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Haemochromatosis, Coeliac, Diabetes
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<blockquote data-quote="peter_s" data-source="post: 898924" data-attributes="member: 31798"><p>Steve</p><p>Thanks for that. Like me, it was the diabetes testing that showed your Haemochromatosis, when ideally it would have been detected before the diabetes developed. I'm not at all in denial about the diabetes, although I find it very strange that my symptoms are very close to those reported on here for Hypoglycemia. I don't really have any hyperglycemia symptoms, except slightly high readings on my meter. However, when I did try medication, the results were frightening, very clearly hypo using gliclazide, repeated every tablet until I quit. I tried stopping and starting it 3 times before finally quitting, it was definitely the tablets. My guess is therefore that I am producing plenty of insulin, but the insulin-sugar reaction is blocked by the iron. That's why the diabetes caused by Haemochromatosis is said to be "therapy resistant". Apparently tablets don't work and injected insulin isn't always the solution. My Ferritin peaked at 470, and is now around 50. I typically have 5 or 6 venesections each year, after about 14 to get down to low 20s. I had some very contradictory results from the hospital; they said I was 28 on the phone, so didn't need another venesection, then I had a letter 3 months later saying that I had been 52, and I subsequently had three more venesections. It doesn't help when the same blood sample was given two figures. The hospital was going over to a new computer system at the time, so maybe something went adrift there. At the same time, I suddenly had a single Hba1C reading which was higher than my very steady level for 5 years, so the nurse wanted me to go onto insulin based on one doubtful reading.</p></blockquote><p></p>
[QUOTE="peter_s, post: 898924, member: 31798"] Steve Thanks for that. Like me, it was the diabetes testing that showed your Haemochromatosis, when ideally it would have been detected before the diabetes developed. I'm not at all in denial about the diabetes, although I find it very strange that my symptoms are very close to those reported on here for Hypoglycemia. I don't really have any hyperglycemia symptoms, except slightly high readings on my meter. However, when I did try medication, the results were frightening, very clearly hypo using gliclazide, repeated every tablet until I quit. I tried stopping and starting it 3 times before finally quitting, it was definitely the tablets. My guess is therefore that I am producing plenty of insulin, but the insulin-sugar reaction is blocked by the iron. That's why the diabetes caused by Haemochromatosis is said to be "therapy resistant". Apparently tablets don't work and injected insulin isn't always the solution. My Ferritin peaked at 470, and is now around 50. I typically have 5 or 6 venesections each year, after about 14 to get down to low 20s. I had some very contradictory results from the hospital; they said I was 28 on the phone, so didn't need another venesection, then I had a letter 3 months later saying that I had been 52, and I subsequently had three more venesections. It doesn't help when the same blood sample was given two figures. The hospital was going over to a new computer system at the time, so maybe something went adrift there. At the same time, I suddenly had a single Hba1C reading which was higher than my very steady level for 5 years, so the nurse wanted me to go onto insulin based on one doubtful reading. [/QUOTE]
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