as Pernicious Anaemia, Vitamin D & B12 deficiencies. The last couple of years have been difficult to say the least with not only another heart attack last year but also a miscarriage in my first and only pregnancy. My husband has been my rock since we got married 4 1/2 years ago and I couldn't have got through everything without him. My not being able to find another job is also very stressful for us both as is living with my "challenging" mother but you do what you gotta do and get by... maybe we'll win the lottery (scratch that as don't do it now it's £2) :facepalm:
 

misty1960

Member
Messages
5
I have been type 1 for 17 years. I was also diagnosed with fibromyalgia 4 years ago. I was later found to be vitamin d deficient and was given 3 x 1 monthly injections. Over past year pain has gradually got better and have been almost pain free for 9 months
? May be of interest to someone else. Know not solution for everyone but worked for me.
 
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Reactions: 2 people

janetrm

Member
Messages
10
Type of diabetes
Type 1
Hi there,
You are not on your own, believe it.

From what I understand auto-immune problems never heal or finish or go away. If you have one then there is a strong likelihood that you may get others.
When I was 10 I got rheumatoid arthritis (Stills disease), that progressed to juvenile rheumatoid arthritis. The catalyst the doctors feel was mumps at Easter and by June that year the RA was up and running. A couple of years later leukoderma (vitiligo) was added. This problem leaves odd-shaped white patches on the skin because there is no melolin in the skin to enable a tan to take place. It can result in severe burns after only a few minutes in the sun, even in the UK. A few years later asthma came and went and occasionally makes an appearance, hypothyroidism came soon after, as did eczema on my palms and soles of feet. All of these require medication, some of it horrendous in their side-effects and to be honest I wonder at times if the "cure" is worse than the disease.
It is what it is and we need to manage it, both the health problems and the drug therapy that goes along with it. This is why I feel that we need "sympathetic" medical support, understanding that our mental health is also affected and even though we may be surrounded by supportive family and friends we may well feel very alone perhaps even lonely.
My motto for over 55 years has been "Keep on trucking" and this I have done. I worked full-time very successfully with very little time off sick, some times 3and 4 years without a day off sick. Feeling like **** but still managed to get in to work and do my job.
It is now just 12 months since my last day at work as I made a decision that I needed to start to do things for me. It has been a release, a sweet release and I am enjoying every moment.
Strength comes from within with that spark that is in each of us. Sure it is tough, but then we need to be tough in order to not only to survive but to live our lives and live as full a life as possible.
T1, the latest addition to my repertoire has been a shock for me, a real shock I can assure you and it will take a while for me to settle down with it. I keep thinking that this is a dream, a nightmare and that I will get a phone call from the GP telling me that they gave me someone else's test results. In reality I also know that that is not the case? From what I have read on here it will be more like a roller coaster, and they make me sick. If I am to continue with my life I need to manage this and ensure that I do what I can to ensure that the journey is as smooth as possible. It is all that any of us can do. It is in our own hands to manage our health support teams as well but that is another story.
Keep on trucking folks and let us all keep supporting each other as best we can. This forum is a great place of learning, of support, full of big hearts and generous spirit.
Enjoy




Sent from the Diabetes Forum App
 

janetrm

Member
Messages
10
Type of diabetes
Type 1
I have Hashimotos (thyroid gone), Type 1 a year later, then Addison's three years after. I also have a form of Asthma. Now having treatment of recurrent breast cancer. The start of this was the breakdown of my marriage (stress - big time). I just get on with it, do what I have to do, and not let what I can't do stop me doing what I can.
 

xiphi

Member
Messages
7
Type of diabetes
LADA
Treatment type
Pump
Hi William,
I have had T1DM for 27 years. Then I developed Hashimoto's Thyroiditis followed by Stiff Person Syndrome which took 6 1/2 years to be diagnosed Finally in 2003 I was diagnosed with Coeliac Disease by endoscopy ...... Sick of collecting autoimmune dieases :((
 

RLightning

Active Member
Messages
38
Type of diabetes
Parent
Treatment type
I do not have diabetes
Hi William,
I have had T1DM for 27 years. Then I developed Hashimoto's Thyroiditis followed by Stiff Person Syndrome which took 6 1/2 years to be diagnosed Finally in 2003 I was diagnosed with Coeliac Disease by endoscopy ...... Sick of collecting autoimmune dieases :((

I don't feel so good after reading this thread. :( I hope things get better for you soon. also to everyone suffering autoimmune diseases like us