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<blockquote data-quote="jp619" data-source="post: 2639748" data-attributes="member: 136353"><p>Hi everyone,</p><p></p><p>Wow - thanks for all your feedback. It's been a while (again), so another update and try to answer some of your questions.</p><p></p><p>I've now had my follow-up appointment with the Neurologist. Since the first one, she sent me for LOTS of blood tests for various levels/deficiencies, diseases and indicators and ran a full-spine MRI to rule anything else out. These have all come back negative.</p><p></p><p>Her conclusion is that this is post-covid, caused by the infection I had last December. It seems to be slowly getting better, so has suggested no further action is needed for now as spinal taps, immunotherapy are all quite invasive. As I seem to be heading in the right direction, she advocates taking a watch and wait approach and hopes that things will continue to resolve on their own. Things like sports have slowly been coming back into my life.</p><p></p><p>I see a lot of talk about nerve conductivity tests. I actually had these through my NHS GP early on in the whole episode. The doctor (wrongly) concluded that there was some nerve damage evident, and as I'm diabetic then this is all caused by diabetes. However, my Neurologist says that in someone with Type 1 diabetes for 40 years you would expect to see some nerve damages those results don't point to a cause. As the onset wasn't typical and correlated with my Covid infection, then the cause is post-viral rather than diabetes. </p><p></p><p>I love the NHS, but I must admit my NHS doctors haven't been great on this one. If I wasn't lucky enough to be able to seek a private Neurologist, then I would still be at home eating pills that didn't do me any good and dealing with the significant mental health impact of that. I was given medication on day 1 with no further investigation (which messed my head up quite a bit as they gave me Duloxetine, a anti-depressant with some nasty side-effects that happen to be effective for peripheral neuropathy) and basically told me to go home and come to terms with it. One even suggested I should feel lucky that this didn't happen 10 years ago, I'm not sure what type of advice that is!</p><p></p><p>Interestingly, I suspect if it had happened 10 years ago, when the NHS wasn't crumbling it would have at least been investigated better. It's such a shame that this is where years of under-investment leaves us with the NHS. I feel at different times it would have been investigate further, whereas this time I was unable to see an NHS Neurologist - I was told the waiting list is so long it wasn't worth it and they would only come to the same conclusion. And there refused to carry out an MRI.</p><p></p><p>If anything I think this shows it's worth pushing your doctors sometimes. But even then you may have to look elsewhere. 3 doctors at my GP surgery all said the same, even though diabetic nurses and a podiatrist all said it looked suspicious.</p><p></p><p>Thanks, JP619.</p></blockquote><p></p>
[QUOTE="jp619, post: 2639748, member: 136353"] Hi everyone, Wow - thanks for all your feedback. It's been a while (again), so another update and try to answer some of your questions. I've now had my follow-up appointment with the Neurologist. Since the first one, she sent me for LOTS of blood tests for various levels/deficiencies, diseases and indicators and ran a full-spine MRI to rule anything else out. These have all come back negative. Her conclusion is that this is post-covid, caused by the infection I had last December. It seems to be slowly getting better, so has suggested no further action is needed for now as spinal taps, immunotherapy are all quite invasive. As I seem to be heading in the right direction, she advocates taking a watch and wait approach and hopes that things will continue to resolve on their own. Things like sports have slowly been coming back into my life. I see a lot of talk about nerve conductivity tests. I actually had these through my NHS GP early on in the whole episode. The doctor (wrongly) concluded that there was some nerve damage evident, and as I'm diabetic then this is all caused by diabetes. However, my Neurologist says that in someone with Type 1 diabetes for 40 years you would expect to see some nerve damages those results don't point to a cause. As the onset wasn't typical and correlated with my Covid infection, then the cause is post-viral rather than diabetes. I love the NHS, but I must admit my NHS doctors haven't been great on this one. If I wasn't lucky enough to be able to seek a private Neurologist, then I would still be at home eating pills that didn't do me any good and dealing with the significant mental health impact of that. I was given medication on day 1 with no further investigation (which messed my head up quite a bit as they gave me Duloxetine, a anti-depressant with some nasty side-effects that happen to be effective for peripheral neuropathy) and basically told me to go home and come to terms with it. One even suggested I should feel lucky that this didn't happen 10 years ago, I'm not sure what type of advice that is! Interestingly, I suspect if it had happened 10 years ago, when the NHS wasn't crumbling it would have at least been investigated better. It's such a shame that this is where years of under-investment leaves us with the NHS. I feel at different times it would have been investigate further, whereas this time I was unable to see an NHS Neurologist - I was told the waiting list is so long it wasn't worth it and they would only come to the same conclusion. And there refused to carry out an MRI. If anything I think this shows it's worth pushing your doctors sometimes. But even then you may have to look elsewhere. 3 doctors at my GP surgery all said the same, even though diabetic nurses and a podiatrist all said it looked suspicious. Thanks, JP619. [/QUOTE]
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