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<blockquote data-quote="34 South" data-source="post: 2202732" data-attributes="member: 518952"><p>I realise this is a reply to an old post, but perhaps there's a chance it may yet elicit a response. I'm a 58 year old male and have been T1D for almost 40 years. I'm well controlled with a CGM but still do MDI (no pump). I've had moderate pain exactly as described for PMR (neck and bilateral shoulder, lower back, hips, buttocks and thighs) which is worse after resting but is present almost all the time. This started about 15 years ago and was initially diagnosed as capsulitis (frozen shoulder) but eventually confirmed not to be. A test dose of cortisone fully abrogated the discomfort for a day or two but, given that I am T1D, is impossible to take therapeutically. Over the 15 years, the discomfort has worsened and I now also experience debilitating fatigue on a daily basis and which persists for two to three hours or more. There are periods when it disappears for a few days, but always returns. I was diagnosed with ME/CFS but my symptoms do not appear to fit that diagnosis or its severity. I have diabetic peripheral neuropathy (my endocrinologist suggests it may even be autonomic) and Monckeberg's sclerosis, so this could, at an off chance, play a role in the fatigue. I have also had surgery for stenosing tenosynovitis in both hands. In 2018, the term "Diabetic Fatigue Syndrome" was coined in an editorial of a scientific journal for the first time, so perhaps my symptoms could be explained more readily by that, especially given the duration of my T1D. It's just that my symptoms so perfectly fit PMR that it is hard to ignore. However, I have normal ESR and CRP levels (in my field of work we often refer to the latter acronym as "can't really predict") but my GP is convinced I have a mild variant of PMR. I've read though that PMR should resolve after, say, five years, so my 15 years is unusual and, of course, I'm male. I should say that I am an extremely enthusiastic and positive person, as much as my age allows. I enjoy flyfishing, camping, boating, etc. so, as much as my wife might disagree, I am not a couch potato. I guess what I'm looking for in my post is whether anyone here has experienced similar comorbidity, especially in terms of an unresolving PMR and how one deals with that as a T1D?</p></blockquote><p></p>
[QUOTE="34 South, post: 2202732, member: 518952"] I realise this is a reply to an old post, but perhaps there's a chance it may yet elicit a response. I'm a 58 year old male and have been T1D for almost 40 years. I'm well controlled with a CGM but still do MDI (no pump). I've had moderate pain exactly as described for PMR (neck and bilateral shoulder, lower back, hips, buttocks and thighs) which is worse after resting but is present almost all the time. This started about 15 years ago and was initially diagnosed as capsulitis (frozen shoulder) but eventually confirmed not to be. A test dose of cortisone fully abrogated the discomfort for a day or two but, given that I am T1D, is impossible to take therapeutically. Over the 15 years, the discomfort has worsened and I now also experience debilitating fatigue on a daily basis and which persists for two to three hours or more. There are periods when it disappears for a few days, but always returns. I was diagnosed with ME/CFS but my symptoms do not appear to fit that diagnosis or its severity. I have diabetic peripheral neuropathy (my endocrinologist suggests it may even be autonomic) and Monckeberg's sclerosis, so this could, at an off chance, play a role in the fatigue. I have also had surgery for stenosing tenosynovitis in both hands. In 2018, the term "Diabetic Fatigue Syndrome" was coined in an editorial of a scientific journal for the first time, so perhaps my symptoms could be explained more readily by that, especially given the duration of my T1D. It's just that my symptoms so perfectly fit PMR that it is hard to ignore. However, I have normal ESR and CRP levels (in my field of work we often refer to the latter acronym as "can't really predict") but my GP is convinced I have a mild variant of PMR. I've read though that PMR should resolve after, say, five years, so my 15 years is unusual and, of course, I'm male. I should say that I am an extremely enthusiastic and positive person, as much as my age allows. I enjoy flyfishing, camping, boating, etc. so, as much as my wife might disagree, I am not a couch potato. I guess what I'm looking for in my post is whether anyone here has experienced similar comorbidity, especially in terms of an unresolving PMR and how one deals with that as a T1D? [/QUOTE]
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