Ok totally confused now, help needed!
I’m back in hospital with major Crohns flare.
Medication for Crohn’s
9mg Entecort steroid and 40mg glicazude gives BGS of 14
Previously on my earlier flare I was in the same 9mg Entecort steroids with 80mg glizcZide + 2 x 500mg Metformin (my readings then between 5.2 and 6.x)
Surely with *less* diabetes meds my BGS will go up! It’s logical surely? My food identical as in hospital being closely monitored it just seems obvious to me why readings up?
Or have I lost it completely??
Thanks a confused JoMar
Maybe they're taking it easy on the glic for fear of gastro-intestinal side effects? I'm with
@lovinglife, you have people to fall back on who know what choices are being made, and why.
You're entitled to answers and input.
Now, I know this is a rather big thing to bring up, but with the frequent flares, has anyone mentioned a
temporary colostomy bag? A long, long time ago I had a friend from Louisiana visiting the Netherlands,(I don't remember if it was Colitis Ulcerosa or Crohns) and I know how much trouble those bags can be. He didn't take care of himself well, and they tended to rupture when he'd left them undrained too long. Being in denial clearly didn't work! Been up to my elbows in sh*t, washing out his pants, as in his world that was a woman's job.
But it did mean he had less pain than he had before, and was well enough to travel halfway across the world. Similarly, a colleague of my husband's went to all sorts of alternative healers/faith healers while passing out with pain/blood loss almost regularly, and he kept that up for
years because a baggy scared him. And when he finally went for a bag, his life changed completely. He's a fully functioning employee now and he's gotten promotions that were out of reach due to his former unreliability. (You never knew whether he would show up for work, but they never let him go because he was a good guy. He was with the company for over 15 years or so when he got the surgery about 10 years ago).
My friend from Louisiana suffered from a deep depression, and his inability to accept the bag was something he, due to the severity of his ulcers, was going to have to live with, well... It did make his physical life better, but mentally it didn't help. Which was part due to his stubborn outlook on what men should be: practically invincible and never ever ill or vulnerable in any way. He was a bit of an a-hole and a caveman, but I loved him anyway. On the other hand there's the colleague who got relief from constant pain and bleeds, and got a life where he could function, play with his kids, keep his job and thrive there.
I know with Crohns, it's not a forgone conclusion as it usually is with ulcers, but with diabetes complicating things, and this coming up so often, maybe it could be a solution? Just to give your insides a break for a while, not a permanent fixture? Again,
I have NO IDEA what I'm talking about, I just saw what a baggy meant to different people. For them it was a permanent thing, so I think they didn't have Crohns but both of them colitis, but who knows. I can't ask Jeremy, he passed a few years ago, (unrelated illness) and I'm not about to ask someone I've only met a few times a personal question.
I wish I could have something proper on offer. All I know about is diabetes, but you have such a severe co-morbidity, it does need to take precedence. Maybe it's something to talk about with your team, maybe not, and maybe they'll have a thousand different solutions someone whose only experience was washing sh*tty pants, would never come up with.
Talk to them, ask questions about the current state of affairs and about your future. Who knows what they'll come up with. Maybe an insulin pump would work better than meds? Maybe this, maybe that... They might know, because most of us here won't.
Hugs,
Jo
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