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Diabetes Discussion
Type 1.5/LADA Diabetes
Possible misdiagnosis of type 2 diabetes
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<blockquote data-quote="Brendan_M" data-source="post: 2592605" data-attributes="member: 503982"><p>I was diagnosed with type 2 diabetes in the spring of 2019 at the age of 31. I went to the doctor for unexplained weight loss of 15 lbs over a few months. Blood work came back with an A1C of 7.8%. Because of my lack of risk factors (healthy weight, active lifestyle) and history of Celiac disease, my GP suspected type 1. I was referred to an endocrinologist who was very adamant that it was type 2 because my blood glucose wasn't that bad and I was too old for type 1. I asked for a c-peptide and GAD test but she insisted that was unnecessary and with the wait times to see a new endocrinologist i didn't have many options. So I was put on Janumet 50/1000mg (Sitagliptin/Metformin) twice a day. I some how got my insurance to cover the freestyle libre even though i wasn't taking insulin. By the summer my A1C was down to 5.2%. I used the freestyle libre for about a year and half until my insurance changed and the new one wouldn't cover them. I kept doing finger pricks for a while but like clockwork my bg was always between 4-7 mmol/l. I got complacent and just kind of carried on with the assumption that all was still good. Fast forward to the end of January of this year, I did my regular blood work and my random bg was 21.1 mmol/l and A1C was 12%. My GP put me on Lantus 12u a day. Took a couple of weeks but my bg got back to a more manageable level, still not great though. I was referred to a diabetic clinic at the hospital, as my endocrinologist had retired. They sent me for labs including C-peptide and GAD and started me on a sliding scale of fast acting insulin. I just got my C-peptide results back (536 pmol/l)(I wasn't fasting), my blood glucose at the time of the test was 13 mmol/l. I am still waiting for the results of the GAD test but my c-peptide levels were higher than I expected them to be. My doctor hasn't called to go over the results yet, as I'm assuming they are waiting until they have all the tests back. Would those c-peptide levels be consistent with someone with LADA who still has decent beta cell function? Or does that level rule out LADA? If all of these tests come back negative they plan to send me for genetic testing for MODY</p></blockquote><p></p>
[QUOTE="Brendan_M, post: 2592605, member: 503982"] I was diagnosed with type 2 diabetes in the spring of 2019 at the age of 31. I went to the doctor for unexplained weight loss of 15 lbs over a few months. Blood work came back with an A1C of 7.8%. Because of my lack of risk factors (healthy weight, active lifestyle) and history of Celiac disease, my GP suspected type 1. I was referred to an endocrinologist who was very adamant that it was type 2 because my blood glucose wasn't that bad and I was too old for type 1. I asked for a c-peptide and GAD test but she insisted that was unnecessary and with the wait times to see a new endocrinologist i didn't have many options. So I was put on Janumet 50/1000mg (Sitagliptin/Metformin) twice a day. I some how got my insurance to cover the freestyle libre even though i wasn't taking insulin. By the summer my A1C was down to 5.2%. I used the freestyle libre for about a year and half until my insurance changed and the new one wouldn't cover them. I kept doing finger pricks for a while but like clockwork my bg was always between 4-7 mmol/l. I got complacent and just kind of carried on with the assumption that all was still good. Fast forward to the end of January of this year, I did my regular blood work and my random bg was 21.1 mmol/l and A1C was 12%. My GP put me on Lantus 12u a day. Took a couple of weeks but my bg got back to a more manageable level, still not great though. I was referred to a diabetic clinic at the hospital, as my endocrinologist had retired. They sent me for labs including C-peptide and GAD and started me on a sliding scale of fast acting insulin. I just got my C-peptide results back (536 pmol/l)(I wasn't fasting), my blood glucose at the time of the test was 13 mmol/l. I am still waiting for the results of the GAD test but my c-peptide levels were higher than I expected them to be. My doctor hasn't called to go over the results yet, as I'm assuming they are waiting until they have all the tests back. Would those c-peptide levels be consistent with someone with LADA who still has decent beta cell function? Or does that level rule out LADA? If all of these tests come back negative they plan to send me for genetic testing for MODY [/QUOTE]
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