Newly diagnosed and struggling with medication side effects

wmcoy

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Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
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prejudice, judgments, dishonesty
hi all, I was diagnosed with type 2 diabetes on the 5th January and to be honest still trying to get my head around it. My GP has put me on metformin 500mg twice a day. Since starting the meds I have had the stomach problems which I have read about but also I have been having really bad muscle spasms starting in the middle of my back and coming round to the front. It doesn't say anything about this in the leaflet I have and I was wondering if anyone else has experienced this as the pain is getting me down.

Also why is it that when you are told to give up or cut down on certain foods that is all you seems to crave when I didn't crave for them before so finding the diet thing really difficult at the moment also and hoping that this will get better with time.

I certainly have not taken the diagnoses in yet as a part of me still thinks that they have made a mistake.........also why are they not asking me to test my bloods? Is this usual?

Thanks in advance for any help
 

Lorraine deer

Well-Known Member
Messages
808
Type of diabetes
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Insulin
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Big crowds
hi all, I was diagnosed with type 2 diabetes on the 5th January and to be honest still trying to get my head around it. My GP has put me on metformin 500mg twice a day. Since starting the meds I have had the stomach problems which I have read about but also I have been having really bad muscle spasms starting in the middle of my back and coming round to the front. It doesn't say anything about this in the leaflet I have and I was wondering if anyone else has experienced this as the pain is getting me down.

Also why is it that when you are told to give up or cut down on certain foods that is all you seems to crave when I didn't crave for them before so finding the diet thing really difficult at the moment also and hoping that this will get better with time.

I certainly have not taken the diagnoses in yet as a part of me still thinks that they have made a mistake.........also why are they not asking me to test my bloods? Is this usual?

Thanks in advance for any help
Hi Wendy, metformin can be hard on your stomach but this usually settles down . You need to see your doctor again about muscle spasms . Try not to worry you'll get help here with diet advice . Getting a meter is the way to go so you can take control.
 
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wmcoy

Member
Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
prejudice, judgments, dishonesty
Hi Wendy, metformin can be hard on your stomach but this usually settles down . You need to see your doctor again about muscle spasms . Try not to worry you'll get help here with diet advice . Getting a meter is the way to go so you can take control.
Thanks Lorrainne although nurses at diabetic clinic told me I didn't need to check my bloods so finding conflicting information very confusing at the moment but I am sure it will all work out longer term.
 

daddys1

Well-Known Member
Messages
1,353
Type of diabetes
Treatment type
Tablets (oral)
hi all, I was diagnosed with type 2 diabetes on the 5th January and to be honest still trying to get my head around it. My GP has put me on metformin 500mg twice a day. Since starting the meds I have had the stomach problems which I have read about but also I have been having really bad muscle spasms starting in the middle of my back and coming round to the front. It doesn't say anything about this in the leaflet I have and I was wondering if anyone else has experienced this as the pain is getting me down.

Also why is it that when you are told to give up or cut down on certain foods that is all you seems to crave when I didn't crave for them before so finding the diet thing really difficult at the moment also and hoping that this will get better with time.

I certainly have not taken the diagnoses in yet as a part of me still thinks that they have made a mistake.........also why are they not asking me to test my bloods? Is this usual?

Thanks in advance for any help
Hi It appears that you moved from the thread you just started on, I will tag @daisy1 again, (that just sends a message to her to come and find you and send the post some information for you.) It can get confusing at first on here but you will start to find your way around

With regards to your diagnosis everyone comes on here dazed and totally confused. Don't panic just take it slowly it will get a lot better and things will fall into place. The diet will be OK once you get a handle on it, I assure you.

The NHS don't recommend testing for type 2s due to cost, but that will be the best way you will be able to control your diet and get the diabetes under control.

http://www.homehealth-uk.com/medical/blood_glucose_monitor_testing.htm

Looks like @Lorraine deer has answered your question re the Metformin I had a little trouble when I started but it has passed now, but certaily go to the doctors re the muscle spasms

Neil
 
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daisy1

Legend
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26,457
Type of diabetes
Type 2
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Tablets (oral)
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Cruelty towards animals.
@wmcoy

Hello Wendy and welcome to the forum :)

Unfortunately Metformin can have nasty side effects. I certainly had them. Ask if you can change to Metformin SR (Slow Release) or ER (Extended Release) which are kinder to your stomach. They are more expensive which is why they start off with the ordinary version. They may say don't test as they don't want to pay for a meter and strips but for us it is necessary to be able to see which foods we can safely eat. Test before and 2 hours after meals and you will see what effect certain foods have on you. If you have to pay yourself get a SD Codefree which works out cheapest as the strips are less than the others. Here is the information we give to new members and I hope you will find it useful. Ask all the questions you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 130,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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wmcoy

Member
Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
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prejudice, judgments, dishonesty
Thanks Daisy1 I am sure I will find this site very useful
 
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Snowy12

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image.jpg


To the forum
 
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DeejayR

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Messages
2,381
Type of diabetes
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Hello. Just to confirm that some of the advice given on this forum does conflict with what we are told by our GPs and diabetes nurses but you'll soon get the picture and I'm sure will be able to take control. Welcome to the rest of your life.
 
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wmcoy

Member
Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
prejudice, judgments, dishonesty
Hello. Just to confirm that some of the advice given on this forum does conflict with what we are told by our GPs and diabetes nurses but you'll soon get the picture and I'm sure will be able to take control. Welcome to the rest of your life.
Yes I am beginning to notice that especially about what to eat. I was told by the nurse that the sugar I have in my tea, I take 2 sugars wasn't really an issue and that it was the sugars produced by things like potatoes that caused the issues for diabetes. However she told me that I could eat potatoes if the were baked or boiled. She also told me that i could eat all the vegetables that I want, including root vegetables but I have just read on here that root veg are full of carbs and that is bad for you. I think I am more confused than ever about diet now. ;)
 
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daddys1

Well-Known Member
Messages
1,353
Type of diabetes
Treatment type
Tablets (oral)
Yes I am beginning to notice that especially about what to eat. I was told by the nurse that the sugar I have in my tea, I take 2 sugars wasn't really an issue and that it was the sugars produced by things like potatoes that caused the issues for diabetes. However she told me that I could eat potatoes if the were baked or boiled. She also told me that i could eat all the vegetables that I want, including root vegetables but I have just read on here that root veg are full of carbs and that is bad for you. I think I am more confused than ever about diet now. ;)
Hi Wcoy,

Easy way to remember for veg is everything that grows above the ground is OK, some roots vegs you can have like Carrots are better raw, I don't have a problem with swede but Parsnips are for most a no no or smaller portions. Test you foods on the meter once you test and it's OK you don't have to test for that food again as long as portion sizes remain somewhat the same.

Neil
 
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phil1966

Well-Known Member
Messages
661
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Yes I am beginning to notice that especially about what to eat. I was told by the nurse that the sugar I have in my tea, I take 2 sugars wasn't really an issue and that it was the sugars produced by things like potatoes that caused the issues for diabetes. However she told me that I could eat potatoes if the were baked or boiled. She also told me that i could eat all the vegetables that I want, including root vegetables but I have just read on here that root veg are full of carbs and that is bad for you. I think I am more confused than ever about diet now. ;)

Welcome to the forum!

This is why you need a meter. The advice given out by the NHS is, by its very nature, generalist but everyone is different and what someone can eat with no problems can cause problems for another person (and vice-versa). If you have a meter, you can test yourself before and 2 hours after and see exactly what effect the meal had on your blood sugar level (known as "eating to your meter").

I'm still a relative newbie (I was diagnosed in November) but by following the advice of this forum and eating to my meter, I've brought my fasting level down from over 17 to less than 5 and my sugar is stable in the 5s all day. I've also found that I can't eat bread, potatoes, rice, pasta or any root vegetables without it spiking me towards the teens so if I'd have followed the NHS advice not to test and eat their recommended diet, my blood sugar would have been far, far higher than it is now and I'd be setting myself up for a lifetime of complications. You might be completely different, but unless you test you'll never know :)

At the end of the day, it's your body and your health and IMO it's better to be informed about what's happening than not. You are highly unlikely to get a meter or strips on prescription but it's a cost well worth bearing if it means you take control and keep yourself healthy
 
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wmcoy

Member
Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
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prejudice, judgments, dishonesty
Welcome to the forum!

This is why you need a meter. The advice given out by the NHS is, by its very nature, generalist but everyone is different and what someone can eat with no problems can cause problems for another person (and vice-versa). If you have a meter, you can test yourself before and 2 hours after and see exactly what effect the meal had on your blood sugar level (known as "eating to your meter").

I'm still a relative newbie (I was diagnosed in November) but by following the advice of this forum and eating to my meter, I've brought my fasting level down from over 17 to less than 5 and my sugar is stable in the 5s all day. I've also found that I can't eat bread, potatoes, rice, pasta or any root vegetables without it spiking me towards the teens so if I'd have followed the NHS advice not to test and eat their recommended diet, my blood sugar would have been far, far higher than it is now and I'd be setting myself up for a lifetime of complications. You might be completely different, but unless you test you'll never know :)

At the end of the day, it's your body and your health and IMO it's better to be informed about what's happening than not. You are highly unlikely to get a meter or strips on prescription but it's a cost well worth bearing if it means you take control and keep yourself healthy
Thanks Phil that is extremely helpful advice I will go and buy myself a meter right now :)
 
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A

AnnieC

Guest
Hi and welcome to the forum it is very overwhelming to be told you have diabetes and you need time to come to terms with it
Yes you will get conflicting advice about diet we are not experts or medically trained on this forum so we can't tell anyone what they must or must not eat we can only tell you what diets works for us personally
A lot do the low carb high fat diet and others do different diets there is no ..one size fits all...what one person can eat another can't so we all tailor our diet to what suits us best so have a good look around the forum and read about the different diet options then you can decide what you think will be the best way for you. If you want to test your blood you will probably have to fund it yourself and the Codefree meter system is the most affordable as the strips are cheaper than for any other meter this is available on Amazon and Ebay. Just take things slowly and it will all come together and will not seem to daunting
 
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sanguine

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3,340
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Diet only
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Hi welcome :)

Yes it was a traumatic experience for most of us, but don't panic it can be managed and we can help you.

Have a good read around and ask questions.

The thread linked in my sig below might be of interest.
 
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wmcoy

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Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
prejudice, judgments, dishonesty
Hi and welcome to the forum it is very overwhelming to be told you have diabetes and you need time to come to terms with it
Yes you will get conflicting advice about diet we are not experts or medically trained on this forum so we can't tell anyone what they must or must not eat we can only tell you what diets works for us personally
A lot do the low carb high fat diet and others do different diets there is no ..one size fits all...what one person can eat another can't so we all tailor our diet to what suits us best so have a good look around the forum and read about the different diet options then you can decide what you think will be the best way for you. If you want to test your blood you will probably have to fund it yourself and the Codefree meter system is the most affordable as the strips are cheaper than for any other meter this is available on Amazon and Ebay. Just take things slowly and it will all come together and will not seem to daunting
Thank you :)
 

wmcoy

Member
Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
prejudice, judgments, dishonesty
Hi welcome :)

Yes it was a traumatic experience for most of us, but don't panic it can be managed and we can help you.

Have a good read around and ask questions.

The thread linked in my sig below might be of interest.
Thanks very much for info :)
 

wmcoy

Member
Messages
13
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
prejudice, judgments, dishonesty
@daddys1 hi Neil, I have been looking at the blood test metre but I am not sure which one to buy as I do not understand how testing goes should it be the Md/dl or the Mmol/l. Also how many times can I use a lancet does it have to be a new one each time?
 

neverforever

Well-Known Member
Messages
140
Type of diabetes
Type 2
Treatment type
Other
@daddys1 hi Neil, I have been looking at the blood test metre but I am not sure which one to buy as I do not understand how testing goes should it be the Md/dl or the Mmol/l. Also how many times can I use a lancet does it have to be a new one each time?


Hi welcome
Ask your nurse at the GPs if you can have a meter and script for lancets etc, mine gave me everything on prescription and still does,I might have just been lucky but its worth asking. If not the pharmacist should be able to help and show you how to use it.. You can always change it for a better one later if you need to , just best to get something to get testing You will soon get to grips with this new lifestyle. The first few months for me were spent on the internet, writing lists of what I could have, so I could make a weeks worth of meals, and then just keep adding (and taking away) things as you find they do or don't agree with you. Its worth being a little obsessive at first, at least your aware then. Good luck keep asking:)
 
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