Just out of interest, what kind of fats make up your 80%?. Do you eat much meat, fish, cheese, coconut oil nuts etc.
Hi, Yes, you're right, a high c-peptide implies T2 and the reverse for T1.Hi apologies if the answer to my question is contained in the thread and I've missed it but... I thought if C-Peptide results were above the normal range that would rule out LADA? C Peptide is released by the pancrease in equal quantities to insulin produced naturally so injected insulin would not effect the results, or have I got confused?? If that's the case a simple test for C Peptide can rule out Type 1 and Lada, if the results of the C Peptide are low then further tests would be required...
I think the clinical importance with regard to establishing what type (2 or 1.5) is perhaps simply an academic one. Either type usually presents with insulin insufficiency and/or insulin resistance, and tends to worsen with age and or lifestyle factors. Type 1.5 is usually associated with autoimmunity whereas Type 2 commonly r/t obesity- but not always so!! A type 2 or 1.5 does not necessarily need oral or injectable medication- it all depends on how your body responds to behavioral modifications such as low carb diet and exercise regimen. (Even 10 minutes of sustained cardiovascular exercise decreases insulin resistance for a while). Exercise helps move insulin into the cell, therefore the body requires less circulating insulin to get the job done. The same is true for ingested carbs - requires significantly more insulin to metabolize than protein and so sends a message to pump out lots of insulin (if you have any type of diabetes, carb counting is essential for blood glucose control.) If you are type 1, a VLCD is more difficult as hypoglycemic events can be a problem - because one injected insulin- it needs to be fed, so to speak. However, every body is different.I recently was referred the hospital because they find it strange that I am so thin for a type 2 diabetic. I have been tested for type 1 by two antibodies and its negative. She said there is an 80% chance I am not type 1, however there might be a 20% chance that I am a slow burn type1 diabetic. I am on the VLCD (5% carbs, 15% protein, 80% fat).
I had my ketones measured at the clinic and they were 2.5. Which is not surprising as its a ketogenic diet. However the doctor wants to put me back on a carb diet, just to see if I produce ketones.
The funny thing is that there is a test that can be done (a total of 4 antibodies) instead of going back to carbs but its not offered on the NHS only in research studies. I might go private, however the doctor advised against it. I checked it out and it cost about £600!
My blood glucose are a consistent 5-6 mmol even after eating. But they are worried I could just sky rocket into ketoacidosis.
Any advice?
Thanks,
James
Our bodies normally have a great ability to maintain blood Ph due to the many buffers that respond to changing acid/base metabolic byproducts and within respiration- the acidosis in DKA is a catastrophic failure of our buffer system due to hyperinsulinemia and subsequent complications of this in the body. That is just medical fact.
Oops, I didn't mean to write insulinemia but hyperglycemia. Sorry about that! I actually had written something something additionally and changed it never noticed the words- thanks for noticing!Hyperinsulinemia? Really? What's the mechanism?
Oh OK thanks for the clarification. I was intrigued by the in depth discussion of such matters. I now am interested in finding out more on this on my own, but i am pretty certain no one is going to order me these tests unless I pay out of pocket- which I am not willing to do.No our medical professionals are much the same as the US they rarely investigate beyond Type 1 vs 2 and often don't investigate that properly. We have a lot of activist people on these forums who push hard to get a more fine grained diagnosis.
Some of the tests are not that expensive so it might be worth considering, just for your own benefit.i am pretty certain no one is going to order me these tests unless I pay out of pocket- which I am not willing to do.
I definitely am going to ask about it today. Do you ever notice that when you ask for these kind of things, or even go on anything but a mainsteam diet (like the VLCD) and adopt a certain vigor in learning about a disease process, even when the medical community isn't offering any great remedies (not necessarily diabetes but even with DM), they treat you like a lunatic or neurotic ? That compliance is the only norm they want to see and not interdependent participation? I know I have gotten this before and frankly it makes me want to just not discuss anything with them for fear of this. And I am a pretty rational and conservative person i general. I understand them not wanting to actually pay for things that don't fall within accepted diagnostic or treatment guidelines, but there is another underlying paradigm going on ...Some of the tests are not that expensive so it might be worth considering, just for your own benefit.
Hi guys,
Its been awhile since I last posted so I wanted to update you on my progress.
To help you remember I had gone VLCD to treat my diabetes which still at the moment is unknown (85% fat, 10% protein, 5% carbs) and this had a dramatic effect on my cholesterol. I saw a dietician who gave me some advice.
I modified by diet to 65% fat, 20% protein, 15% carbs, increase my fiber to >25 g a day, reduced my satuared fat to <40% and started to eat a little fruit again.
At first my blood sugar was high but as my body adapted it normalised.
My recent cholesterol results and H1ac results are amazing (see picture).
In addition I have gone for genetic testing (for MODY). I get the results back in October.
Hi. As Spiker says, our UK system is really no better. I think some of our GPs (medics) can be quite ignorant about diabetes even after the NHS training course and don't know about LADA or Late onset T1 or the associated GAD or c-peptide tests. Some want to avoid the cost or hassle. I'm listed as a T2 but know that I'm a Late onset T1. I had my one GAD and c-peptide tests done privately as I gave up with our NHS and my c-peptide was very low. My GAD was negative which can be due to two things either the long time after diagnosis (a know feature of GAD testing) or that my islet cell failure is due to a virus, pancreatitis or whatever. So, the value of this site globally is that we can share our knowledge or diabetes in the real world and be able to challenge the 'experts' who may not be that expert or avoid the high costs of private tests of consultations. One thing that does surprise me is the diference between UK and USA diabetes drug pricing. In general they are much cheaper in the UK and I'd like to understand why?I do have a question for any of you after following this thread. It seems in the UK, or at least on this forum there seems to be much discussion regarding the etiology of specific forms of diabetes- I don't mean just Type 1 or Type 2 but subtypes LADA, MODY etc. In the U.S., very rarely is anyone ever sent for any labs to determine this (and I realize while the treatment may be relatively the same, there may be a benefit to knowing). They just say ok, your blood sugars are now high - you have DM - here's meds, diet, monitoring etc. You are only considered type 1 here when your body does not produce any insulin and therefore- treatment for this etc etc.
Anyway...Being diagnosed as an atypical Type 2 and a family of the same- none of us meeting any of the risk factors for this (like obesity etc) it is very enlightening to me that you are all discussing this work-up - especially since you have a socialized medical system- We actually pay large premiums monthly for insurance to cover us, and we don't get the same in-depth work up. (I am sure somewhere they might, but not in standard primary care. So... is this true or just a random impression I am getting? I actually have an appointment with my endocrinologist today and will inquire about this too.
Hi Christi, Sorry to hear about your cholesterol profile. Sounds like potentially your high blood glucose has caused the rise. Could be temporary increase due to insulin resistance swapping from VLCD to a more carb diet. I have noticed if I eat too much my blood sugar rise a lot so I eat smaller meals to avoid this.
Was your triglycerides high aswell?
Do they know what type of diabetes you have?
Many thanks,
James
:
Hi. As Spiker says, our UK system is really no better. I think some of our GPs (medics) can be quite ignorant about diabetes even after the NHS training course and don't know about LADA or Late onset T1 or the associated GAD or c-peptide tests. Some want to avoid the cost or hassle. I'm listed as a T2 but know that I'm a Late onset T1. I had my one GAD and c-peptide tests done privately as I gave up with our NHS and my c-peptide was very low. My GAD was negative which can be due to two things either the long time after diagnosis (a know feature of GAD testing) or that my islet cell failure is due to a virus, pancreatitis or whatever. So, the value of this site globally is that we can share our knowledge or diabetes in the real world and be able to challenge the 'experts' who may not be that expert or avoid the high costs of private tests of consultations. One thing that does surprise me is the diference between UK and USA diabetes drug pricing. In general they are much cheaper in the UK and I'd like to understand why?