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<blockquote data-quote="RuthW" data-source="post: 1168251" data-attributes="member: 148713"><p>These points don't seem to include diabetes education, do they? </p><p>The single thing that is necessary to ensure that a pump user is able to use it to improve clinical outcomes AND quality of life is proper training.</p><p>Apart from not mentioning education for adults as a condition of having a pump, you don't mention kids. Currently, pumps are given to children, apparently willy nilly. As the child gets older and takes over their own management, they are NOT given DAFNE courses, etc. It is assumed a) that their parents actually did know how to manage their child's diabetes, and b) that the parents are capable of imparting that knowledge effectively to a teenager. I'd put money on both of those assumptions being false 80% of the time. Hence, pump use statistics get skewed by young users (teens and adults) who have been failed by a huge gap in NHS diabetes education programs. And a myth that pumps 'don't produce improvements.' And a bunch of youngsters who don't know what they don't know and so cannot even ask for help. I know. I was like that once. My parents were excellent when it came to convincing doctors about how well they cared for me. But they didn't. The problem is that people also convince their kids that 'that's how it is.' The kids despair and withdraw.</p><p>If you are in the user group, you could raise this issue of training for youngsters. Of course, a tiny minority of parents do it really well (they're probably all members here). But too many don't.</p></blockquote><p></p>
[QUOTE="RuthW, post: 1168251, member: 148713"] These points don't seem to include diabetes education, do they? The single thing that is necessary to ensure that a pump user is able to use it to improve clinical outcomes AND quality of life is proper training. Apart from not mentioning education for adults as a condition of having a pump, you don't mention kids. Currently, pumps are given to children, apparently willy nilly. As the child gets older and takes over their own management, they are NOT given DAFNE courses, etc. It is assumed a) that their parents actually did know how to manage their child's diabetes, and b) that the parents are capable of imparting that knowledge effectively to a teenager. I'd put money on both of those assumptions being false 80% of the time. Hence, pump use statistics get skewed by young users (teens and adults) who have been failed by a huge gap in NHS diabetes education programs. And a myth that pumps 'don't produce improvements.' And a bunch of youngsters who don't know what they don't know and so cannot even ask for help. I know. I was like that once. My parents were excellent when it came to convincing doctors about how well they cared for me. But they didn't. The problem is that people also convince their kids that 'that's how it is.' The kids despair and withdraw. If you are in the user group, you could raise this issue of training for youngsters. Of course, a tiny minority of parents do it really well (they're probably all members here). But too many don't. [/QUOTE]
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